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Colorectal Cancer

Archives for April 2013

how many chemo cycles for xelox
my dad's aproching his 5th XELOX cycle and i wanted to find out how many cycles if typical for this treatment? I have read some articles about folfox mentioning that benifit of 8 vs 12 cycles has not been established. found no such studies for XELOX His PET CT a few weeks back did not show any disease and CEA was down to…
Therasphere next-brain mri clear again
Hello all: Have been busy with neutoponic fevers on and off all last week and then an episode of night sweats here and there between numerous nurse visits and finally urgent care to the er...feeling somewhat stronger. I needed augmenting for sinus pain but it wasn't an infection. Had a Ct last Fri., and brain MRI on Mon.,…
Stevarga
Hi, haven't been on here in a while. Just wondering if anyone has been on Stevarga? My husband has exhausted all chemo options and this is his last choice, side effects are bad - just wondering if anyone has any tricks or solutions for the side effects. Sandi
29 months and first hospital overnight
Well we've been chasing the beast for 29 months now and Monday morning Rog woke up in excruciating pain (first time very scary), and asked to go to the emergency room . In the emergency room they found that his magnesium was .8 and the pain was from inflammation and swelling in his colon. They decided to put him in the…
Chemo
To today I'm going off chemo. Thats iIt. Done. Not responding to xeloda. I have no vusable nets. Going for diry, exercise, and TCM and acupuncture. I had acupuncture last week and had Chinese herb tea persc Cribed. Chemo has me tired, I have purple hands and feet. Done
BLOOD CLOTS W/CHEMO ?
Hello All, I Havent posted here in a while but i pray all of you are doing well. Dad was dx with stage 4 CC in Jan. He started treatment in Feb and so far was going well...except his port was intaking but not withdrawing blood so it took lots of heprin and flushing to get it to start up. Well he started having pain in his…
**UPDATE: April 10th is last day: Interesting Read - last day for free eBook
Due to overwhelming response (and a crashed server) it's available until 6 pm EST tonight, April 10th Free eBook via E-Patient Dave. The third book by e-Patient Dave, cancer beater, blogger, internationally known keynote speaker and advocate for patient engagement; co-founder and past co-chair of the Society for…
Is the night time the right time for 5-FU?
Is 5-Fu given via a pump to take home for 46 hours done so because during the night time liver enzymes that detoxify the liver are more abundant than during the day thus making the 5-Fu less toxic?- never thought about this......
My new mantra
Decided this will be my new saying to live by: "I don't know how LONG I will live, but I do know HOW I will live" came up with that today while driving home from work after doing chemo in the morning. Tedd
Purple color on feet and toes underneath
My husband has Satge IV rectal cancer with mets to the live in 7 spots. Hes 29 yrs old and just finished his 3rd treatment of FOLFIRI on we have one more ot go b4 we do the scans in 3 weeks. But he has some purpleish color on the bottoms of his feet he has no pain what so ever just gets sore from wlaking all the time. Has…
New Here as well
Hi Everyone, I just wanted to drop in and say hello! I have been reading this board for a few months now and wanted to introduce myself. My name is Michelle and I am 27 years old (from Ontario, Canada). On Feb 7/2013 my mom was diagnosed with stage 4 colon cancer (spread to the liver). She is 56 years old, turning 57 in…
Pelvic pain after permanent colostomy surgery.
I am one year post op from a rectal resection with permanent colostomy and still dealing with pain when I sit. Gets pretty severe in the perineal area after a couple hours of driving. Anyone else having a problem? Suggestions?
Irrotecan
I'm having terrible fatigue with the Irrotecan and it takes me to a dark place where I just want to stop chemo. I know irrotecan is powerful but is it worth it if I am on chemo for life. Even my sweet husband is telling me that I'm just not me any more.
Postcard from Duderstadt Germany Goodnews CEA down to 2.9 ca199 down to 24 ITS SPRING AND ITS BEAUTI
Dear Friends, I really do miss your company, and do lurk occaisionally, but am enjoying to chance to focus on my health 100% my way free of debate and challenge and with full support of my many doctors and close friends who share my beleifs with regard to experimental holistic therapies. To me that means protecting my…
symptoms
Hi all, As of May 3rd, I am a one year breast cancer survivor. Yay! DONE forever... Having said that, I have an issue that I'm hoping isn't a symptom. I've had bowel habit changes for quite a few months and increasingly, but still intermittently flattened stools on one side. Is that something I should be concerned about? I…
PET SCAN
Hoping all with tests this week receive good news. Today, I had a PET scan because of increasing CEA and lower back pain. The tech forgot to give me two bottles todrink and only gave me one. This wasn't discovered until after the scan. I have only had one previous PET, 3 yrs ago, and didn't remember that there should be…
Scheduled appt w/specialist for signet ring
Hi everyone, I have scheduled an appointment with Dr Hanna at the University of Maryland to evaluate my case. he is one of the Signet Ring specialists. We were trying to decide between MD Anderson and Maryland ... The logistical nightmare of flying someone in to be with the kids (we have no family local)and then having to…
"XL-184 (Cabozantinib) goes 12-for-12 in colorectal cancer explants" and more on CRC fromAACR meetin
I'm sure moreinfo is already available http://medicalxpress.com/news/2013-04-xl-cabozantinib-for-colorectal-cancer.html and from the same conference http://medicalxpress.com/news/2013-04-biomarker-patients-autophagy-inhibitors.html…
Where did our hope go?
Hi Everyone, I have been quiet lately, it's just been tough times. Dennis started his Folfiri with Avastin and is feeling pretty good but I think the chemo is having a effects other than tireness and nausea. Within a week of starting chemo he has screamed at me several times, told me that I am vendictive and selfish and…
Blame the victim?
Just wondering/venting.....so it seems like our society is either take no blame for anything...or place the blame on the victim. I just found out that the doctor that delivered my last 2 babies has breast cancer. I called to schedule my overdue visit - I've been terrified of going to the doctors, in fear of anymore bad…
Best New York cancer centers?
For the past two months my mom has been seeing doctors at the NYU Langone Center. The hospital was recommended to her by way of a friend who has an oncologist friend, and this was the oncologist friend's recommendation. She really likes her doctors, they have a great bedside manner (I've witnessed that on visits with her…
Congratulations KayeKay
Just wanted to congratulate you on your wedding day. What a true blessing. I'm wishing you the happiest future ahead. You are in my prayers for a Blessed marriage. Any honeymoon in the future? Once again, enjoy your big day and thanks for taking the time away from your busy day to check in. By the way, you look beautiful.…
Had my first Colonoscopy since treatment
Just had my first colonoscopy since I was first diagnosed in December 2011. Finished chemo treatments last September. Had my colonoscopy on Friday, No sign of disease and no polyps!! WOO-HOO!!!!
Any lung issues after port placement?
Had port placed on the 2nd and have started noticing over the past couple of days when I cough my lungs hurt. Has anyone else had this problem?
Nigerian Fraud
Hi, all. I recently got a message thru this board from a man who wanted a relationship. He claimed he had had cancer and wanted to communicate with a woman who "understood." The English writing was so-so, and his photo had a picture of a white guy with a iittle boy. He was not an active poster in this group. I did not…
First time here. Hello everyone
Hi this is my first time on this site and i'm still getting the hang of it. Two weeks ago my husband was diagnosed with colon cancer. Hes 35. At first they thought it was just a tumor in his colon and we had surgery scheduled for Tuesday. Last Friday we had a PET scan and we got a call from the doctor shortly after we got…
Wig Shopping Begins
Hair continues falling out and now there's no choice but a wig. In my four year battle I had never lost hair. Feeling insecure and sorry for myself. How much more does God think I can handle?
Home. Again.....*grin*
SUCH an easy travel this time! Our good friends took us all the way to Schiphol, saving us the train experience (baggage in/baggage out). Then we were pre-boarded (frequent flyer) and snagged the best overheads. Flight was good (10 hours, 25 minutes), we slept much of it, but I watched 2 movies on my in-seat screen. In…
Food mobility rate when you're at stage IV with severe diarrhea
Doea anyone know how soon something ingested gets passed, or a food item impacts the digestive system? My mom has days when she might go to the bathroom 4 or 5 times the whole day, and other days where she goes that amount in the space of an hour. She's stage IV, with mets in the liver and lungs. It would be really helpful…
go blue

Colorectal Cancer

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