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Head and Neck Cancer

Archives for September 2010

"Graduation Day" for the Bigfuzzydoug
Just to let you all know that I'v ereached my first milestone on my way to recovery and cure: Today was my 35th and final radiation treatment. I've graduated, my diploma: http://www.caringbridge.org/tres/images/photos/2/0/2/9/202994/l.CvLqkECqbuZaCOcg.jpg (There's supposed to be a dot-jpg after 'cg' instead of the…
Neck cramps
Hi, I am new to this discussion group but have posted on the skin cancer board a few times. I had a left neck dissection, alnd, and part of my scapula removed along with levels 1 to 5 lymph nodes removed in April 09. Radiation and chemo completed July 09. For the past 8 or 9 months I get frequent painful neck and upper…
PET / CT Scan Preparation
Hi Everyone. As we have quite a bit of scanning activity and many questions I thought it pertinent to post the following. PLEASE NOTE: THIS IS MY OPINION BASED ON LOTS OF READINGS AND CONSULTATIONS WITH NATURAL THERAPISTS - SO PLEASE DO YOUR OWN RESEARCH ON THIS. THERE IS HOWEVER NO REAL DOWNSIDE TO TAKING THIS APPROACH:…
Peg tube hole.
How long is it supposed to take to fully close? Mine isn't healed yet and it's two weeks out, today. It's definitely smaller and looks like it's healing. Doesn't look like anything is wrong. When she pulled it out she said it would close up in a couple days. I do have some of that granulation tissue and I asked about that…
esophageal dilation scheduled
Hello friends. On Nov 3rd Dr G will try and open up the old esophagus. It is considered surgery so I'll be checking into Kaiser Hospital in Oakland (where they did the neck dissection back in January). He said during his assessment that after the procedure he's hopeful I'll be able to "have the coffee, but probably not the…
Prayers for a friend
Everyone Just got some terrible news today that a friend of mine that had melonoma, has been told he is terminal. It is really hard to take as I had just spoken to him a couple of months ago as he was finishing up his rads. He and his wife were concerned about him still losing weight and when he returned that is when they…
EEEEE
Almost 4 months past treatment went back for the scope. My second NED. The resident who performed it looked about 18 - but it was the less invasive scope I have had done. I was impressed with this Doctor. Of course when I go back in January he won't be there. Sigh !!
Olfactory Neuroblastoma treatment
Hi Has anyone had this type of tumour treated by radiotherapy using RapidArc? I live in the UK and had endescopic surgery to remove an olfactory nueroblastoma in July 2010. I am due to start radiotherapy treatment next week and can't find anyone online in the UK with this type of tumour. RapidArc is a new IMRT radiation…
Starting up again
After meeting with the radiation oncologist yesterday it looks like I'm starting radiation and chemo the 11th of next month. I had just finished up 3 rounds of Cisplatin and Gemzar and had a clean PET scan at the end of August so I was hopeful that I might be done. But the protocol calls for the 35 rad and Cisplatin…
99.9% Happy but Confused from PET/CT Scan
Hello, I just got off the phone with my oncologist after receiving a PET/CT scan yesterday.I also had a MRI of head and neck two weeks ago which showed an enlarged lymph node which is why he ordered the PET.I was currently fighting a nasty head cold.The MRI showed no tumor growth in my nasophyarnx.I am happy to be told my…
SIDE EFFECTS SO SOON
Hello, hope everyone in this group has had a great day. I just completed my 15th Radiation treatment and will start my 2nd Cisplatin treatment next monday. I contracted Thrush probably shortly after my Surgeries and it has been a struggle trying to get rid of it ever since. I know the Thrush can cause pain in the areas of…
Having problems sleeping
Hi everyone I am D-Byrds son Jason, and I was just wondering if any of you guys have problems sleeping? My father sleeps around 3 to 4 hrs a night and it is starting to get to him. He went to the doctor last week to see if he was sick because he was feeling dizzy all the time and the Dr. said he was fine. He is not that…
Scam Scan
Just back from a very long day in HK at the AM Med Cancer Clinic where I was treated last year, to get the big PET CT. 1 year out of treatment next week and first scan since mid December last year. It was a very big one for me. I was truly blessed today with a completely clear Scan. I am a little too tired to do my jig but…
Question Regarding Chemo w/ Pump
Hi there, everyone ... First, let me apologize for all these questions. During this journey, I've found that if I know what to expect, I can handle things a little better. Even though you have *no* control over what happens ... it gives you the sense of having a bit of control. Anyhow ... My husband was diagnosed with…
BIG DAY for Glenna and Irishgypsie!
Today, I believe Glenna celebrates one year post treatment! Congratulations Glenna!! Many have said that at the year point you have regained all that you will regain. Can you please let us know what 1 year looks like. Good job girl...keep moving forward!! Irishgypsie has his first PET today...let us all send all the good…
Candies/Food that stimulates saliva production?
Hi everyone! I am trying to find candies/food that would help stimulate my mum's saliva production. She tried Biotene sugarless gum, and it burnt her tongue/throat really bad. Besides, she cannot eat/drink anything that is acidic (burns her tongue/throat as well). Recently the mint flavored mentos seemed to help her. Any…
Hi All! Checkin In On My Peeps :)
Hey all, just wanted to give you guys a checkin' in on. I FINALLY got a picture for my profile. I dont like my picture being taken in the first place. And since all my changes I REALLY didnt want my picture taken until recently. My weight finally settled out. I started the whole journey at 214 lb. I got my weight stable at…
Emergency
Got a call into the Dr supposed to call me back! Has anyone had this kind of reaction to radiation. His tumor in tonsil area and 2 lymph nodes. they are radiating all the way around the neck though. His next 11 treatments will be focused on the tumor only so he is almost finished has had 28 rads so far! Thought I would see…
Emergency room?
Dave don't know what to do, he says he can't swallow his throat feel swolen shut. Should he go to hospital? Can they do anything for him? He is supposed to have last chemo in morning! Don't know what to do. Should I call doctor? Take him to hospital ? What? Need advice here quickly
Disability and Working or, more importantly, Getting Paid
This is my first post (though not my first try at posting). I suppose it should have been on my situation but this is something else on my mind. I have checked into my company’s disability policy and it seems that it won’t cut it for me. At its maximum it will only pay about 40% of my salary while saying that I can earn up…
Skin care around the PEG
Any tips on care of the skin around a peg? The dressing got wet with drainage and in no time the skin around the peg became quite reddened and raw. I have been cleaning with a baby wipe and drying the area then applying aquaphor ointment.
People who had NPC aka Nasopharyngeal Cancer I have questions about it
Hi Guys I just have a question to ask about NPC aka Nasopharyngeal Cancer how long do I do I have to live after this is treated? because I am asking this is because I am only 24 years old and only been married for a year and don't have any kids yet. This cancer did only spread to one lymph node on the right side of the…
chefdaddy
Any news on Mike, last I heard he may have been in Disneyworld?
Not eating or dinking 6 days after chemo although can swallow. Has a PEG. Start using it?
I could use some advise on what to do for my husband. His appetite has gone to nothing and all he managed to get down yesterday was a scrambled egg and 1 milkshake. He has been asking me to put water in the peg and I have done so. He can swallow still. We have not seen a dietitian about tube feedings but should I start…
More Birthdays...
Yeah, I named the American Cancer Society as the official sponsor of my birthday a few years back. Well, they just gave me another one! I turned 35 today... I'm ~11 years removed from squamous cell carcinoma of the tongue, and I'd like to thank all the doctors and nurses who put me back together again all those years ago.…
new and scared
Hello to all, I just found out on 9/23/10 that my right tonsil has carcinoma. On Monday I go for my first pet scan and consultation on Wedensday. I don't know what to expect. Please help? The information on the net is overwhelming and confusing. Any insights or simpler info, would help. Thanks Mike
Past Postings On CSN Board
Hi Everyone, I hope you all are doing well, and making progress in you healing. May God bless you during your struggle. I hope someone can help answer this somewhat incidental question compared to all the life and death posts here. I need to access my postings, and cannot figure out how to go about doing this. I have to…
blood drainage
Hi all I hope all is well im so sorry i know this well be gross so for give me twice this week im not sure if it coming from my throat or my nasol but its been real thick mucus along with blood and the the blood is getting darker help!!!! but it only happend twice
shortness of breath
good morning everyone. i need help, mike got his trech out a week ago & since then he's having some breathing problems. to me it kinda sounds like sleep apnea the way his breathing starts & stops. i took him to the E.R.thursday morning & after 5 hours all they did was give him an iv of fluids & something for his headache.…
Saliva Problems
Hello Everyone: Just want to give you all a bit of information and hope it helps. my name is Hilde and I was diagnosed with Non=hodgkins follicular lymphoma stage 4. That was after surgery in 04 and then did 22 radiation treatments to the left cheek and neck. then was in remission for 41/2 years and it came back on the…

Head and Neck Cancer

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