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Colorectal Cancer

Archives for February 2015

My personal list of FOLFOX - 5FU side effects
I just thought I would make a list of all the side effects I remember from my Chemo (Radiation had a whole seperate list). Its quite impressive. It has always facsinated me how each of us differ in the side effects we experiece/have experienced. This is my list. SIDE EFFECTS FROM CHEMO From the top to the bottom…
Post op Pet scan
I am post op receiving chemo.Had 3 out of 21 lymph nodes come back positive.I have not had a pet scan and was wondering why.Seems most people were informed what stage and had a pet scan.
Some good news - still NED after all these years!
I just had my 8 year scans and checkups (well, about 6 weeks before my 8 year cancerversery) and all remains fine. NED and I remain best friends. Next scans in 1 1/2 years! For those who don't know me, I was diagnosed with Stage 4 metastatic appendix cancer (mucinous adenocarcinoma) in April, 2007. I completed treatment…
Other health issues
My brother has a kidney stone now. He has blood in the urine which concerns me since he is on Xarelto for blood clots. Geesh, how much more does this poor guy have to deal with? I take him back to urologist on Monday. I feel sad learning about Nana's passing. So many wonderful people on here and this dang disease gets…
newbie to board
Ray here. New to this board. i'm looking for folks who have, or have had, signet ring adenacarcinoma. I have it metastisized in my lungs. Been on chemo for over 3 years, but 5 FU it's beating it. CT scans every 3 months show growth of 1 - 2 mm each time. Have three this size and numerous to small to measure... or so they…
Clinical trial - Nintedanib
hello, I'm not new to the forum, but I do not post often. I have a question to any member with experience with the above clinical trial. My wife is about to embark on this new journey. She has been fighting the desease since 12/2009 (multiplsurge furies and chemo cocktails). She took tests yesterday and will be informed…
groin node
had one removed 4 months later cat scan shows another one above it go in and have it removed 3 weeks later get petscan approved finds a larger on above the one just removed maybe missed in cat scan or really fast growth going to have it removed this week and then i voulnteered for chemo round 2 any thoughts they keep going…
It has been a little over 3 months
Hi, It has been a little over 3 months since my husband passed away. I have had so much support that I am grateful for. I have went back to work and taking it one day at a time. My kids are 18 and 24 and we all taking it one day at a time. It is so hard. We had 26 years together. Happy Happy years! My husband mother is…
Eus results...From a new member
So i had a cea of 7.8, clear chest cat and andominal cat. The endoscopic ultrasound revealed tumor growth not fully entering into muscle lining. There were two lymph nodes that looked slightly inflamed. Next visit to oncologist. Was told stage 3. Recommended radiation first, then surgery, then chemo. Any thoughts?
Husband has Cancer
I've been away from the boards for several weeks and have not really gone though all the posts, but I've seen some devestating news while just logging on. Came here to let you know that my dear, wonderful husband has been diagnosed with kidney cancer. We were away on vacation and he starting peeing blood. Took him to…
NED, Erbitux, Fever
So I had my liver resection on 12/5 (40% of liver and gallbladder removed). After surgery my CEA has remained under 1.0! Yay! However, given my very fast recurrences in the past my onc wants to treat me with Erbitux (alone) for a year.I went into treatment 1 thinking this would be a breeze compared to FOLFIRIFOX (basically…
NED 5 Years & Counting
I wanted to share my good news for the benefit of the newly diagnosed and terrified out there. I remember how I felt when I -- in the middle of the night, unable to sleep from worry -- found this website and discovered that it was possible to fight and survive this dreadful disease, even starting from a Stage 4 diagnosis.…
It Is Official: Stage IIIC and FOLFOX Starting Soon
From what I was told last week, before report really reviewed, sounded like Satge III C and FOLFOX (like NED, another term I had not idea about a month ago). Meeting with Oconologist next week to start the next part of this off. Infusion vs pills and all the rest. I am a little over two weeks out from surgery, but seem to…
I Don't Think This Is What They Meant
First and foremost, greetings friends! It's been awhile since I posted here, but I've been lurking. Between lack of energy, a concussion, and a bad cold and fever, I've just not been feeling the social. But I think of you guys all the time :) I wanted to talk about diet for a minute...or specifically, a lack thereof. When…
Nanab passed away
Unfortunately, NanaB is no longer with us. It's sad. Rachel had such a presence. She was a fighter! Her imput on the board as well as our personal conversations will be greatly missed. i had hoped to meet her in person, but it didn't work out. It's so hard to digest. She will be greatly missed. Yolanda
Physical Therapy for Peripheral Neuropathy
Tomorrow I'm starting a course of Physical Therapy to try to mitigate the symptoms of Chemotherapy Induced Peripheral Neuropathy. I'm using the PT department of the hospital where I had my surgery and later treatment. While there is no cure for neuropathy, there is some hope that therapy can help persuade the nervous…
How were liver mets diagnosed?
Welcome to all the newbies. I've been a little busy lately. I started having pain in my right side. I went to the surgeon. She couldn't feel a problem but ordered a ct scan and bloodwork. She called today to say there was a spot in the liver she wants to biopsy. She couldn't tell what type of small mass. She said my cea…
Elderly father, 97 yrs old
I am the caregiver of my dad. He was diagnosed with Colon CA at age 94. He had surgery to remove the ascending and descending colon. It has been 3 yrs as of last Dec. My question is he now has CHF( congestive heart failure), S/P mild MI (slight heart attack), Anemia, Aortic Stenosis, Bifascicular Block (usually resulting…
How to avoid cough
I'd like to know what supplement or anything can be taken/drink to avoid cough, it seems Oxaliplatin gives my mother some, did you have cough with this or other drughs, how to avoid it, thanks
NanaB update
I know that Sue (truebrit) posted in the other thread, but didn't want any to miss this news. NanaB is in ICU and is giving it her all. She needs your love, prayers and good vibes. Please keep her and her family in your thoughts and prayers. Marie whol oves kitties
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
Cea continues to rise, pet/ct next and then?? Folfiri and avastin?
Since my husband's clear pet/ct on jan 2nd, his cea has been checked every three weeks and has gone from 2.5 to 8 and now 27 yesterday. So she's trying to get him in for a pet/ct ASAP and most likely starting folfiri and avastin next week. He hasn't done folfiri yet...hope he has good response like he did on folfox. I…
Maintenance therapy - What does it mean?
Hi everyone, here re I am again with questions My fiancee has stage IV colon cancer into the 5th year now. He has had more than ten surgeries (minimal-invasive and major) for the primary, liver Mets and lung mets As well as all normal chemo protocols and antibodies. Unfortunately, while being resectable, his mets always…
Thxmiker, Where Are You?
Have not seen your smiling face for a while. Hope you are feeling much better & that all is going well with your upcoming move. Luv Ya, Wolfen
Is this colon cancer?
In late October, I seemed to be developing some sort of stomach issue, as I would get nausea, and my stools got lighter, and sunk. The nausea soon went away. A month later, I developed insomnia. That insomnia was terrible. I literally didn't get any sleep at all some nights. Then, I got a form of it that wakes me up every…
Husbands stage 4 colon ca w/mets
It's been awhile since I've posted anything. My husbands cancer has had it's ups and downs and now as I write this he is in the dying process. He hasn't had any fold and just enough water to get meds down I called hospice in and the kit they send is just a cocktail of drugs to murder the patient (my opinion) I'm thankful…
Is this related to chemo?
I was dx stage 4 last fall, and am currently 7 rounds into a 12 round cycle of FOLFOX. A week or so ago, i noticed what I thought was a chemo related mouth sore - but it now seems to be bone spur/chip working it's way out. (I had a tooth extracted a coup,e of years ago in the same spot). I googled it and it's not uncommon…
Eat Ice Cream for Breakfast Day in honor of a little girl named Malia
Today I participated in Eat Ice Cream for Breakfast Day for a little girl named Malia who lost her battle with cancer. It was her birthday today. I bought ice cream and shared it with people in my office as well as made a donation to a kids' organization. I can't eat ice cream any more but I did enjoy a lovely frozen fruit…
Stage III (C2) Colon - Mom is suffering 5 Lymph Nodes
Mom was disgnosed with Stage III (C2). Report says 5 out of 8 Lymph nodes effected. Doctors performed surgery and removed main tumor (not sure of exact word) from large intestine. Later they sent the removed part of test and results came out as Stage III (C2) 5 lymph nodes effected. Now doctor suggested XELOX treatment.…
Just diagnosed...
Been reading this site posts for a week now and decided to join. I am in the swirl of having the eus toomorrow and getting staged and am terrified. Trying to stay even through this. I have a 16 year old daughter. I was told that after a hospital visit last month, which at the time they thought my appendix may have ruptured…

Colorectal Cancer

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