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Colorectal Cancer

Archives for February 2015

It's 3:30 AM
Yup, I'm sure many of you can relate. I'm awake too early, and have too much on my mind... I'm currently NED. Finally feeling recovered from my latest surgery (40% of liver removed this past December - along with three Mets). And I'm back to work full time, new bosses, crazy changes, etc. And I'm going in for CEA test and…
Miss Ellie is NED
Hi everyone, I just wanted to post our good news. We went to see the oncologist today and Mom was discharged from his care. It will be 5 years in March when she was diagnosed and he said she was cancer free! She will need to have blood work once a year and a colonoscopy every 5 years, but no more pet scans or office…
Some good news for a select few, with a rare "subset" of CRC
www.genomeweb.com/cancer/latest-orphan-status-entrectinib-crc-ignyta-continues-pursue-precision-rx-approach Don't think link works;for those few with TrkA-positive,TrkB-positive,TrkC-positive,ROS1-positive and ALK-positive CRC (and non-small cell lung cancer with these characteristics) Entrectinib was just granted…
New Port
I'm off in a couple of hours to get a port installed in my chest. Feeling a little nervous. Anticipating the next step I guess. Chemo starts in 3 days on Thursday. 5 hour infusion at the hospital and then a 46 hour pump. I'm hoping to go to work on the second day but don't relish carrying around a pump and having everyone…
blood clots
Anybody get superficial blood clots in legs from chemo? I have two they said apply heat and rest. Not a deep vein clot
If scans are clean, does the ONC decide to stop chemo?
After removal of a liver met a year ago, my mom has been on FOLFIRI until now. The scans since the surgery (thank heavens) been all clean, and now my mom is contemplating stopping chemo altogether. However, our ONC's position is that he would rather continue the chemo. We don't know what the best way to go is. On the one…
Opted out of doing the Treatment
My Dr said that Chemo could not get rid of the Cancer 100% at stage three that I was too advanced...T3N2 .. That the reattachment could be compromised by the chemo and it would postpone the surgery for 6 months. So after a lot of thought and consideration of all the facts... I am not going through with any treatment. The…
Happy Valentine's Day
To all of the sweethearts I've met in this forum. I wish the best for everyone and keep you all in my prayers! Yolanda
PhillieG
I believe sometime this month will be your 11 years since diagnosis. How are you doing.
Craig and nanab updates?
Marie, or anyone, have an update. I've seen Craig pop in with a quick post here and there but wondering if he's home ,etc? Nana still in Mexico?
Exercise with Neuropathy
Like many people who have been treated with Oxaliplatin, I have a pretty sturdy case of neuropathy affecting my feet. They're mostly numb and sore most of the time. It's not so bad that I can't get out of the house to do errands, but walking more than a short bit is pretty uncomfortable. I know I should get more exercise,…
stage 4 question
Any stage 4's out there that have been declared NED? I have multiples in lung and liver?
found new polyps
it has been 5 years since the diagnosis and treatment. I was good for the first 3 follow up colonoscopies. Then my husband passed away in Nov. 2012and to be honest, i just didn't care. Finally decided to get checked. They found 2 polyps and I'm just wondering, any body else have new polyps after . If so , what were the…
Terms - Abbriviations
I have noticed a new member has mentioned about getting to know what terms and abbreviations are here on the forum, so maybe a thread to help. Please add any that you can think of, that will help our newest members. The biggest and best to start the list. NED - No Evidence of Disease Oxi - Oxaliplatin platinum based chemo…
Feb 6th was diagnosed 5 years ago. Guess it"s my 5 year anniversary not NED
well, it's been five years since I've heard those words "You have cancer". And later the ones that said I'm leaving this earth soon, well they were wrong about leaving soon, I at least think five years was a heck of an extension in this world. Glad to be here still, glad to know you all, and life though getting harder…
Happy, Happy Birthday NanaB
Nana celebrates her birthday today (Feb 6th) at the Gerson Institute in Mexico. She will be home soon, and I know she will enjoy returning and feeling the love, here at the forum. Hugs to you, dear Nana. I hope we get to meet again this year. Sue - Trurbrit
getting on that roller coaster again Update!
It's 7 1/2 months post surgery to remove three tumors and what was supposed to be a temporary colostomy that became permanent. CEA was holding steady at 1.5 (3 two-month interval checks) and yesterday shot up to 2.1. Never a good sign for me. Trying to be positive, will check again in one month. Way too early for a PET…
another tumor removed question
had groin tumor remove four months ago now have a 10mm above the other one that was removed doc says wait 3 months and then will think about chemo again had follow up with surgin for the first one and told him to take out the new one wich he did and was cancer again (groin lymp node) going to see cancer doc on monday the…
First NED
Finally, today I got back the last result from my last test, the follow-up colonoscopy. The gastro doc had snipped one polyp and today I got the word that it's benign so officially NED as of today, just more than 1 year following my colectomy and resection. I think there will be wine with dinner tonight. This does NOT mean…
CEA rising, but CT and PET clear
Hi dear all, My husband's CEA was 4.6 on 11/17/2014 after the big surgery on 10/29/2014; Then CEA became 13.1 on 1/21/2015 with a clear CT scan; we were concerned about the CEA, so oncologist ordered a PET scan, today we got the PET scan result, nothing showed up. And today's CEA is 15.4. Oncologist basically says if CEA…
Another New Member
Not even sure what to ask or say. This is happening very quickly, just diagnosed out of the blue. Surgery coming up shortly, the whole thing will be less than 6 weeks. Right now just concerned about the surgery and recovery time, with finders crossed that it is not too far.
New Member with Colon Cancer
I was recently diagnosed with stage IIIB colorectal cancer. My surgery went well. My folfox6 treatments are to begin in a couple of weeks: 12 two day infusions over six months. Right now, I am trying to find some supplemental insurance as I only have Medicare at the time being, but I'm 49 so it looks like I'm out of luck.
blood pressure
Has anyone experienced high blood pressure through these chemo treatments? I have been on blood pressure meds for years and its always been controlled but now its over the roof. My oncologist doesn't seem concerened but its not his body . I'm worried. This morning 161/101 I think for being on 75 mg of atenolol for pressure…
ACS Road to Recovery
I love this board and found great comfort and advice from it when I was first diagnosed. However, I no longer feel comfortable discussing my own experiences with newly-diagnosed patients since treatment has changed so much in the past five years - and that's a good thing. As a survivor I wanted to give back in some way but…
Five years and still here!
Originally diagnosed on Feb 3rd, 2010 during a colonoscopy. Stage IIIC rectal cancer diagnosis after surgery with follow up chemo and radiation. I am now stage IV following a successful surgery on one lung met nodule in 2012. I did not think I would make it this long (and my surgeon was very pessimistic after the initial…
it's back in two months after TACE and MWA to liver mets
About two months ago I had TACE followed by microwave ablation to three mets' Post treatment scan in few days of tace and next day of ablation showed good response and they got it all as per the docs at that time. However, rising markers after the first month or so led to a pet-ct in 6 weeks of previous treatment and the…
pain in jaws after chemo
I get 5FU and oxaliplatin I get the finger and toe pain but also get similar pain shoot up the sides of my jaws when I put anything hot or cold in my mouth. It usually is only the first 2 or 3 bites of food. I mentioned to my oncologist but he doesn't seem to have heard of it before. Has anyone had this problem?
The logic and brains of a toddler
My husband is feeling really bad for not being the same dad for the three year old that he was for the two teens, he was talking to him today and saying how he's sorry that he won't be able to run and play ball with him like the other dads do. little guy hugs him and says, it's okay dad..you just throw the ball and I will…
Pictures to share
At my last appointment I thought I would get my picture taken with myDr's. The smile on my face says it all. NED. Dr. Singh is my Oncologist and Dr. Kos is my Radiation Oncologist. Highly recommended by me. A friend told me that it was odd to ask for a picture with your Doctor. I guess I'm odd . No real surprise there.…
Avastin and muscle pain?
Have any of you experienced muscle pain while on Avastin? I'm not sure if it's related, but it's currently the only drug I'm taking while NED. I've had pain in my left shoulder (rotator cuff) for about 4 months and now pain in my neck for the past 2. it seems to get better when it's almost time for my three week IV push,…

Colorectal Cancer

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