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Colorectal Cancer

Archives for October 2014

this sound weird
has any one seen triple numbers months ago i woke up in the middle of the night i usaly sleep throught the night and the clock displayed 444 i could not go back to sleep the 444 was in my brain first i thought lottry numbers and then i thought april 4th 2014 nothing made any sense to me but i could not let it go i thought…
Pro/cons of colostomy bag?
Not new to CSN but joining but the wonderful people on the colonrectal board! History Diagnosed with Endometrial Adenocarcinoma (Uterine Cancer) Stage 3A, Grade-2 December/2009 Hysterectomy,Chemo- Taxol/Caroplatin and 26 treatments of radiation and 2 internal Brachy therapy Started Chemo March/ 2011 & Radiation…
Fighting the Dragon
I have been lurking on the CSN for a couple of months. I add a few comments here and there. A lot of times I feel good advice had been given, and I had nothing to add. My health has been declining for several months and I was getting down on myself. That is the worst when we beat ourselves up! I have been getting Chemo,…
body hurt
just wondered if anyone else had body pain stopped chemo oct 2nd lately my knees hips legs hurt big time i worked in construction during my chemo got tired but didn't hurt like i do now taking pain pills feel better but i don't want to take them all the time
Frustrated...
I took my brother to the oncologist on Thursday. They want him to take a break for a few weeks to give his heart a chance to become adjusted to the digoxin. In 4 weeks they will figure out if his heart can take anymore chemo. They were considering putting him on irinotecan, but it can cause diarreah and he already has…
Superficial blood clot
I went to my chemo oncologist yesterday and it turns out I have a superficial blood clot. She said it's not uncommon when we're on chemo but I don't remember reading about it on here and I've looked at a lot of old posts. Maybe I've forgotten, god knows my memory is bad enough. Has anybody else had this? If so, what gave…
Drinking wine, is it okay?
I almost never drink. But, I went to friend's on the weekend and she had the most delicious moscato and I had two glasses. It's a sweet, white slightly sparkling wine. I had the best sleep that night. I'd love to get a bottle and have a small glass a bit before bed at night. I'm on the folfox5 right now and I see my…
Small bowel obstruction...
Well, cycle 2 has been postponed for a week as I was released today after a week in the hospital for an obstruction in my small bowel. I haven't endured pain like that since I had my son! Apparently adhesions from the surgery caused the small intestine to kink and everything backed up from there. Hopefully this won't…
Out of Africa
My husband and I just got back from safari in Africa. We visited South Africa, Zambia, Zimbabwe and Botswana. Amazing amazing trip. The people we met, the animals we saw, the food we ate...all incredible. Such an experience. We were celebrating our 40th anniversary and my big milestone...5 years NED POST treatment!!! I was…
Scary update on hip surgery
Well I've been in so much pain and I'm thinking that resection was easier pain because you didn't have to exercise. Monday night about 3:15 a.m. I woke up to a pounding so hard in my ears of my heartbeat and it was going so fast and I waited a moment but it did't get any better so I woke my husband and asked him to get the…
NED for now, no more chemo woo hoo!
Saw my docs today and they all agree no adjuvant chemo after my liver resection! Whew! Folfox kicked my butt and didn't really slow down my cancer and the alternative folfiri with and without avastin has not shown itself to be effective. Sooo I'm 35-50% chance of being cured right now. If something returns they'll probably…
Biomat
Hello everybody!!! Has any of you used the Amethyst Biomat..... contains both amethyst and tourmaline stones, my acupuncturist says it is very good, that helps with neuropathy, circulation, achieving a good night sleep etc. It is expensive so I wanted to know if any of you had used it and or will recommend it before I make…
Updating with a happy dance
I met with my oncologist today. I am officially NED and chemo is finished. I did 10 of the 12 Folfox scheduled. His take was i have reached my peak toxicity level. He doesn't think there is a benefit in continuing the Folfox. The job now is to heal from the side effects. I'm so grateful for all the prayers, love and…
Post-Surgery GI Issues After Ascending Colon, Cecal Valve, Partial Terminal Ileum Removal
Hello, I am posting this information to help out others and hopefully start a dialogue on what works to control SIBO, GERD, and such that occurs after surgery. I had stage 2 appendix cancer that was first diagnosed as cecum (appendix was swollen and the large tumor was in the cecum). Ascending colon, appendix, valve, and…
Cecum tumour
Hi All, I am writing from Ireland because I can't find a descent board for this topic with a .ie on it :-) hopefully I can find some help, support and answers from you guys even if we are across the water. my mam (aged53) has been diagnosed with colon cancer in the caecum. It's a moderately large Tumour according to the…
Adamray
I just stumbled across Adamray's post here, on a Dendritic Cell Therapy thread. To follow up, Adam was diagnosed with stage 4 stomach/esophageal cancer in July 2013. Esophageal and stomach cancers are more grim than most CRC, e.g. I had an uncle dx'd with esophageal cancer several years ago, lasted 3-4 months with minor…
Modern medicine & cancer. 24 hrs.
http://m.youtube.com/watch?feature=youtu.be&v=Rc1rtIxvkao One episode each night for 11 days http://thetruthaboutcancer.com/live/episode1.php
Old posts - Fond memories & Shocking reality
i see an old post has been resurrected and the first three names are friends who have passed (and no doubt more, as some of the faces I didn't recognize). I smiled seeing their faces and reading their (and in ****'s case, Kathleen's) words. but it is indeed bitter sweet, knowing that we too may pass the baton one day,…
happy day
had my 12th treatment 2 weeks ago had ct scan yesterday results said no active disease no mestastatic disease think i'm going on a maintenance program. just had to let you know, pretty much i'm telling everyone i know and some i don't
Hip Surgery Outcome
Thank you Winter for starting a new post. Actually the surgery went very well. It started at 10:00 and got done about 11:30. The hospital was so full they did't have a room for me so therefore, no computer or internet. By the time the room was ready it ws so late and being tired was "an understatment". This morning the…
Annabelle(Kim)
Wondering how your surgery went, hoping to hear from you very soon. We're thinking about you. Winter Marie
For what its worth,FDA just approved Akynzeo to treat nausea/vomiting due to chemo.......
www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm418375.htm and then there's this: www.sys-con.com/node/3207941 and this: http://medicalxpress.com/print332051357.html
CEA Results......
Well I am happy to report CEA is 1.1. It has remained very low in my almost 3 years NED. I am truely truely blessed and so grateful. As a stage 3b signet cell I constantly think something will go wrong. That's what cancer has done as I am sure with everyone else. I know alot of people in our virtual family are going…
cemo
Here I sit here in the chemo chair getting my e bureaux I will see the Dr. After this I hope he is going to get another scan to see if this crap, is shrinking. My chemo takes about 3hrs. To drip into me, how long does any of yall take. This is my 5th. Treatment.
To chemo or not to chemo that is the question
Hey all, So I'm 3 weeks out from a successful resection of my liver met and I'm seeing the docs Wednesday. The main topic will be to start adjuvant chemo or not. The idea is to 'mop up' anything that might be left but some studies suggest it's of no benefit. Any thoughts? I'd love to skip any chemo but I'll do everything I…
Greenwald Family
First thing you might want to convince your husband it's time for a new Oncologist. I was diagnosed Stage IV terminal non-operable over 4 1/2 years ago, had an operation the first year which they took out the tumor in my colon, my ureter and the ones in my liver all in the same day, giving me a chance at a longer life, my…
dead man not walking
Well been quit a while since I posted. I've just been overwhelmed by all the side effects, I have been unlucky enough to endure these many years. I don't have a laptop so since I spend most of my life sitting on a toilet, it's a little difficult to get to my computer. The doctors have tried everything they know but nothing…
Surgery Tomorrow Morning
I'm to be at the hospital at 8:00 a.m. so I'm thinking that surgery will be about 10:30 - 11:00. They said they would have me sitting in a chair that afternoon so hopefull I'll be able to get on my computer and let you know that everything went well. Of course today on the web there was an article about problems with…
35 months... Update added
Husband had his CT 35 month after Stage 4 Diagnosis (then mets to liver) today... seems to be all clear - detail appointment with onc next monday but for the moment... breaaaaaaaaaaaaaath!!!! Seems still to be NED... UPDATE 20.10.14: Appointment was delayed - finally had our onc-talk today. They found nothing to worry…
rectal stents
I need to know if anyone has this, Mine was placed in August and is causing problems which very likely cause death, Was Winneypooh but forgot password so i am now againstallodds, 6 years and cancer contained doing well but rectal stent is trying to kill me

Colorectal Cancer

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