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Colorectal Cancer

Archives for March 2023

Rolles Surgery
Update: I have 5 lung nodules, very small. They showed up in Sept. One liting up with SUV 1.3. Indeterminate by SOC. Here in the USA it is watch and wait mode but don't want to chance it as I don't want to miss the surgery boat and feel I will miss it here. So, going to Germany for Rolles surgery to get them out of there…
Just Tuning In - Still Going ;)
Like a couple of others, I am not around here as much with the new format. I take a look now and again but not do sign in often. Anyway, still in drug trial and it is still working. No more major reductions in tumors, but basically they are all stable, with the tumors that are being monitored with slight reductions. Since…
Help with advice
Hello CSN! I was diagnosed recently with colon cancer. I was wondering if there are any survivors who had successful comfortable colon surgery and if there any surgeons that you worked with that you would recommend. I live in Pennsylvania. Thank you for your help!
A Brother's Heartfelt Plea: Seeking Guidance and Support for Metastatic Colon Cancer Journey
Dear CSN Community, I hope this message finds you well. I am reaching out to CSN community on behalf of my brother, who has been diagnosed with metastatic colon cancer. We are seeking advice or insights from those who have experienced a similar journey, either personally or through their loved ones. Patient Background:…
Six years
Although the reformat has rendered this forum a bit of a ghost town, I will fall back on an old pattern and note that yesterday was the sixth anniversary of my colectomy. At that time, with a major blockage, I had no idea if I would survive another day, no less another year. I figured if I could survive ten years, I would…
Doc says chemo not needed
I was diagnosed with Level 2 colon cancer. The tumor was large but was contained and had not spread outside my large colon. However, it was blocking more than 2/3 of my colon so I had a partial colectomy within two weeks. It was done via robotic laparoscopic surgery. They removed about a foot of my colon and 22 lymph…
colonoscopy
I have been cancer free for over 1 1/2 years from colorectal cancer I am due for my first colonoscopy since and I am looking for suggestions on how to stop the anxiety I am having for my upcoming test on May 24th. I just keep remembering the surgeon coming to me telling me I had rectal cancer. Thanks
Another cancer diagnosis
i have just been diagnosed with uterine cancer. I’ve had skin, colon and kidney cancer…..started in 2008. Have been Ned for 5 years. I’m trying so hard to be positive but this has really upset me. Hopefully in a few days I’ll get over the shock and be my optimistic self again. My doc says this is vey curable. I’ll be…
Brain surgery
Anybody had met to cerebellum removed by surgery? Wondering why some do radiation and why some surgery.
Life updates and wanted to hear how you are doing
Hello guys, This post doesnt mean that I am back. What keeps me away is the design. I hate it. I wanted to tell you how the last months went. It was probably more than a year ago that I posted last. More than 90min ago the day went on to 13th March. Yesterday would have been Papas 59th birthday. Let us start with the good…
Tumor Deposit pn1c and Perineural Invasion - stage IIIA
I post couple weeks ago about my Robotic Assisted Sigmoid Colon Resection surgery. Now the surgery report came back. It brought back more bad news. My primary tumor is PTis-1. Meaning maybe Tis or T1. However they found 1 tumor deposit and Perineural Invasion. I guess no one can explain how it happens. Now based on the…
Encouragement and checking in
Hi everyone I often read and rarely post, but I wanted to update and hopefully have some words of encouragement. I have stage 4 metastatic cancer KRAS mutated G12C, TMB Low, MSS. My cancer was caught early at stage 2 and two years later returned in my liver, I was NED for a few months and then returned in my right lung.…
Newly diagnosed - looking for help and support
I am a 52yo single female just diagnosed with probable stage 3 colon cancer (adenocarcinoma that started in appendix). I'm told it's rare and aggressive. I'm still in the process of testing to determine stage and scope (CT today and Colonoscopy Friday), but trying to line up resources because I know things will need to…
Xeloda and nausea, please help!
My husband, recently diagnosed with Stage IV colon cancer, has been put on the Xelox regimen with 1 oxipalatin infusion every three weeks (he has only had 1 so far and it was well tolerated) and 2000mg of Xeloda AM/1500mg PM 5 days on/2 days off. He is only on his 3rd week of the Xeloda and he is having terrible stomach…
Single mom in Dallas with Stage 4 Looking for Support & Friends
Hi All, My name is Shannon. I have stage 4 colon cancer metastasized to my liver. I'm a single mom of an amazing six-year-old boy. I had emergency colon tumor obstruction surgery at the end of December. Just completed chemo #12 with two more to go before I get another CT scan for liver surgery consideration. I look forward…
Good scan results followed by pains returning
Hello. Wondering if anyone has any experience of or insights.. My Dad has stage 4 Bowel and liver mets. Received good news last week at his first scan meeting since treatment started, oncologist said there is shrinkage of 30% or more (more so in the liver) however, for the last 3 weeks my Dad has had the usual pains back…
Fast growing colon cancer
I’m new new to this. Diagnosed with tumor 4 days ago. Malignancy 2 days ago and I have question no one will answer. I had colonoscopy less than 2 yrs ago that was clean, no polyps at all. Now I have malignant invasive tumor and polyps. Everything says wait 10 yrs between if colonoscopy is clear., so this to me is some very…
Hip and Knee pain 2 years after chemo
My dad is almost 2 years out from chemo (he finished on 5/25/2021) and he’s been having horrible hip and knee pain as soon as he puts any pressure on it. He still walks around but he’s in pain all the time. He was due for a follow up and so doc ordered PET and a bone scan, and I’m just a horrible mess of nerves. I know I’m…

Colorectal Cancer

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