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Colorectal Cancer

Archives for September 2013

Bi-annual scan results.......
I got an "all clear" on the abdominal and chest CT's today. All other tests have been clear also. I am 1.5 years NED. Yeah! I am making my new-normal. My best to everyone. This fight never ends.
Colorectal secondary sacrum tumor
Hi There, I have been gathering some good information on these boards and can see that there is a good community here, thanks for having me! My back story- as brief as can be - is that my father had a stage 3/4 low down colorectal mucinous tumour 4.5 years ago. He had his max amount of radiation therapy before have a…
CT Tomorrow morning & losing insurance!
CT tomorrow morning at 9am. Will I ever not live in fear???? So tired of this, every little pain to me is cancer. I guess I will see. Life is up in the air for me. My husband lost his job Friday, so my insurance will be ending December 31st. I hope he can find another job. We will have to move, house is going up for sale…
signing on for the first time
Hi everyone ... I am Julie, Cammie88 (Christie's) mom. I have decided to introduce myself and thank all of you for caring for my daughter. I think Christie has told you that we are going to the Oncologist for the first time tomorrow. We will probably post after we get home. I want all of you to know that I will beat this…
Bad night, bad day!
As you all know I'm waiting for my full resection surgery in about two week. Everything was going well, I stopped Xeloda last Monday. I was fasting like 16 hours for a liver ultrasound which really weakend me. I was eating good after that, but suddenly my stool turned very pail then became a watery diarrhea all night long…
"It's Official Now" - We're Published and on the World Wide Web Today
"You Like Him - You Love Him - You Want Some More of Him!" The big day has finally arrived!!! That's right! Today, we are officially published in a major magazine publication. It's been a long time coming and I never thought I'd ever see any of my work in print. So, this is truly a day that I feel blessed and fortunate to…
Ankle swelling
Any advice on keeping swelling down in ankles. This just started for George he is on Irinotecan, and Xeloda every 3 weeks. He had it for about 3 days but gets his next infusion on Monday. Dr. Already had him do ultra sound just too be sure no blood clot.
Thinking of Craig....Group hug at 10 pm EST
Craig...I know you haven't been feeling well and no response is necessary but I know I'm not the only one thinking of you and looking forward to when you are up to posting regularly again. Anyone want to join me in 2 hrs..10 pm est for a moment of positive thoughts..prayer ..or whatever you are comfortable with, for Craig?…
chris beat cancer mistletoe
has anyone been on the website chris beat cancer , just went on it and tells more about mistletoe and ivelisse a stage 4 cancer survior. i found it quite interesting
Toxicity of Folfox for family
I am so confused and everyone seems to have a different answer. I had asked my oncologist about taking precautions with the bathroom at home during chemo pump infusions. She said don't worry that isn't the type of chemo you are going to be on. My first chemo was two weeks ago and the infusion nurse said it was alright to…
I had my port removed
Yesterday I had my port removed. I had been really apprehensive about the procedure, knowing that it was going to be done under local anesthetic and having a fear of needles. I had to work on not worrying about it, as worry doesn't change what is going to happen. I can happily report that it was not at all painful. I even…
Good news from Germany / still NED / update
Hi friends, Thorsten had his surgery on Sep 17th after there was a suspect area found on his latest CT. The plan was diagnostic laparascopy and PIPAC (->ask google) if neccessary. Well.. the result... they had to remove several "Verwachsungen" (scar tissue? don't know the english word...Kathi please help) and took some…
Rick Simpson Canibis Oil in Small batches. Medical Card needed. Must say that
http://youtu.be/0sGWxz0DMSI Not too much work, but still takes a good $ sum of MEDICAL MJ
post op Not good news
Went today and got my staples out and I feel a little better. But the new was not so good. They did not get all the cancer, There is a very small spot that they can't get to. It is on the duct of the liver. They got as close as they could . So now I have to do a few round of radation and then chemo. I never did radation…
Xeloda Pill and other Medication Disposal
Hi, I have 42 Xelodas which will expire on Dec 10 that I have no use for. Does anyone know how to safely dispose of this stuff aside from driving it to the nearest drop off which isn't so near? Maybe the hospital would dispose of them for me? One day when I'm home I'll remember to call them to ask. I have so many bottles…
Chemo / Rad after Surgery
Hello Friends, I am about to start my Radiation treatment nearly after 2 months of my Rectal surgery. I will have to go through 28 Treatment fractions & will be on Xeloda throughout the treatment, then more Chemo (Capox - 8 cycles) Would like to know from friends who had undergone this treatment, about the side effects &…
No Liver Lesions!
As you all know my CT on Moday showed a questionable small spot. We followed up with a liver ultrasound and it shows all clear. What a relief!!! So now we "just" have to cut this sucker out, get some more chemo and we should be good. Not crazy about losing my Sphincter and the permanent colostomy, but at least nobody can…
WHO SHOULD LEAD THE TREATMENT?
Being relatively new to this, but I start to see that, as many of the veterans said it here before, the surgeon has to lead the treatment as long as the surgery is an option. Chemo and maybe even radiation is only an adjuvant to removal of the cancer. Don't want to reduce the significance of these adjuvant therapies, but…
HOW DO YOU STAY POSITIVE AND HOPEFUL?
We all know that the cancer journey is a roller coaster ride. You have highs and lows, successes and defeats. In the middle of all this is hard to stay positive and hopeful and we all have to build a new reality. I'm wondering if you have any "technique", ritual, activity or a mental process to get you and keep you in a…
chemo is raising blood sugar level
Chemo seems to dramatically raise my mom's blood sugar level. Example: right before the chemo her blood sugar level was 70, and right after the chemo, it had shot up to 130! Is this a common phenomenon? This is frustrating, because we've been trying to keep her blood sugar level low, as there is a theory that cancer cells…
Laz' Update
So I got the report of the MRI and the chest/liver CT. Unfortunatelly my rectal cancer did not responded to the radiation and chemo at all. So I need full resection. Lymph nodes look ok. I decided to go with a surgen at Cedar Sinai in Los Angeles. He was very confident, warm, patient with us and the hospital has very good…
Lung nodules??
Just got back from onc's office. The 1yr from surgery showed small, 3 and 4 mm -lung nodules. She says we should wait for 6 months and rescan. Does that sound like a reasonable amount of time to wait. Would at PET scan give more definitive results? My cc is signet ring cell. I was 2a, but due to aggressiveness of signet…
Junkie girl or grumpy girl...not sure which is worse.
Sooo...here I am, going off my pain meds for the second time in two years. I really got nailed by the long-term side effects with the last chemo I did. Nasty joint and muscle pain that has been going on for over two years now. I took Vicodin during and for about six months after treatment, and then kicked the stuff with…
New testing for specific therapy
If any of you might remember 6 mo ago I had great results from my PET after starting Erbitux and resuming Irinotecan. All but one lesion showed no activity and that one was smaller and less active. After 3 more mo of the same weekly treatments I got the results my last week scan yesterday. Many new and reactivated lesions…
Got into my room (Update spoke with surgeon)
A couple of hours ago, they came took blood pressure, temp and left. Have'nt seen anyone since. Doing great when first woke up, was in great pain as the epidural wasn't in place they were sticking all kinds pain killers in IV. The anesthesiologist showed up and moved it annd INSTANT pain relief!!! But fell back to sleep…
Mom had her port removed
Hi everyone. Sorry I haven't posted in a while. Mom had her port removed on Monday and did well. It was scheduled for a week ago but they saw a problem with her EKG and wanted to compare it to an older one. It checked out and they went ahead with the surgery yesterday. It was just an out patient procedure. I think the…
Off Topic...Beau's new heart....
11 weeks ago, my beau was just out of transplant surgery. He is doing EXTREMELY well, and I catch myself glancing at him and realizing that without this surgery, I would be left only with a memory. HUGE thank you for the organ donor's family, for making the supreme sacrifice at their darkest moment of losing their young…
How cancer may cause stress
haha...a spinoff on Laz's post about stress causing cancer. I'm finding it's the opposite. The stress since my husbands diagnosis has taken its toll - strangely enough he seems to handle things better than the rest of us. I'm not sure how or why or if he's just pushing it deep inside, but he says he's not wasting 1 day…
Dangers of TACE
I had my fourth TACE treatment this month in Frankfurt and this really brought home the point of just serious this procedure is. It can kill you, and apparently it almost killed me. The first three were painful, and I had problems walking for several weeks afterwards, but generally there were no other chemo related side…
Regorafenib - info? stories? results?
Hi Friends, As I mentioned ****'s scan from 9/13/13 showed progression. Today we met with his local onc and he recommended Regorafenib and then looking for clinical trials. We are all interested in the study at Stanford which uses immune therapy. We are also meeting with Dr. Castro here in Hawaii on Thursday. He…

Colorectal Cancer

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