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Colorectal Cancer

Archives for January 2022

Stage IV CRC with Mets to Liver and Lungs
Hi All, First, I’d like to thank you all for sharing your stories. I have been reading and learning from your experiences over the past 4 months. I’ve hesitated in sharing because it’s really not my story to share, but after getting permission from my husband to do so, here is our current reality. And I say “our” because…
mCRC complete response to second line treatment -- what to do next?
Hi all, First time poster here. It's great to see such a lively community here! I wish I found this earlier! Our family is a little lost on what we should do. Here's the history: ============ My father was diagnosed with Stage 3b colon cancer (in the sigmoid) a few years ago. He had surgery, 12 rounds of adjuvant chemo…
Hunger-like pains 5 months post resection, worried about recurrence
Hello, everyone. My ex was diagnosed with Stage 4 colon cancer in August, spread to lymph nodes and some tumor seeding in abdominal cavity. He had a colon resection, plus removal of a tumor beneath his navel, followed by 5 rounds of Folfox which he finished in November. His CT scan in late December was clean. They’re doing…
Stage IIA (T3,N0, M0) Sigmoid Resection - Should I do adjuvant chemotherapy?
I guess I have 2 risk factors for recurrence: 1) MMR Proficient. It may mean the tumor is more aggressive 2 ) Obstruction - Controversial on the definition: Two oncologists considered obstruction since regular size probe cannot go through in colonoscopy or sigmoidoscopy. But another two oncologists did not think so since I…
What may be my final update
Hello , So I just wanted to update everyone on my dad's situation which had gotten very bad at one point . After resisting for a week it finally got to the point were my dad was just continuing to go downhill and we brought in hospice . Like alot of people I was very fearful of this thinking hospice would just drug him up…
Stage IV sigmoid colon ca metastasis to the Liver
Good afternoon all. I was told this is the best forum to post on. I am a 45 year old mother of 3 beautiful children. I was incidentally diagnosed on December 26, 2021 with an 8cm mass to the sigmoid colon right by the top of the rectum. On CT scan they also see multiple masses on the Liver the largest measuring 5cm. Biopsy…
Ch-Ch-Changes
Its been too long since Ive checked in. I feel really guilty for not logging on sooner but; I had a baby which has changed everything in the most wonderful way. Also the new format is ugly and not user friendly so thats a less than inviting change. I see that Tueffels Dad is gone. So heartbreaking. I think she mentioned…
Clinical Trials for Colon Cancer
I have Stage 4 colon cancer, inoperable, with metastases to the lungs and liver (also inoperable). Diagnosed about 18 months ago. The lungs/liver are relatively stable. No new metastases since diagnosis. The tumor in my colon/pelvis is growing so I am changing drugs. Today, my oncologist called and told me that the drug…
How long to get to the "new normal" after everything is done?
hello everyone. I just registered this account so I could discuss things that others may have already been through as well as share my specific situation. My background: Found a 4 inch tumor (ended up being stage 3) at my very first colonoscopy late October 2020. I was 51 at the time. GI doc immediately set me up with a…
Signet ring cell stage IV colon cancer
Hi...new to group. Recently diagnosed and started chemo pills and have had 2 infusion treatments. Had a severe reaction and doctors are unsure if it is Shingles or a reaction to the medications? Very painful, but is now starting to clear up. Stopped all medications but am due to start chemo pills again today (holding off…
Folfox starts Thursday and CEA
So I start 6 rounds of Folfox on Thursday. PICC insertion Tuesday and bloodwork/consult Wednesday and chemo round 1 starts on Thursday. Haven’t had the “side effect” discussion yet but I have seen some discussions here. Any advice? Dr says my hair will get thinner but I won’t lose it - is that your experience? CEA is 65.2…
Bone metastasis
Hi everyone. My mom has stage IV bowel cancer. Spread to liver and now been found in bones. Unsure the extent of it. Any experience or NED?
And Jumping Into Another Study ... 7 Years To The Day I Got The Call
Last week I was told the study I was in was not working. Two days ago I spoke with my oncologist and we decided to go go back to FOLFOX to start, while keeping Stivarga in the wings if needed. Appointment scheduled for FOLFOX, but was told they would double check on studies. Got an email later on that a study was open.…
Hi, new here
I've recently been diagnosed with rectal cancer and begin radiation/oral chemo on Monday. Here to get educated and feedback and learn as much as I can from others. It appears I am still going to ultimately need surgery and an ostomy bag. Thanks for any feedback.
I am a survivor
I survived stage 3 colon cancer. It has been almost 5 years. I know that the answer is probably no but are there any programs in place to help cancer patients/survivors find affordable housing? I am currently renting a room. I am struggling because I have to pay for a storage unit since I do not have enough room for all of…
New Forum Format: Feedback for Administrators
As the blue box seems to indicate, the administrators are briefly open to users' feedback about the new format. Here is mine: The format is cluttered and confusing. The "features" are meaningless to me. I have disabled all notifications. The old format (pictured below,) functioned as a bulletin board that I could quickly…
New here-my mother diagnosed with stage 4 Colon cancer
Hi all, I am new to this network and seeking advise on next steps of therapy for my mother(60 years old) who was diagnosed with colon cancer back in September 2021. Unfortunately it has spread to the liver and since there are 8 liver mets and because of the locations the doctors think they are inoperable at this point.…
Stage 4 Signet Ring Cell Adenocarcinoma GI related
Hi everyone, New to the site. My wife was diagnosed with Stage 4 Signet ring cell adenocarcinoma recently. She did not have any mass inside her colon but the GI doctor who did her colonoscopy found a lesion near the area where the appendix is attached. They also found the same cancer cells in some fluid of the peritoneum.…
Drug Trial Did Not Work, Back To FOLFOX (any tips on Neuropathy?) and Maybe Stivarga
Trial drugs did not work, so out of the study. Not many options for me right now. We are considering circling back to FOLFOX since I have been off it over 6 years and it may slow things down for a bit, though not sure how long I can be on it. I had neuropathy the first time so could not have 12 sessions with the Oxil part.…
Things continue downhill is there any hope for natural anti cancer supplements ?
Hello , So my dad is continuing to struggle with confusion mood swings and memory problems as well as weakness . Sometimes he can hardly stand and sometimes he doesn't even seem to know who we are . Other times he seems to be able to walk better and seems to have less confusion the night time seems to be far worse . So dad…
Devastating update
Hello All, I don't write much here but periodically update here with all our optimistic approaches but now it feels like we may have reached close to the end. Here is my last post where we hoped he get liver surgery and the doctor was super optimistic that he can do it…

Colorectal Cancer

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