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Colorectal Cancer

Archives for January 2018

6 Years NED - Jan 31, 2018
I am once again so happy and greatful to reach my 6th year NED. I was a stage 3b signet cell. Now I get another year of NED. Yippie I remember how this forum helped me out so much as I went through the surgery/chemo/side effects/recovery/what's next time. I have noticed alot of new people joining (again sorry you are here)…
CEA level
Hi, my husband just had his sigmoid colon removed on Monday. His initial CEA level was .5 with the tumor that they removed. They also removed the lymph nodes around the area and the Dr. Said he didn’t see anything , however, the test do not come back until Friday . Can anyone share any knowledge on the probability that…
Support and Advice please! Scans this week too!
I need some support and knowledge please! I posted previously about my dh's CEA coming down during chemo with Folfox and Avastin. He started chemo 11/29 and his CEA was 100 on that day and then dropped to 41 a month later and now is 37. While I know that trending down is good, I expected a bigger drop this last one. So a…
Dealing with the Family
Been reading for a long time but first time poster. 57 years old 2 years ago stage3 crc surgery with 1 year Chemo. Let's just say local oncologist is a quack but only option at that time and Me to stupid to know better (trust Me I'm a Doctor). declared cured(never want to here that lie again). Two follow ups Two blood…
Just sharing my good news, 1 year of NED after stage IV
I just heard back from my last PET scan yesterday and I am now officially 1 year NED. WOO! I made it past my first hurdle! Like everyone on here, I think I've had all the chemo and surgery I care to have. For now I think I will just keep doing what I've been doing, and try to stay NED. For anyone else who is stage IV as…
MD Anderson
Thoughts/Opinions/Advice On MD Anderson .... Thank You
Stage IV Colon Cancer- 2nd Opinion
We are currently trying to get a second opinion and are having trouble with my Insurance (imagine that). I have BlueChoice in SC and they are saying that my second opinion has to be within my state. I have an appointment set up with MD Anderson for next month but need any advice as to how to deal with my insurance. We have…
Colon soothing medication? A little graphic...
When I was released from the hospital after I'd had sepsis in September the docotr there said he was going to give me a colon soothing prescription. They called the prescriptions in to my pharmacy. It turned out there wasn't one included. I'm having a lot of trouble lately and I'm wondering if anyone uses one or has used…
A bit anxious!
I'm feeling a bit anxious today. Tomorrow I meet with my oncology doctor, for the first time since my last treatment on November 8th, to go over my blood work. Her office told me that I would not have a CT Scan again for another 3 months, which I am uncomfortable with, as I have been on disability. If I go back to work and…
So far so Good
I just had a CT scan for my colon cancer - I am 18 months out of treatment. It was all clear and my CEA is still below 1. It has actually been that way since my surgery, before my chemotherapy. I had to change insurance when I lost my job in June, but I am really pleased with my new oncologist. As I mentioned before, I…
Stage 4, 30 mets on liver
My husband was diagnoised on Thanksgiving afternoon. No symptoms other than occassional constipation. His CEA after 3 treatments on FolFox & Avastain has gone from 375 to 170....which to us, sounds like good news. In 3 more treatments they will repeat scans. So far on the regime he has not had any ill effects. He is…
Mother
Hi Everyone, Ive been reading through many posts all day, but figured I’d start my own post. My mother has been diagnosed with cancer of the colon which has spread to the lymph nodes. It also has spread to her liver with tumors throughout the entire liver. We are told surgery is not an option. She will begin chemo right…
Recovering from liver resection
Got home Friday, after my Tues liver resection. The pain is definitely difficult. But it is comforting knowing that all the known cancer is out. Does anyone know how long the incision is very painful. I know the recovery period is 4 to 6 weeks. And that an incision through the diaphragm is especially painful. But there is…
Very Unusual Ileostomy Output
Everyone: I posted this as a response under a different topic earlier today and Tru recommended that I post it separate with another title to get more attention. Since I always do what women tell me to do, here it is... Yesterday afternoon I began feeling that tingle in my throat. Then I developed a headache (something I…
Exposed to flu?
Well my lovely son visited from Friday to Saturday night. He just texted me this morning that he and his roommates have the flu something fierce, with profuse vomiting and dizziness. I have definitely been exposed, so I'll call my Dr. In the morning to see if he'd like to treat me with Tamiflu preventatively. Anyone here…
Last two CT scans bad
My scan on November 30 showed quite a bit of increase in growth of what were "tiny" places in my liver. My CEA had started going up also and my Doctor was really flabbergasted. It's been rough since then. Outlook seemed terrible. I posted about having the Y90 treatment directly into my liver, have talked to the radiologist…
CEA increasing
Hi - I’m new to this board but appreciate the support. I was diagnosed in 2014 with IIIb rectal cancer. Did the standard chemo, chemo radiation and the resection with ilostomy since reversed. in 3016 then 2017 had mets to lung, both treated surgicallY. I had clean CT’s this past July and Oct, but have a steadily rising…
I’m new to this/Dad just diagnosed with stage 4 Colon cancer
Hi all, im new to this and looking for some support. My dad was diagnosed with stage 4 colon cancer 1 week before Christmas. Oncologist said he can not perform surgery and will try chemo to prolong his life. But there is no cure. my dad has not been able to start chemo yet because he needed to have a stent put in his heart…
colon cancer
I had my surgery Oct.2 for my cancer, there is still 1 piece left...anyways I went for my 4 hr chemo session yesterday, he told me my pet scan showed worse, so he doubled up the dose,wich I cant handle! I guess my count went from 20.3 to 3.30 any help? have him do a lighter dose or quit chemo altogether?
Results from PET/CT look great
I just got the results from my PET/CT Scan and it’s good news. No spread and only thickening of soft tissues in the presacral space, unchanged in size and decreased hypermetabolic activity. My Oncologist indicated I would not need another scan for a year. Not NED but PFS (progression free survival). And my Neuropathy is…
Advice Appreciated, Looking for similar cases
Hi all, I am new to this forum and looking for some guidance. I am 28 years old. I was diagnosed with stage IV colon cancer last year stemming from the genetic condition known as FAP (familial adenomatous polyposis). I've had a total colectomy and a partial resection of my right lung. I have completed one cycle of the…
Sleepless in Seat... Michigan
Here I am, at 2am, reading about nine reasons sleep is a priority. Ugh! https://health.clevelandclinic.org/2016/09/9-reasons-why-you-need-to-make-sleep-a-higher-priority/
Support & Love
http://www.bbc.com/news/av/uk-politics-42825111/ex-mp-tessa-jowell-gets-standing-ovation-after-cancer-speech At 00.47 she says, and I quote 'So many Cancer patients collaborate and support each other every day. They create that comminity of love and determination that they find each other every day' And that is what this…
Small bowel obstruction
Hey everyone. My mom has stage 4 colon cancer with mets to liver, lungs, peritoneum. For the past few days she has been having intermittent vomiting and diarrhea. CT scan showed obstruction in ileum due to mets in omentum. Has anyone had small bowel obstruction? They are treating it conservatively now but there's a high…
Radiologist offered hope, first I've heard in a while!
So I had my consult with a Radiologist regarding the radioembolization therapy. He spoke with me for almost an hour! He was way more positive than my oncologist has been since my bad scan results in November. So the radiologist really thinks he can either do an ablation of the places in my liver and the lone one in my lung…
Erbitux experience
can anyone share their experience with Erbitux? whas it successful? did you get a bad rash? was it worth it? any help is appreciated. Thanks.
Check your nearest YMCA
Hi All, I wanted to share some great informatrion for those that are post treatment and are looking to rebuild your strength. Through a friend of mine, I was introduced to a program, at my local YMCA, named "Live Strong". They are a non-profit organization, that works through grants awarded to them. Basically, if you are a…
What can be eaten after colon resection?
Hi as a follow up from my previous post, I would like to enquire about what foods are suitable to be eaten by my Father after colon resection. What should be avoided for the time being? Please help! Thank you very much and your help is very much appreciated!!
abita I think tomorrow is your surgery
I just wanted you to know I will be thinking about you! I am sure it will all go perfectly and you will be home recovering in no time! Good luck!!!
Platelets at 64
I am thinking since my platelets dropped from 84 to 64 in two weeks that I will be below 60 on the 2nd next treatmen. I have had a reaction the last two times from chemo.

Colorectal Cancer

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