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Colorectal Cancer

Archives for September 2013

change of plan...too much radiation
well I finally woke up and realized that my scan on Wed was written for an ultrasound....not a CT.....last time I had ultrasound the radiologist rejected it and it scared the daylights out of me and I had to go ahead and do the ct anyway. Now my onc has decided to do an MRI and then in 6 months do a ct scan......thus…
Scan Tomorrow Morning
I'm having my scan tomorrow morning and asking for you to please pray, send good vibes, send out wishes for a normal scan. Like always, I'm so nervous. It just seems I'm always anxious when anything medical comes up. My doctor's appointment is next Wednesday. You are all always in my thoughts and prayers. Hugs! Kim
scan result not good...
My wife and I just received the results of her scan. She has had 11 rounds of folfox, which wasn't working. They then gave her 10 rounds of folfiri. The dr. just told us it was not working. In fact the tumors on her liver have actually gotten bigger. He also said seven lymph nodes look like cancer. She did not have her…
IV vitamin C, #500
My wife reached her 500th IV vitamin C infusion in September, most of them 60-75 grams each (yes, 60,000 - 75,000 mg). She's been as high as 90 grams. She's had almost 40 months of immunochemotherapy now, all while taking massive amounts of IV vitamin C, 1.5 to 7 times per week. She got IV vitamin C daily for 10-21 days…
Pepe
Hi! Just checknig in on you!
Joint aches ... is this common after chemo?
I was just wondering if anyone else suffers from horrible joint aches and bone pain after chemo. I thought it was the nulasta shot that was doing it. I do think it contributed. But, I am still suffering daily from this continued pain after treatments have ended. I also continue to have weak muscles and everything seems…
Judy (wawaju04976)
How are you feeling? Noticed you've been quiet lately. Are you feeling any better? Chelsea
Tedd - How are you feeling?
Hi Tedd. Haven't noticed any recent posts. How have things been going? Last thing I remember was that you were hoping to be discharged from hospital. The chemo seemed to be working. Hope all is well. Chelsea
RENW Your Surgery
Just wanted to wish you good luck, health and speedy recovery on your upcoming liver surgery! Winter Marie
Protein additive?
I remember reading a post a few months ago about a protein powder that is unflavored that can be added to soups, etc. I think it may have been JBG that mentioned it, but not sure and I have been searching through posts for 1/2 an hour now and can't find it. Anyone know what it is? I think it was little packets and I found…
Shocked about Stage IV diagnosis
Hi everyone. My mom is 66 yrs old, not overweight, with controlled hypertension and was just diagnosed with colon cancer with mets to the liver- 4 spots in scattered areas so can't be resected. Then only symptom she had was some blood in the stool and feelings of not completely emptying when using the bathroom. Based on…
hipec : stopgap chemo
My dad has had a reoccurrence in the peritoneum ( detected on september 5 ) which is 2 months after 1st line chemo ended.we have been given hipec appointment for 11th Oct. The medical oncologist says that stopgap chemo till 11th October will do more harm than good but I am very worried about going without any chemo till…
Surgery on the 8th.
Finally the day is set to remove my rectal cancer at the Cedars Sinai in Los Angeles. Will be a bit complicated, because they also have to remove a part of my tail bone and do a flap from my stomach to have a better closure. So there will be the main dsurgeon, a plastic surgeon and a spine surgeon. I will end up with a…
HERNIA
HI! TO ALL OF YOU ALMIGHTY WARRIORS. REALLY MISS TALKING TO YOU GUYS BUT I WORK AND AM VERY BUSY AND BY THE TIME I GET HOME I'M EXHAUSTED. BUT I DO HAVE A QUESTION FOR ALL OF YOU EXPERTS. I AM SCHEDULED TO HAVE AN ABDOMINAL HERNIA REPAIRED AND AN EXPLORATORY OF A POSSIBLE MET ON MY LIVER W/ABLATION. HAS ANYONE EVER HAD…
Is there anything I hate more than getting a scan?-UPDATED
No. Can’t think of much of anything I hate more… with the possible exception of waiting for scan results. But I can’t complain too much about the PET I had this morning, considering that the only reason that I get to have regular PET scans involves me throwing a kinda embarrassing tantrum, complete with words like "lawyer"…
fever and lung pain when breathing, as side effects of chemo
Dears, following the second Folfiri treatment (there were 6 Folfox sessions, but due to new mets in the liver, the chemo was switched from Folfox to Folfiri), my mom is having fever and pain in her lung when breathing. She hasn't had any fever until now. Nor has she had any issues with her lung. Has anyone had similar side…
guidance...help please
Hi Everyone, As I shared **** had a scan 10 days ago that showed growth in the lung mets and lymph nodes. We have been pursuing opinions and some opinions have come to us from contacts. His onc here in Hawaii still things Regorafenib is the way to go and scan in 6 weeks. Dr. Lenz at USC thinks he should go on Folfox +…
Surgery on hold for iv chemo
I am very confussed my husband is dx w/satge 3 crc he is also done w/oral xeloda and radiation and instead of going door surgery he is getting a porta cath and will do 6 mo iv chemo then be reevaluated for surgery , they are treating him like stage 4 and I am concerned that the scan that showed lung scarring could that be…
Pain relief
I'm sure at some point on this forum during my latest tumor growing in my colon I wrote about the emense amount of pain I was having. Here I am a week and a day post surgery and I can remember having the pain, but not about how bad it was. I am happy to say the surgery took the pain away, only get an occasional "stitch"…
High Blood Pressure
Just wondering if anyone has had blood pressure issues while receiving chemo? Pat's blood pressure has been all over the place lately and today his oncologist sent him to the ER to get checked out because it was so high. Last week he had 2 injections of Neupogen (Filgrastim) to stimulate the growth of white blood cells but…
Runny nose and teary eyes after saline?
Each time I got Folfox IV I got constant runny nose and constant teary eyes for a few days. I thought it was the side effect of one of the medicins. Since the last Folfox I only have my PICC line flushed once a week with a 100cc saline and after each flushing I get this runny nose and teary eyes for days. Feels like…
Not the results I was wanting
Well my friends it has been a very long emotional day for me. The scans show that the tumors in all areas, rectum, liver and lungs have grown and liver and lungs have got several new tumors. The chemo was having now effect so sadly after over four years of almost non stop treatment I'm going to contact hospice tomorrow. It…
RFA or REsection for recurrent liver met ?
Hi, posted this on colon club yesterday but did not get any response. I hope I do get some suggestion or someone can care to enlighten me and put things into perspective. After my surgery for the liver and colon mCRC last September I was NED till now and suddenly the cancer markers shot up this month from 3 to 15 (CEA) And…
Is Surgery Worth It?
What experienced members seem to be saying here that life extending surgery, even if it's partially successful, is worth it and the best way to go. Does this come from the traditional prestige and the physicality of surgery or it is really the best way of extending lif? What about the recovery and the side effects of…
"Personalized Cancer Treatment and the Myth of KRAS Wild-type Colon Tumors"
For those whose treatment is based upon Kras wild status, this article,by Barbara Parsons can be found at discoverymedicine.com from 4/26/13. In a recent post mention was made of Kras wild actually being mutant as one reason certain treatment(s) start to no longer work; this article is worth reading. (don't have direct…
Second opinions
People are often told that they aren't candidates for surgery; 2 months ago we reached a critical point, tumour causing blindness and more, our surgeon didn't want to even try, second opinion said just radiate for palliation, our original surgeon decided to try after pressure, alas he failed and caused severe memory loss…
Ileorectal Anastamosis
I am 50 years old and last month I went to the doctor because of cramps, vomiting and bleading. During the colonoscapy they found a large tumor and ulcerative colitis. It was decided I needed a total colectomy and, if all went well during the operation, I would have an ileorectal anastamosis. The surgery went very well.…
Fasting for chemo
I am starting folfiri and avastin next week. I have come across some research in fasting before chemo which indicates that it can help in reducing side effects and increase the effectiveness of the chemo. Does anyone here do this? If you do, what is prior schedule? Do you take the steroids on an empty stomach?
Irrinotecan and 5fu pump
Is there anyone who like me has had both these treatments. Eg hour and half infusion at clinic at then a take home cad for 48 hours. What I am wondering has anyone stopped taking home the 5fu pump and if so any adverse effects ?
Scared for onc appt today
The past couple of days I've been doing things to just keep my brain preoccupied. I get my ctscan results back and I'm at the end ofchemos that are available. I've been on one foe three months and this will be the first scan. I might be too pesstimetic but I have that bad feeling. I pray it's good and I can continue. I…

Colorectal Cancer

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