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Head and Neck Cancer

Archives for November 2010

Chocolate chip cookies...
When I was about three weeks into the cisplatin and rads, a family friend sent over a batch of chocolate chip cookies. They smelled fabulous. However, taking a nibble off the edge of one of those suckers was like filling my mouth with parafin wax. No flavor at all. Hurt to chew. Stuck to my teeth. Felt like glass on my…
Moving Forward
I received excellent news today and just wanted to share. The results of my first post-treatment PET scan shows that I am currently cancer-free! This is the best news I've had in six months. I am so blessed! I am grateful that I have such a supportive wife (caregivers need lots of love), a loving family and a lot of…
Graduation Day...I guess
Just wanted to share with everyone that today was my last rad treatment #33. I amout about one week off schedule. I had to suspend the treatment with only 4 left for a week when my neck became so burnt from the rads, (doctors orders). And yes, I though about not finishing, But all behind me now Yahooooooooooooooooooo!My…
Back in the chemo saddle
Hey Guys, Just wanted to let y'all know I started back up today with a blast of Cisplatin and day one of 35 radiation. They installed wifi in the chemo room while I was gone so I am actually writing while getting chemo. I was hopeful that I wouldn't need to be back in this room but the protocol calls for what it calls for,…
How Long
How long before everyone started to feel better after throat cancer treatments. David is post 3 weeks and a half and feels terrible today. throat still hurts, thick mucus, week. Still on feeding tube, but drinks tea and water, still on the pain meds. He wanted to know how long before things will start healing in his…
Reflash post treatment
In the sixth year of remission after the treatment for NPC, I recently had rash in my whole body resulting in an emergency visit. The rash was similar to the one I got when I received the first dose of cisplantin during the treatment. Emergency room doctor said it was caused by my body’s allergy reaction. Has anyone…
Cyberknife
I have done some research and the most I have found is that they do not recomend Cyberknife for tongue cancer. I had an MRI a few weeks ago and still have a golf ball size tumor on the left side base of the tongue, also one lymph node that is enlarged. I spoke with my Oncologiest on the phone Friday and he informed me they…
hyperbaric oxygen therapy
My husband was diagnosed with stage IV throat cancer in March and underwent 7 weeks of radiation and 7 rounds of chemotherapy. The tumor was at the base of his tounge and around his tonsil area and was to large to remove with surgery. After completion of his treatment May 25th he has had 1 pet scan and 2 biopsies because…
Hospital and Insurance Issues
Hyperberic Chamber was located in another Hopsital, I have had nothing but problems getting this hopsital to get B/C B/S of Michigan to get there payment, the hospital either can't give me info, last month they pulled my account, but they keep sending me bills for extravagant amounts. Blue Cross will pay for the treatment…
Cry cry cry
So I am 12 days post treatment and though I should probably be happy that the worst is over, for the past 3 days I can't stop crying. I feel like my quality of life is just terrible. I love my life, I have much to be grateful and happy for, but I can't stop crying. I miss food, I hate sneezing, yawning, or coughing because…
Not eating post round 2 of TPF
Buzz had two rounds of TPF induction chemotherapy for Stage IV BOT cancer. Both rounds put him in the hospital for a week each time. He had severe electrolyte imbalances and neutropenia with infection. So, we are not doing round 3 and are waiting to go to the chemoradiation phase soon. For now he is not eating! His throat…
Mouth Piece
Just a quick question, is there anyone else who got a mouth piece to wear during treatments, along with the mask? Just wanted to see if this was standard operating procedure. Thanks - Grace
Newbie
My husband (50) was diagnosed with stage IVa throat cancer 2 weeks ago and just finished his first week of radiation and 1 day chemo. I've been reading through posts here and they have been so helpful (and hopeful)....I feel so blessed to have found this group to help us along this unplanned journey.......
during radiation, i'm having trouble swallowing anything
Hey Guys. I am 28 and have Hodgkins Lymphoma and usually post on those boards, but I decided you guys might be more help with this problem. I have just finished up 6 months of chemo and am currently going through radiation treatments. The doctor told me I may have trouble swallowing but I had no idea it would be this bad.…
Bloody ear discharge
Hi friends, I want to know if any of you experience bloody ear discharge post radiation treatment. I finished treatment in February of this year and for the past 3 months I have experience random bloody ear discharge. The ENT isn't concern and prescribed anti infection ear drop and fungal pills. Would appreciate your…
For Kimba and all who have scans coming up
Kim, Just to let you know thoughts and prayers are with you and Mark on Mark's scan this week, and to everyone who has scans coming up. Pat's scan is Wednesday and I know how stressed out I am. Here is to NED! Myka
Pulling Teeth
I need some advice for a friend - he was just diagnosed with stage IV throat cancer from smoking/drinking. I guess the treatment will be lots of radiation and some chemotherapy. As you all know, he and his family are in shock and, quite frankly, terrified. I've read a lot of your posts and am grateful for the advice I've…
Anyone here from the Stanford, CA area?
The son of a dear friend up here in the foothills has just been diagnosed with a Head/Neck cancer that is substantially more advanced than mine was. He'll be seeing the same doctor, Kaplan, who is treating me at Stanford Cancer Center. He, however, will have to get daily treatments at Stanford. Anyone have any leads on…
Stories of Hope interviewed me :)
I hope y'all find this inspiring: http://www.cancer.org/Treatment/SurvivorshipDuringandAfterTreatment/StoriesofHope/after-tongue-cancer-a-newfound-determination-to-succeed
Economical Vitamin & Supplement Supplier - iHerb.com
Hi All, Just a note to say I found a very good online Supplier called iHerb.com While I don't necessarily endorse any product or supplier I found they sell most famous and reputable brands and have a very extensive range of prodcts so I found everything I needed. They have a few different brands of the L-Glutamine in…
2 months post treatment, swollen neck and water coming out nose
Hi all, I had written several times about 4-5 months ago, then life got in the way. Roger has completed his chemo (cisplatin) and radiation treatments. he had stage 4a base of tongue cancer that had spread down both lymph chains on either side of his neck, He just got the results of his new PET scan and nodes have…
poor ventilation => npc
I am a one-year survivor of NPC (T2-N0-M0) cancer. I received concurrent radiation & chemo (Cisplatin) in May-June 09. About 3 months back (near my one year anniversary) I started to have nasal allergy type symptoms that I used to have for many years before cancer diagnosis and that had gotton worse toward the end when the…
Mayo Clinic
I have been living in some very bad pain for the passed 5 months now and my local doctors don’t know why. I did an MRI and the Doc here in Lafayette told me my cancer is back and pushing on my brain giving me all the pain. We went for a second opinion at MD Anderson; they did a PET and said I am cancer free, who do we…
White Blood Cell Count
I am 10 weeks post rad for SCC at BOT and my internist is monitoring my lab work since my chemo oncologist discharged me. She just email me with results from todays lab and my white blood cell count is now 3.2 (down from 3.9 and 4.1 prior to that). I just left a message for the oncologist because I am concerned. Does…
What Side effects do you have?
I am just curious about what different or the same side effects we are all facing. I have " Dry mouth, tingle in my finger tips and toes, constant stuffy nose, shooting feeling of electricity down my back that feels like it burst when it gets to the small of my back, ringer in the ears-not so bad anymore, fatigue from not…
This one's for you Kimba :)
As you requested Kim I have changed my pic to a picture of my great grandson Maven. I'm always happy to show him off but sometimes I get carried away :) He's 10 months old now and walking...excuse me, he's running, all over the place so trying to get pictures of him can be a challenge sometimes because he doesn't stand…
Hearing Loss & Tinnitus - caused by Cisplatin - now hesitent to do last round of chemo
Hi, My husband, Joe, has 6 more days of radiation and 1 more chemo (Cisplatin 100mcg/m2) to go. He has developed all of the typical side affects posted here and hopefully can get through the rest of treatment and onto recovery. (I'm very nervous about us managing all of the side affects post-recovery, but we did managed…
stricture update - great news
Hi all. I've been busy opening up our new psychotherapy office in town (a great milestone for me personally) but have been wanting to respond to Una's thread about her stricture. My stricture had completely closed. I see many people talking about their opening in centimeters (cm). 1 centimeter is 10 millimeters (mm, about…
Ring the Bell!
Today was my last treatment day and I rang the bell! Time to recuperate now.
Delayed reaction to Giants winning the World Series
We won!! Ironically I was in Texas at MD Anderson when they won and flying back to SF the same day they were. Needless to say I'm very proud of my team. It's been very inspirational watching them work so hard to accomplish something they never have. I had to change my tickets up to stay a day longer at the hospital and US…

Head and Neck Cancer

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