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Head and Neck Cancer

Archives for September 2010

Dennis318 Wondering how you are?
I was out of the loop for a bit and haven't seen you post while I've been poking around here. Thinking about you. Gimme a shout out.
Trache - Questions
My husband's recovery is going well. He's 9 days out of surgery, had his post op doc appt today and the report was good. Doc wants to leave the trache in for at least another week.... he is pretty miserable with it. Doc said he still has some swelling and would remove it if we insisted, but duh, we aren't that stupid, we'd…
Colds causing enlarged lymph nodes 1 year post treatment
Hello, I have just reached my one year post treatment for nasophyarengeal carcinoma on September 3rd.I have had two favorable MRI,s with no disease found.Last week I had my third MRI which showed an enlarged lymph node in my neck.I was fighting a nasty headcold at the time.My oncologist has reasured my that it is probally…
1st Post PET Scan!
Hey Folks, Hope everyone is doing well! Indian summer seems to be kicking in here in WNY! :) I love the warm breezes. I am having my 1st post PET scan on Tuesday the 28th. Won't get the results till OCT 4th. So until then I appreciate any prayers you can send my way for a good result! BIG HUGS! :) Charles
reassurance and guideance needed: for aftercare
ok long story ...made alittle shorter. years ago ( way before cancer) a dentist broke off a file in one of my husbands teeth while performing a root canal. it is now infected...they have him on antibiotics. Options: 1. surgery to try and remove the file. 2. pull tooth. here's where I need help.... if the antibiotics clear…
Saliva Question
Hi Guys I know this topic comes up alot but I can not understand this part of the saliva. I am almost 2 months out of all the chemo and radiation treatments that means no more of that stuff. But my question is why now after month or so being done I have no saliva or little bit of it I mean during chemo and radiation…
Thick mucous
Does anyone have any other suggestions for very thick mucous. We are doing mucinex D maximum streghnth, saline nasal spray, and gingerale. Nothing seems to be helping much. David has 12 more rads and I'm afraid it will get worse before better. Any sugesstions would be greatly appreciated. He is also using soda and salt…
totally miserable at 8 weeks out
Has anyone used heat on their throat to relieve some swelling? We saw the excercises that Marine recommended and perform these each day. There is sometimes a clicking noise when he swallows and the ENT said the scope looked good nd it was a little internal swelling and again told "that's normal" The next ENT visit is 3…
Teeth, saliva and thyroid cancer
Hi All, I have been following your posts on teeth and find it eye opening. I have had thy ca 2 previous times with mets. Now having third relaspe. Onc told me that the salivary damage from the rads I received can't be prevented. She never mentioned long term problems such as teeth damage. I have had tons of issues since…
HPV and throat cancer
I would like some info on HPV causing throat cancer. My husband has been diagnosed with Stage IV tongue cancer. He is a non-smoker and has been since college days (he is 66 now). We have been married for 37 years. How long does this virus stay active? He has not had his cancer tested for HPV so we don't know if that is the…
Clinicla Trial ?
Just wondering if anyone else here enrolled in any clinical trials as far as H & N goes? I noticed that there were a few that also went to Universities for their treatment. Thanks Dave
pet scan report
Hi my favorite group. Just wanted to add that I did get thru the pet scan. Bummer, I thought you were kidding about being bolted down. Lived thru it. Went for the results today and at first it was not good news. The nurse informed me they found a large mass on the scan and I needed to undress and the dr was going to do an…
New Survivor here!
Hi community, I just wanted to drop a quick "hi". I was diagnoses with squamous cell carcinoma of the tongue 11 years ago, and I may be interviewed by the American Cancer society for one of their publications - I was the youngest male in the USA (at the time) diagnosed with that type. Anyway, I'm finally getting around to…
What is your Hobby?
While I was in treatment and long after I finished treatment I found keeping my mind busy was the best way to help me heal. As a kid I always loved models so I got into building model Rockets, Boats, and Air Planes. This is a picture of my P51 I crashed it twice and had to rebuild it each time, I found because my brain is…
Skull Based Tumors
Skull Based Tumors are very rare. Skull Based Chordoma and Chondrosarcoma are very far and few between. Is there anybody else diagnosed with one of these out there?
Insurance
Hey Guys, Anyone know of a "good" insurance company that will actually offer insurance to someone going through cancer treatment. I have insurance now through Cobra since I was laid off last year but it is coming to an end and I need to have something in place to pay for my clean PET scans for the next few years. As I am…
One month today
Hi all: Basketcase checking in! I'm home from the beach with my best friend. We had a great time and the weather was terrific. We got back this afternoon. It's been one month today since Charlie passed away. It is so hard being without him. All these well wishers telling me, "You'll get through this!" I know they mean well…
ACID Vs ALKALINE
While there is always argument over veracity of whether our body pH state (Acid/Alkaline) affects our health, this post is to find if anyone has tested themselves and also monitored change. I was told for many years I was very 'acidic' i.e my bodies pH was very low 5.0 to 6.0. Neutral is 7.0 so above 7.0 is Alkaline and…
Home From Surgery
Much to our surprise, Bob was released from the hospital today, only six days post-op. Originally told 7-10 day hospital stay but docs say he is doing so well, they kicked him out. He came home with a trache, feeding tube, donor site skin graft (gross), rebuild wrist area with skin from donor site (thigh), and of course…
Day #2 - Cisplatin & Rads
Boy was yesterday a long day! Had my first rad session yesterday at 10A and then infusion at 2:30. When we finally got sprung at 9:30P, the hospital was totally deserted. Feeling very tired today and am keeping ahead of nausea with the cocktail of drugs they sent home with me. Hopefully it will work to keep my stomach…
Baseline CAT Scan
Just a short note about the results of my baseline CAT Scan today. My ENT surgeon said that it was clean. She also scoped me and said everything looked like it had healed up fine. She told me to come back in a couple of months and we'd do our first PET Scan post-treatment. She said that KU Med liked to do their PET Scans…
For those of us with problems swallowing
I started my blog up on this site and posted a few recipes that I can actually swallow for any one that is interested. Just keep in mind that they are developed for my 'tastes' which is not much taste at all. Lol. Things still taste like salty wall paper paste to me. I also have two great kitchen tools that have made my…
cancer as a punishment I was told
hi all i hope all is well I just came from trying to go out to eat with some of my family members and the topic of my cancer of course comes up my aunt said she beleived that I did something wrong to make God give me cancer I was shocked and upset over this comment for I know this is not true she says it was a punishment…
sleep depivation
The dry mouth has been keeping me up all night and i start staring at the walls. I feel like i can't get good rest at all. I am getting tired but can't really sleep. It's a pain in the butt. Any suggestions? James
Picture of my dad
Hi guys, I just wanted to post so you could see the picture I took of my dad over the weekend. My mom and I think he looks pretty darn good for a 71 year old that just finished treatment 3 months ago. Kathy
Yet another anaesthetic!
Hi there The "lump" has grown by 50% over the last two weeks. So today the med team made a decision to operate and remove Lymph gland which they said is at L3 level(what is L3 LEVEL) This will be in monday and then back to Erbitux. This has happened so quickly. What should she "boost eat" these four day before surgery?…
Who else gets 'death support responses'?
I continue to find it amusing how people react when they find out you have cancer. I find that there are four distinct reactions: 1. The 'religous response': "Oh my god! Can I pray for you..." (I don't mind this.) 2. The 'curious response': "No way! Cancer? Really?! What kind? How did you find out? What are your…
Weight loss and fatigue
My husband finished 35 radiation treatments and 3 Cisplatin treatments almost three weeks ago for hypopharyngeal and BOT late Stage 3. He did very well with the treatments, very little nausea, maintained his weight, never lost the ability to eat and felt fairly well throughout the whole series of treatments. In the past…
teeth
Just a note. Had another follow-up with my Onco today. Asked her if she knew of anything that could be done with my disintegrating teeth. No. We thought an Oral Surgeon might know something my regular Dentist doesn't, but not likely. So, she thinks I should drive out to the U of Iowa, as they would know if anything, like…
Anti- Angiogenesis
Hi All, This is a quite remarkable approach to treating cancer. This video link is well worth a watch. Note we can all start this with diet. "Can we eat to starve Cancer ?", Dr. William Li http://www.ted.com/talks/lang/eng/william_li.html

Head and Neck Cancer

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