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Head and Neck Cancer

Archives for November 2010

Prayers for Hondo
Prayers for you, Hondo, as you make your trip to Mayo tomorrow. May they find the source of the pain and fix it. Good luck and please keep us posted when you can. Myka
Continued pain at the site
My husband successfully completed his 35 radiation and 3 Cisplatin chemo treatments almost three months ago. Unfortunately, he continues to have a good deal of pain at the site where the cancer was causing symptoms, in the area of the ear. Jim had late Stage III/early Stage IV hypopharyngeal and base of tongue cancer.…
Clean!!!!!!!!
I just got the results of my Saturday scan, which was my first PET/CT after surgery and rads and I am NED!!!!!!!!!. Am I typing OK? It is hard to type when you are laughing and crying at the same time and jumping up and down and dancing. This feels so good I can't even describe it. I hope and pray that everybody else gets…
starting treatment
Hello to all. Today I begin my jouney to become cancer free. Today I start radiation 35 total treatments. Tomorrow I start chemo for the first, third, and seventh week of radiation treatment. After the first of the year I hope to be a long time survivor. Stay strong Mike.
pet results
I am happy for all that had good pets this month, and through this fight. I just got mine back and, well somone had to have a bad one and i guess it was my turn. At least my drs held something in reserve so we still have something to fight this with, like my kids say (wonder where they got this from) nothing in life ever…
Basketcase checking in!
Hi all: Thought I'd better check in since I haven't for awhile. I'm leaving Wed. to go back to NC to Charlie's folks. I promised my mother-in-law I'd come back and get her Christmas decorations out and up for her. I've already put up my tree as we did this early since this time of year was so hectic for Charlie. I managed…
Biopsies
Hi All, My wife went today for needle biopsy on her thyroid. She has 2.7 x 1.5 tumor. I hope it is nothing and we should know the results by Wednesday. Please keep her in your prayers. I have a scan on the 7th, but I don't think there will be any sign of the c. I just don't know if I can take care of her as well as she did…
PET... NED... EEE... TYJ!!!!!
And Thank You ALL! Just wanted to thank you all for your positive posts, good wishes, and the many prayers. Mt Sinai declared me NED! Tah Dah! I am so glad to add my name to the list of posts this month who have had clean scans. My prayers are with all of you, especially the friends who are having scans in the next couple…
Loss of sense of taste with radiation
I am finished with radiation - thank god - and wondering how long it took for everyone's sense of taste to return. I got fairly concise answers from the physicians and techs about the other side effects, but the return of taste response was very ambiguous. Perhaps it does vary greatly, but I thought I'd just throw it out…
Up date on Me
Just came back from Doc, everything is the unchanged, I found out today, that the First Doctor and Nose and Throat specialist, who did the implant last September of 2009, trimmed my l/s Larnyx, which my voice is now crippled, I asked the Doc today why my tumor wasn't noted after the 5 tests he did, before he carved into…
Beware or be aware
Everyone should know during rad and chemo treatments, and even after you are subject to get thrush and hairy tongue. Doctors did not tell us to be on the look out for either and David has a case of both at 4 weeks post treatment. The signs are wite to yellow build up on tongue and soar throat. Very dry mouth also. When you…
Wah - No Donut for Pam
Well, I WANTED to be in the club of cool kids getting PET and CT scans in November. Doc's office called Friday, and told me that my insurance company will not OK a PET for tomorrow, just a CT. I'm bumming. It's my understanding that a PET will show cancer too small to show up on a CT. I was really hoping for the more…
Pet Scans
I was wondering what was meant by the term "full body pet scan" I was looking at the statement that came from the hospital, it stated "Pet Scan/Cat Scan" full body Sull to thigh. Wondering how much of your body do the scan, is it really from the top of your head to the bottom of your feet. The internet tells me it's from…
Wonderful news
David ate his first real food in over 2 months just now, I fixed him a bowl of oatmeal and he finished it all!! Wooohooo... This has got to be the happiest day in my life. It will only get better from here. Has his first pet will be in Dec and need prayers for an all clear. Hope everyone has had a good weekend and feeling…
swelling
hello everyone, haven't been online in a while due to computer problems. Mike had his PET/CT scan & it was inconclusive. the dr said there was so much edema,they couldn't get a clear picture. They also said that there was some activity that they were concerned about. Mike's had an infection in his neck that's been leaking…
spindle cell carcinoma
Last week my father in law was diagnosed with spindle cell carcinoma located on the top of his scalp. Today, he went to see a dermatological oncologist, who confirmed the diagnosis and said that she did not see anything in the lymph nodes. She did however say that she could not confirm anything until they had removed the…
AS CLOSE TO NED AS POSSIBLE!
Hi all, I want to thank each and every one of you for your well wishes and prayers this week. Pat had his scan on Wednesday and got results today. He has CLL also, so he will never get a complete NED, but it appears that there is NED for the head and neck cancer! We feel so lucky and so blessed and I thank you tremendously…
Starting Treatment Again
Well I got my PET scan results back and I still have a tumor at the base of my tongue left side. My last PET showed hot spots on the right side also and now they are all gone. I talked to the doctors this week and I will have to start four sessions of chemo. Cysplatin this time, I had Carboplatin last time and boy did it…
PEG food
Hey guys, As I'm finishing up the first week of rads I'm making sure I have everything in order to begin using the PEG as soon as it's necessary, if at all. I'm not happy with the ingredients for the canned feedings that my doc has supplied, even though we did find a vegan option. I'm also not finding anything commercially…
PEG couldn't be placed....anyone else have that?
My husband went in to have his PEG inserted today, but after they attempted the procedure the doc says that he can't do it. We were told that his stomach sits too high and that he has a small hiatal hernia. If they placed the tube it would be right under his sternum and that would be too uncomfortable. They gave us two…
First Visit to Regular Doctor
My dad had his first visit to his regular MD since his treatment ended. He had to go back on his blood pressure meds, but at a lower dose. The doctor told him that his diabetes is under control. The only area of concern was his sodium level and it was pretty low. What happens when your sodium level gets low. What kind of…
Neck pain and tightness after dissection
Hi, I'm pretty new to these boards. I was recently diagnosed with mucoepidermoid carcinoma and had the left floor of my mouth removed and grafted and a neck dissection on the left side of my neck on 10/13. I was wondering how it was for everyone else their pain and tightness in the neck area. I have alot of nerve pain and…
This Thanksgiving, among many things I am thankful for you.
It is the time of year when Thanks come to mind..This is my first Thanksgiving following treatment and diagnosis and it sure does change ones perspective. Among all the usual things I am thankful for (and you all know what I mean) I am very thankful for this board. I may not post all that much and am often brief, but just…
Back again
Two hour drive to the hospital for a check up. Probably nose scope. Then two minute chat. Then two hour drive back home xxxo
How do you know when your body really is thirsty
Well 14 years out and I had a first. Last week I finally decided to trim our hedges; basically an all day event. Like all of you I carry my water everywhere but I also know that there are times (always) when my mouth is dry but unless I need to talk to someone, I may just ignore it for a while. Well I guess I ignored it…
US Marine Corps ~ 235th Birthday
Tribute to my fellow Marines and to all of the men and women who have served and are serving our beautiful country...salute!!
PET today for hubby of luv2cut1
Myka...know that I am thinking of you at Pat today as he gets his first post treatment PET. Mark said the scan was no big deal...didn't like the not eating breakfast...no coffee. He is taking it all in stride and is in no hurry to get results. That's just his way. Mixleader and Pam M have scans coming up too. My best to…
radiation graduation friday and THANK YOU!
I was told today that my last radiation treatment will be on friday! I am so excited to finally get to a point where I can rest without having to get to the cancer center everyday. I love the way I have been treated there, but I am so tired. I just want to rest! I am doing a happy dance...with all the side effects I have…
14 Months - Reving up!
Hi all, I have not been on CSN for quite a while. I have a lot going on, but you are always in my prayers. I have my PET Scan on Monday 11/15 at Mt Sinai, and am trying not to rev-up! I am planning to have this port-o-cath out of my chest in December, after I receive my CLEAN scan. I am in the midst of a divorce, and…
Chemo trial waiting list????
What do you do when you are on a trial waiting list? How long do you sit and wait? My 35yr old fiance has been diagnosed with stage IV parotid gland cancer (salvitory gland cancer) in Aug 2010. The Dr pulled us off conventional chemo after 2 rounds and put us on a trial waiting list. What do we do if there are no trials…

Head and Neck Cancer

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