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Head and Neck Cancer

Archives for February 2012

Dawn - Not cancer related, dogs instead
Well my wife decided to come down to our place in Mexico and this time she brought her two Yorkies (Miguel and Annabella - Miguel is in my avatar). Well Annabella decided to give birth to her first litter of puppies, three boys. Now we have to get them back to the US but the problem is you can only carry two small dogs…
almost done
Hello Forum, Well I am on the last stretch. 5 more rads and one more chemo and I am done with the current active treatment plan. It is weird, the infected lymph nodes that were oh so visible are all but melted away. I am so excited to get this phase over with and start towards recover from treatment. I have stage 4…
One more day
Well, one more day to go before I start my treatment. Thursday at 1:30 I have my 1st radiation session (IMRT). I met with the Chemo Dr today and He told me I was STILL aT20n0m. A CT scan last week shown no signifcent Change in size and for the first time he told me it was hpv+ Which my wife looked at me funny (22years…
here we go again....
I watched him shave his head knowing it was for some control at a time when he has none. He was stoic,and strong on the outside,but I cannot imagine what he is feeling on the inside. I am so proud of the man I married,and I pray I have more time to prove it to him as we are only 32. I feel so powerless. I have always been…
SCC to Start - in Preauricular Lymph now - Radiation questions
I actually posted this yesterday in skin cancer as that is how mine started - but now I'm on a new adventure :) 37 rad trmts. w/ 5 high intensity to the tumor sites in front of my ear at the end I think. Doc said this morning that she doesn't think I'll lose a lot of hair but still no indicator on if it will come back.…
Our God is Awesome.....
Awesome, faithful, and never failing! Thank you all (AGAIN!) for your prayers, love support, and blessings! I have been declared NED once again! I am so grateful for this site, and my fellow fighters. Just know, that you can win the battle too. There have been times I would not have, or could not have believed I would be…
Good news and confusion about my esthesio removal and f/o tx
I went for my follow-up appointment with ENT and Rad Onc yesterday. The good news is the path results came back saying that the tumor was as we expected an esthesioneuroblastoma, but all the margins were clear. The ENT was mentally patting herself on the back...I'm happy she did a good job too. But she was not sure that…
Saliva
I had cancer of the larynx and have been out of radiation and chemo treatment for about nine months. I Just had a petscan and other than alot of irritation from the treatment, the cancer stayed away. Believe me, I am the most thankful person in the world right now and really hate to complain about anything. I do have a…
Acinic Cell Ca. Parotid Gland and Mestastases to Neck Lymph Nodes., Stage 4
I have Parotid gland and metastases to neck lymph nodes. Three surgeries, all failed to excise. Metastasized to neck lymph nodes. Is there any chemotherapy or any threatment for this acinic cell ca? I was told just surgery. I had radiation also. Neck tissue is very scarred and thick and damaged. Fearful of fourth surgery…
Scan results...clinical trial
An update on my husband, Andy, who is in a clinical trial treatment for metastasis...Andy has had four out of eight cycles of his Reovirus clinical trial and had his second ct scan a week ago. His first scan showed a very positive response with approximately 40% shrinkage of his lesions. The second scan surprised his…
Mucoepidermoid carcinoma, grade II
My 12 year old sister was diagnosed with this last Friday. As you can imagine, we're all adjusting to the news. We are scheduled for an appointment later this with the cancer center and I want to know what should I be expecting. We are all freaking out and want to see what everyone's experience was. Any advice is helpful.…
Question for the Ladies
For those of us that lost all of our hair thru treatment, my hair is coming back in about 1/4 all over my head , not wanting to sounding toooo vain it's coming in gray and I think it makes me looked washed out..I've always been a redhead. I saw my stylist over the weekend and we discussed giving me some color, I am 2…
NPC
Did an intriguing NPC search this AM- finding a 3-part NPC seminar you tube on Google with five C Specialists, at what appears to be a meeting of C Drs. A Swedish Dr is the MC, and there's an Asian, Brit, and American Specialists. NPC was the specific C being discussed. I'm not sure what year it is from, other than it's…
brand new
Hello there. I am a caregiver to my wife Shae. She'll post sometimes, too sick to right now. She finished radiation therapy 3 months ago for ethmoid cancer. Everything was fine until last month when she totally has gone into decline. During the actual treatment she was great, ate wonderfully. her doc just told us Thursday…
Any advice for my mom about to have surgery for tongue cancer?
Hi Everyone, My mom was diagnosed with stage 3 SCC of the left tonsil and lymphnode. She received about 2.5months of radiation and chemo., followed by another 2 months of chemo after radiation, treatment ending in 10/2011. She was declared cancer free 12/2011. Two months later her PET scan revealed the cancer spread to the…
Sweetblood22?
I haven't seen Sweetblood around lately. Have I simply not been paying attention? I hope all is well. Deb
my worst fear wan't so bad - Mexico
Well I was worried about what to do if my tube had to be replaced while I was in Mexico. Well yesterday I woke up and my coffee was streaming out of my tube (pin hole) like Old Faithful. I loaded my skinny butt into the car and went to the local hospital to get a new tube. It took less than 45 min in the emergency room and…
Weed
Hi, All. I live in Michigan and I could likely get legal marijuana due to my cancer. All of my life, I have been very anti-drug and at 61 I can honestly say that I never tried weed. Yes, I survived the 60's and the Marine Corps without once trying this. However, with the pain, anxiety and loss of appetite that I have been…
side effects
Sometimes we get side effects, or so we believe that seem a little off track, I remember the one where there was pain between the elbow and wrist that someone posted, I too had that pain but did not think it was related. One effect I now have is that if I go to bed and am on my back for about 30 minutes, my mouth goes…
any suggestions to help with taste?
My husband Robert, will be finishing his second week of chemo/rads on Monday. Shortly after his second chemo last Tuesday, he lost his taste. We know this is a side effect, but we are looking for tips on what types of food and/or flavors may have broken through for people. Butter seems to work with vegetables and noodles,…
Sudden taste loss
I am about 8 months from last rads and was congratulating myself that a large part of my taste had returned (after around the 3rd month). I have a cold right now and have completely lost all taste and smell overnight. Haven't had a cold or flu since treatment so no idea if this is normal in the new normal way of things. I…
A heavy heart
It's too early but I didn't sleep well. Went online to read our local newspaper and was very saddened to see a gal I had met had died. I live in a small town of about 15,000. Last April while waiting for my PET scan there was a woman in the next cubicle awaiting her's also. She over heard what my cancer was and where I was…
Peg Tube Removal
I'm about to schedule the removal of my peg tube and would like to know how the peg is removed. I did read somewhere that all they do is pull it out. If so, doesn't it hurt?
Gotta love insurance
I have had cancer twice in one year. Radiation twice. Insurance company (Anthem Blue Cross) will not let me get another PET Scan until I am showing symptoms. I asked what the symptoms were to look for (I also have asthma and allergies). This is how I spent my lunch 30 minutes today. I have to agree, Cancer Sucks--so does…
Neck Dissection with Nerve Pain
A little update on my recent treatment. I started phase III yesterday getting RT. They first told me it was going to be 25 treatments but changed it to 30. The reason was that it is low dose RT and they are stretching it out to minimize my side effects. Coming home today from my 2nd treatment I could feel the burn on my…
HNC Superthread. A collection of links with ANSWERS TO FREQUENTLY ASKED QUESTIONS. . ****This is a "
**Welcome new members! This post contains a collection of links to helpful resources and some of our answers to the most frequently asked questions in our H&N community. To help new members locate information as quickly as possible, this post is enabled to stay at the top of our discussion board. ** This post is "read…
Face and Neck Spasms/Charlie Horses
Hey everyone. I had my "checkup" Tues. I am excited I am approaching my 2 yr anniversary for end of treatment and thus moving out of the so called "critical time" my dr gave me, when the most likelihood of recurrence occurs. So, he goes on to tell me nonchalantly that he himself will not "feel better" until I reach the 3…
Why are we waiting so long for Biopsy results? (ENT)
It was Aug 2011 when I noticed 2 lumps on my husbands neck his Submandibular Gland was the size of an egg & his salivery gland was also swollen. He went to the Doctor who sent him for an ultra sound and when our GP wasn't satisified with the results he sent my husband to the Head & Neck (ENT) specialist. In Dec 2011 he had…
LongTermSurvivor ~ On The Road Again....Homeward Bound
And all of that other shitsnizzle....... Basically Pat has a wake-up, his last rad session and then his butt is on the road again, and homeward bound.... Hoping the morning flies by, and the trip home greets you with a huge puddin face.... I know your butt isn't getting any sleep tonight, but wanted to give you a shout…
Some Updates About Me Lately.
Hey All I know I havent been posting on here as of late but just been dealing with doctors apts. I am still cancer free as of last fall but still dealing with some really nasty side effects from post cancer treatments. Like my light headness all the time and shoulder/neck problem and numbness in the legs/arms. So today I…

Head and Neck Cancer

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