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Heroes
I generally lurk here but do occasionally post. I would like to state for the record that the heroes on this planet are not the ones that score the touchdowns or hit the grand slam home runs. The heroes, my recently discovered ones, are everyone on this site that takes the time to help us by answering our questions and…
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1st Oncologist Vist
Can anyone tell me what to expect; I had my right tonsil removed on June 27th, I have a lump on the right side of my neck. My oncologist, after another PET scan said she wants me to have a course of chemo, 3 infusions , 1 every 3 weeks, then a course of chemo/radiation. I go back to the oncologist on Aug 1. Everything that…
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Pity Parth
Feel free to join me for a pity party. I was supposed to have a neck dissection today. When I arrived to register, I got some funny looks and was told that the doctor would come out to talk to me. I was hungry and looking forward to being knocked out, wanted to get this out of me. Doctor had a major emergency surgery that…
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Fine Needle Aspiration
Hey all again. I just have a quick question. I have an appointment for a Fine Needle Aspiration of my Lymph Node on Thursday. When I try to look it up in google, I get several different responses as to what to expect. Do they put me to sleep? Is it just a local numbing agent? How long will I be there after its done? Is it…
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SCC Tonsil Cancer Survivor ~12 years out.
Here is my story; http://www.freewebs.com/texan151 Use the scrollbar INSIDE the window on the right (NOT the browsers scrollbar)to see my pictures. Links to other pages (with scrollbars) appear as titles on the left side of the page. I have made peace with my creator and I have realized since this event that I am on *bonus…
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What next
Hi All I just completed my 35 radiation treatment 7 days ago and my 3rd (final) round of Cisplatin 14 days ago. My mouth cheek has sores on the right side that seem to be improving and my tongue has a large sore on the same side. Luckily my throat never really got that bad and it seems to be improving as well. My saliva is…
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Is he cooking too long?
Hi all. My husband has been feeling really good and getting his energy back. Last rad was June 7 and PEG has "left the building" so he is eating on his own. The first scan is scheduled for August 1...however, his throat really is still quite sore when he swallows. His ears were bothering him but that does seem to be…
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NED keeps coming around....
I know I don't post much on here but I do read posts daily and try to add my two cents here and there. For those that don't know, I'm a caregiver to Mike-he is also my life partner (maybe someday we'll get married-LOL). He is 13 months post treatment for Stage 4a Tonsil Cancer. I'm pleased to report that NED came around…
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Good scan results
Hey everyone, just wanted to share some good news. I got results from my MRI today and was told my tumour has shrunk quite a bit from the chemo which I am ecstatic about. I have stage IV Nasopharyngeal Carcinoma and instead of going straight into radiation/chemo treatment which I am told is apparently the standard…
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I just downed a boost!
Reading about everyone eating....I am starving...I decided I would just bite the bullet and just downed the boost.....hope that helps me sleep better. I cannot wait to get to the other side and enjoy meals again.....wonder what that will be, I love such variety...mexican...greek......japanese.....and much more that gyro is…
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Thanks for all your support, help and love....12 rads down
So went through my 12 rad, ended up speaking to the doctors and nurses...Going to try to manage pain with liquid Tylenol 3 with Codeine every 6 hours and 5mg (pill form..think I may need it in liquid)of Codeine 3 hours after each Tylenol dose. The doctor also prescribed 3 days in a row of 2L IV fluid with cordisone to calm…
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Thank You!
Hi all: Just wanted to thank all of y'all for prayers for Donna at my church. I found out while I was out of town that she passed away Thursday morning. I also learned that it was March 17 when she was diagnosed. She didn't even make it four months. Thanks for all the prayers and continue to pray for her family, please.…
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what meats?
I am 7 months out from treatment (35 radiation treatments or the gift that keeps on giving as I like to say). My feeding tube came out on Friday...big day! My taste buds are back and working well. My question is this to all of you who have been down this road. There are certain foods I still have trouble with. I have had…
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A great weekend
My hubby and I are having a great weekend. Yesterday, we shared a bowl of tomato soup and he had a few bites of a grilled cheese sammie, w/out the crust. The day before, he had some ramen noodles and 1/2 a turkey sammie. I am so happy for him, he is feeling great and is looking forward to having some meatloaf and gravy…
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Low Country Boil
I have to say first that I'm sorry for those of you still struggling through taste and saliva issues....I do have compassion as I have been there also. But after two years post treatment, I have regained a huge amount of both and do enjoy good eats....so I was watching one of the fishing shows the other day and they were…
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Any tips to help with the nausea from Cisplatin?
Good Morning! I am hoping someone may have some suggestions if there is anything else I can do to help my husband,Sam, with some relief. He had his 1st of 3 chemo treatments on Tues - 7/12. We were told he would probably not feel any side effects till the next day or possibly even Thurs. Well he ended up being sick an hour…
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Wish me luck - A GOOD THING
Taking five grandchildren to Panama City Beach for a week. Oldest is 11 youngest is 1 1/2 (his mom will be there, even I'm not that brave). Really do hope my strength stays up this week because I do want them to make good memories.
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I can eat a GYRO! I can eat a GYRO! I can eat a GYRO!
..not that I am excited or anything..It has been over 18 months...yum. Stacey
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juice while in treatment
Did anyone drink or put through PEG juices during treatment? If so what juices did not make you sick to your stomach?
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a funny one
tonight i went to the kitchen to get myself a snack (i am still 40 pounds under my starting weight). The wife looks over my shoulder and tells me that there arent any snacks because she hasn't had the time to do the grocery shopping. So she suggests a can of peaches. I think okay, i know that peaches taste okay now because…
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We've lost a friend
Not sure if everyone is aware but we've lost our friend Scambuster. Apparently he has been censored/banned from this board. I'm not sure exactly why but my guess is that he might have posted one too many times about alternatives to conventional cancer treatment and the conventional diet that is recommended by most…
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Tat #2
Hey Kids, Hope all my CSN buds are hanging in there! I've been a lurker lately, only able to check in once a week or so as it's been a hectic summer for me. Back to my 55+ hour work week plus playing catch-up for everything (fun) I missed last summer. My wife and I have been traveling every weekend with a few weeklong…
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"Mean" cancer made me think
I always assumed my cancer was female because it cost me a lot of money, had me tossing and turning at night and had me watching my weight very closely. At least I kept the house when we parted. Nuff said
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Black Tongue
I am on the verge of becoming a "registered Chow Dog" - my tongue has several black spots and they are growing. If this were on someone else I'd probably stare, smile (possibly giggle to myself) and throw them bone but the fact is it is happening to me. My Dr told me "don't worry about it" but that is hard to do when you…
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Completed treatment!!
Hi everyone! Just wanted to let everyone know I FINALLY finished chemo/rads on Wednesday! I managed all 3 rounds of cisplatin (last 2 at a reduced dose) and 35 rads. Had a couple delays due to chemo related side effects, a few shots of nupagen, a unit of blood, a bout of pneumonia, a couple hospital stays, and one ugly…
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11 rads in and it is getting tough already
#12 is today......throat is killing me....tried to eat a bowl of cereal with milk this morning softened....bad choice.....felt like push pins all the way down my throat and then got naseautated and got sick. Now my voice is gone. This is so painful, taking t3 elixer right now along side with 2 different rinses. I have read…
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Ensure or Boost
I was just wanting the opinions of some of you who have had to drink these for your nutrients. My husband is struggling getting in his food due to the swelling of the graft in his mouth. He is basically drinking his food and we are thinking we need to get more nutrition into him. Of these two.....the ensure and…
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90 day post-treatment shows lung inflammation/"warm" spots
I went in for my 90 day post-treatment PET and CT yesterday. All the disease in my neck and lymph nodes is GONE!! Wiped out, eliminated, kaput. BUT, they discovered what they described as "warm" spots in my upper lungs. They say these are caused by inflammation, infection or metastatic cancer. There is still a lot of…
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I really miss pizza
I am about 7 weeks post treatment for scc tonsil cancer. 38 rads and 3 chemo....a walk through hell. I seem to be healing good. My taste is coming back slowly but surely. I have been able to eat cheeseburgers for about a week and a half as long as I drink after each bite to swallow. However, I still cannot get pizza or…
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Lymphedema
I am 7 weeks post scc tonsil cancer treatment. 38 rads and 3 cisplatin. At about 5 weeks I noticed swelling/juggling under my chin. At first I freaked out thinking c was back but it seems to make sense that it is a side effect of the lymph nodes being removed. Does anyone know if I can find some online resource to show me…