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Head and Neck Cancer

Archives for May 2012

HALLELUJAH!!!
HALLELUJAH!!! PET showed no other signs of the big C anywhere but where we already knew about PLUS in 2 less lymph nodes than the CT radiologist identified!!! The only bummer is just because I didn't think about it but the tonsil cancer cells spread out a bit. No biggie though. That's what the chemo is for. Overall, I am…
Olfactory neuroblastoma - how often do you have scans
Hi I am a 2 year survivor of ENB living in the UK. I haven't found anyone in the UK with this very rare tumor on any online forums, since my diagnosis, so I often check into your great site in the USA. I have found it to be really helpful and everyone is so friendly. I wanted to check how often you are offered MRI scans…
After Radiation and Chemo for a few years
I'm checking back in and wanted to know what everyones aftermath, that had radiation to there neck, or larnyx area...i suffered l/s paraylis, kept my voice box, but have a very tight breathing line..for some reason the muscles in my neck seem thicker, and sometimes seem to lock, the nerves in my throat are still resistant…
Exposed Bone
I just got back from my radiation onco and she says I have exposed bone in my mouth. I had what I thought was a sore that is pretty painful, she said it's bone coming through the skin near my surgical site. I have to have a CT and panoramic xray to make sure it's not cancer in the bone and then go from there. Anyone else…
The First Day
Hubby started his teatment today for Stage III SCC tonsil cancer HPV+. I have been lurking on these boards for a few weeks since we got the diagnosis. The wisdom you each share in your posts made this experience a lot less scary. It went exactly the way many of you said it would. Treatment plan is cisplatin 3x 21 days…
What food do you eat with no taste
I was wondering what foods do you eat with no taste ? I have tried following and able to eat it Chobani yougurt : mango or peach, do not like any other, 13 gms of protein Mango smoothie from costco with protein powder Water melon (like the cooling juicyness, cannot taste the sweet) Banana: oddly i can taste some sweetness!…
Well....darn it all....the rad machine is on the fritz....
The rad-onc called and canceled my radiation today because the machine isn't working. They told me to call tomorrow morning, to make sure it's working before coming in. I'm trying to see this as a day off...but I'm SO wanting to get to the single digits for my number of treatments....after today it would have been 9... p
PET SCAN TOMORROW
Im pretty nervous. I already know I will be stage 4 from the CT results but I pray it's only in the nodes I already know about. Actually, pretty nervous is an understatement...
Hi All....Opinions Sought on Overdose of
Cispatin apparently. My last treatment. I ended up in acute renal failure, creatine 21, wbc <1 rbc? Low, I was too sick to remember. Only I was told by the nurse "I don't want to scare you but you need to go to the hospital NOW because you can die from this". Fast foraward, I am Almost at my 2 yr post treatment mark!…
Final chemo is done!
I went in for my final chemo today. To be honest, I was filled with dread because I still haven't been able to keep anything in my stomach reliably. I'm pretty sure it's the mucous making me throw up, and it's been happening anywhere from 3-5 times a day. The nurse at radiation this morning said she would be OK with…
HPV-transferrable
I have been asking and researching whether HPV+ can be transferred to your partner. After my husband was diagnosed, I went to my gynecologist and was tested. I was HPV+, high risk. I was worried if I passed it on to him or if he passed it on to me. And now since we are both positive, what happens about passing it back and…
Just an update
on where I am. Gained 2 lbs back of the 10 that I lost, white counts back up. And over all energy level and eating ok. I guess this is what we need to know there is survival of treatment. I know it was just the 1st Chemo and it was a rough start and I have many more bumps in the road. I also have to work on being positive…
Squamous Cell throat and oral carcinoma
I was recently diagnosed with Squamous Cell carcinoma of the throat and mouth. It began by me noticing a lump on the left underside of my neck on April 25. It is growing rapidly. A CT Scan and later 4 “conscious” biopsies of the tumor provided the diagnosis. The surgeon is doing a biopsy in the operating room this Thursday…
Pit Bull Sick
I am going crazy in here because my Son told me that my little darling PitBull was having problems at home falling down and running into the walls. My son took her to the doctor and they can’t find anything wrong except old age and maybe some kind of infection. I ask the hospital if I could bring her in here to see me but…
QUESTION FOR THE LADIES
Just sitting here wondering if any of you have had any other cancers prior to the head and neck stuff? I had cervical cancer about 8 years ago. So far, my docs haven't voiced any concern with this being my second time around. I'm kind of scared to ask if this has any bearing on my prognosis.
My sister made me some Magic Mineral Broth
this weekend....OMG a real taste treat (one I could taste the whole way thru). She made enough to get me thru two weeks (we froze some)...I'm just so amazed that it was so tasty....to her, it seemed bland, like most of the normal food is to me. Anybody wanting a high nutrient broth, that doesn't leave your taste buds after…
20 treatments done! Woo Hoo!
I think my last few posts on here were pretty negative so I thought I'd post something a little more positive. There was a point in my 3rd week of treatment when I thought I really wouldn't be able to finish. I was in so much pain all the time. I couldn't drink anything without MM and I was getting dehydrated because water…
Just wanted to say "Hello"
Hi Everyone, I have not been here in a long time and just wanted to update everyone on Connie's condition. She has done very well with clean scans and we have returned to life as normal as possible. She had her feeding tube removed in February after one year and has been eating pretty well although she is way below her…
RADIATION + CHEMO
Hi, Mike here. I was diagnosed a couple of months ago with Squamous Cell Carcinoma on my larynx. God has healed that, no sign whatsoever at this point. Ive had 3 chemo treatments with Carboplatin/Taxotere. Im now doing radiation treatments 5 days a week for 7 weeks. Not sure about that at this point, but doing it to make…
anyone tried Hallelujah Diet for cancer
Jim and I were going to try the Hallelujah Diet just before he was diagnosed. When he was diagnosed we didn't think about it again until the recent news that his cancer spread to the lungsit. The website has many testimonies from cancer survivors. We were thinking of trying it since the oncologist said he wouldn't survive…
Taste buds gone..cant wait for their return...:(
I had my 8th rad on friday and thought i might have good long week-end....i was sooo wrrong! I knew i would lose them but could not it have waited two more days! Water tasts bad....but trying to get used to new taste. Fruits taste bland ...but i am okay eating them..does not tase nasty like water does. Will it stay this…
First Treatment and What can I do this summer???
Hey everyone, I just had my first Chemo treatment this week (Friday May 25) So far so good, no nausea or fatigue yet. The only side affect I really felt was on day 3, some intense joint pain in my knees, ankels, hips, lowerback, elbows wrists, and neck (all joints). It was a soreness like it was stiff to move but after…
3rd attempt at getting my mask made
hi everybody well tomorrow will hopefully be the day to get the mask made 1:40pm and get this thing going if they can make the mask tomorrow then the following Monday i should be starting the chemo treatment 3 cycles of cysplastin and 7 weeks of rads i want to get it started so i can get it over with i'm hoping for no…
THE IRONY OF TIMING?
for the last 12 years i was a top performer and very sought after in my company. then pretty suddenly everything changed and i just started to hate everything about what i was doing. i couldn't figure out why. my blood pressure was up and my spirits were down. so i went on medical leave for 6 months. i ended up resigning…
Update on feeling rough ....
Hey all ....just wanted to give a quick update on the "feeling rough" post I did last week (I think it was last week). I was in the ER yesterday (Saturday) with a pretty ugly peg tube infection ...just seem to explode over a 2 day period.... ..anyway... the ER doctor called my docs in Boise and he / they decided to take it…
My Husband - About to Start Sixth and Final Week
Wanted to give an update. My husband is doing pretty well. Frankly, I am quite surprised at how well he is holding up to this brutal treatment, especially considering this is his second time to get radiation. He is extremely fatigued, has very dry mouth, had thrush, a bit of a sore throat (and I mean a BIT - nothing like…
Woke up with hair
going to bed BALD? Well I guess I was not prepared for todays events as my hair started coming out/ Chemo 101. So off with it, sheers in action and as I post now I look like Mr Potato Head, told TODitto she could add ears, mustache etc. On a serious note I had not heard about that much hair loss for HN, I guess its as…
After Treatment- Horrid
Hello my mom has finished her treatment, intact somewhat, she spent the last 2 weeks of her treatment in the hospital, she is 68, PEG tube equipped and uses regularly. Last Rad was 3.12.12 and last Chemo was 2.22.12- today 5.27.12- she feels horrible, mucus party every day. No appetite, no desire for food at all. Her…
Side effects for chemotherapy & radiation
My mom was diagnosed with oral (right jaw) cancer in Apr'10. After being treated with pre-op chemo sessions, removal of the affected parts (Jun'10) and post-op chemo & radiation (35 sessions/ 20 minutes each), the treatment ended in Sep'10. Now, after 20 months, she has again been diagnosed with cancer on the left side of…
Thanks and Hello Everyone
I would like to say thank you very much too all of the contributors to the CSN website I’ve read and I would like to introduce myself and fill you in on my status. First, my wife (Candy) discovered this website around the first of the year and we have both enjoyed and used it regularly. Until just recently, Candy did all…

Head and Neck Cancer

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