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No chemo due to malnourishment?? ANYONE?
Hi everyone, haven't been on here in quite a while. As a lot of you know, my husband Jason was diagnosed with Stage 4 colon cancer w/ mets to the liver, as well as other abdominal areas on Janurary 29, 2013. Without going into a lot of details, I'll just ask the question I really need answered & not go into all thats gone…
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CEA questions
I see my chemo doctor tomorrow morning and I have some questions for her. One is what my CEA level is. I've never been told what it is. And what am I looking for as far as those levels go? What's good and what's bad? Is it possible to have zero? If I have zero is there any point in doing the mop up chemo? I tried looking…
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Anyone in Stage 4 on maintenance or Chemo?
Hello, Hope everyone is wel. Anyone in stage 4 on chemo or maintenance chemo? Was on maintenance and now i'm going back on the regular chemo again cause my cea went up on maintenance chemo. Anyone taking celebrix with xoada pills. I'm dreading going back on the regular chemo, but at least i hope it will bring my number…
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Warning...negative ranting post
I just hate hate hate cancer and wanted to let out some of the anger. Like many of you, I go through my days with a smile and try to keep life normal and when people say how are things, I say fine. But they aren't fine. My oldest is a senior in hs and while others are choosing colleges she resigned to the fact that she's…
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hello
hello i just wanted to come by and say hello to all of you .its been a long time that i havent been on here .i got up today and something was telling me to come on here today . i see theres a lot of new people .
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Ultrasound Adbomen Rt Upper Quadrant - Pancreatitis
I had stage 2 colon cancer with a high risk for reoccurrence diagnosed in October of 2010, Chemo ended in May of 2011. The last three or four chemo treatments I started having a deep pain in my right side under the rib cage that radiates to my back. It was finally found to be pancreatitis. Since then I have had this same…
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Condolences to Varmint 5 on the passing of her beautiful daughter
Anyone hear from Sandy or know how her daughter is doing? Sandy, if you see this, I hope you have a good update for us.
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Stage 4
Hello all, Haven't been on here in a while, but i'm stilla around. Diagnosed in 2010 with stage 1 rectal cancer, now i stage 4 keeps coming back. The beginning of this year they found spots on my lungs so i decided to go back on the chemo for 4 months the oxi and those other drugs i can't think of the one that gives you…
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Cancer Vaccine
Interesting. http://breakthroughs.cityofhope.org/cancer-vaccine
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The loss of another friend
While it has been some time since he posted here, some of you will remember our favorite member from Barcelona, Spain - Pepebcn. He has passed away. He was 56. He was a wonderful friend to many on this board. May he rest in peace and may wonderful memories help his family to endure his loss. Love you Pepe. Marie who loves…
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New site to find latest trials/therapy based on molecular characteristics of your cancer
Can't vouch for this but just came across it and maybe someone will benefit www.molecularmatch.com/
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New Colon Cancer test available tomorrow
Hi all, I had posted about this a couple of months ago, but it looks like it's going to be available tomorrow! My hope is that this test will save the lives of our friends and family as well as millions of others that can't or won't get a colonoscopy (like Rick's sisters...). FDA approves first non-invasive DNA screening…
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Off topic - I'm back in the U.S.A. And celebrating 30years of marriage
I arrived in Reno late last night After a long haul trip from England. You would have been pleased seeing me, stage IV patient, running full tilt through San Francisco airport hoping to catch my internal flight. I would have put a teenager to shame. Today hubby and I spent shopping, and tonight we are going out to eat to…
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Some set backs from surgery today
For my husband. It's day 3 post op today from liver resection. He wasn't answering any calls or texts and the nurse called he was vomiting, having trouble breathing, and they thought he had a blood clot in his very swollen arm. So I got my kids settled went down to the hospital. He was a tiny bit better, but the belching…
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Blood clots and chemo questions
So I had my second Folfox treatment on Monday. I'm having the cold sensitivity worse than after the first treatment and they say it will likely get worse. I'm wondering how often this is irreversible? I've read that it can be and it's making life difficult and I'm scared it will continue. Next question is about blood…
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9 years and counting
Today officially marks 9 years since I was diagnosed stage IV. I am going to buy a big steak for us to cook on the grill to celebrate making it 9 years but first a long mountain bike ride followed by a long motorcycle ride.
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My new Avatar with my grandbaby Aiden
I decided to put up a new silly avatar. I was at a Communion party and there were no healthy desserts and my grandbaby started to cry because everyone else was eating cookies so I gave him a cookie just at the moment my cousin took a picture (which I knew would end up on Facebook). It was my "grandma got caught" face. His…
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It's time for an update
Dear all, It's been an extremely rough year for us. My husband's cancer came back at the end of 2013, in pelvic where they took the rectum out. He had 8 folfiri+ erbitux and 28 rounds of radiation with oral 5-fu, hoping all these treatments would shrink the tumor and save his bladder. unfortunately, the tumor really hasn't…
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Red flush face and chest after chemo
I've been on chemo every other week since March of this year and today (just got my pump off) my wife is concerned about what started as red under my eyes like a sunburn which then moved to my face and chest. I read online that some people have a similar reaction to some chemo drugs or steroids. Anyone experience this?…
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Miracles happen...
http://7online.com/family/surprise-woman-learns-of-pregnancy-while-in-labor/361532/ Husband has stage 4 colorectal cancer and didn't think they could get pregnant. Just a little bit of hope...
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Interesting article:
Tho this article has to do with breast cancer, i believe the same applies to colon cancer. Its a brief explanation of why cancer is so difficult to combat www.newswise.com/articles/view/624915/?sc=sphn
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My husband is in surgery right now
i have not posted in while, this summer was a wild roller coaster. I will condense rising CEA (15) and spots on the liver we were told last year were fatty focal sparing prompted a pet scan. The liver had 3 spots, but a biopsy was negative for cancer. We met with the liver surgeon anyway and he said any spots that appear…
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Our little greyhound pupply
Off topic but wanted to post to my friends here. As most of you know I am a real animal lover. Yesturday I was cleaning upstairs in the house and Angel (My avatar) and our other 2 dogs were downstairs. Once in a while I would come down to check on them. On my way back downstairs I heard a death scream out of her. I ran to…
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Off topic....a tribute to my mom
Hi everyone. I haven't been around much. My mom spent her last three months in the hospital. She passed about a Month ago. My husband returned to work on June 30th, after a 9 month medical leave and my mom went in the hospital on July 1. My mom is the poster child for not giving up..and not always believing statistics. She…
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Stage 4 survivors for 5+ yrs
Just got this email about the upcoming summit in dc. They are looking for stage 4 survivors. I know we have a few here! http://conquercrc.org/summit_info.html
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Winter marie
Just wandering how you are doing?
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Update from Nana b
Nana b asked that you all be updated. She went for her second chemoembolization at Stanford yesterday. Here is her update: In a bit of pain but team thinks successful, as the first one was (which I just found out).going home around noon. Should be bed/couch ridden for 7-10 days. Slowly getting strength. I haven't told CSN,…
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Any Stage 4 Colon cancer Survivors here :((
Any Stage 4 Colon cancer Survivors here? my Husband was recently diganosed Stage 4 colon cancer which mets to his liver, hes only 24 and we just got married august this year, the doctor wants him to have the chemotherapy first before doing the surgery, they want to shrink first the tumor, im really worried today because…
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For those who have been NED for a long time. What did you change?
Did you exercise? Diet better? Change nothing? I'm curious.
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Weird and bad side effects folfiri and panitumumab
Hi everyone, after many recurrences in lung, liver and lymph nodes, a total of 14 surgeries (major and small ones) and pretty much all chemo combos, my boyfriend has been put on folfiri and panitumumab. This chemo worked best on him but he only got it prior to his first major surgery 5 years ago for half a year. The…