Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for April 2013

Just checking in
Haven't been on the boards for awhile and just wanted to stop by and say HOWDY! Hope everyone's doing well and hanging in there :D
For Stage IV survivors with continuing progression - what chemo combo is working for you?
Just trying to get new ideas out there for those of us who have to keep trying new chemos to stop progression. We are usually jumping from one chemo to the next after the Onc decides it stopped working. Let's share our traditional mainstream chemos and experimental or non-traditional cocktails with one another. I've been…
A break from cancer ... signs of Spring photos anyone?
Grab a camera or your cell phone, take a walk outside, look for signs of Spring, and post photos here. I'll start with this one ... there is not much here yet in the north... but, there is promise. Best to all -- Cynthia It is spring again. The earth is like a child that knows poems by heart. Annalexandria kindly provided…
Hi mates it is FRIDAY , any interesting plan for the weekend?
Nothing interesting here! Again a bad ,cold,rainy and sad weekend! Ughhh!,well it is April a crazy month for weather as you know! Hope to go to the cinema tomorrow but still feeling bad of my stomach , this time chemo is harder than other times ( specially for my stomach and liver) ,well hope thugs will improve next round!…
Update on Jason....
Hey everyone! So, we're home now, he got to come home Wednesday. They never did find a reason for the fever though. He's on Cipro for 5 days & is scheduled to get chemo Wednesday. (it was postponed a week) His fever went back up last night, 102.1 & he was having pain on the left side, it was up high & around his side & up…
Where's Pepe.
I haven't seen Pepe doing his wonderful posting for quite some time. I pray he is doing good. Has anyone heard from him lately? Jeff
CT scan looking good
I just heard back from my oncologists office...the radiologist reviewed my scan and reported that it looks good..."unremarkable"! The oncologist wants a second review to compare this CT that I got this week to one I had back in December. so I am still waiting for the final results but everything is looking good so far. Oh,…
New Stage IV Looking for Positive Stories
I am a 45 year old very fit male who was diagnosed with colon cancer in January of 2013. I had been working overseas in Thailand when it was found and came back to the United States for treatment. On 5 Feb I had my right colon resected (no bag thankfully). They removed 47 lymph nodes of which 30 were positive with cancer.…
Diet questions and frustration
This post is for my mother, who has stage IV colon cancer, with mets to the lungs and liver. She has severe diarrhea issues, and the location of her tumor (8 cm) gives her constant pain, because it's at the very end of the descending colon. She started taking the Fentanyl patch recently, which has brought her significant…
no side effects after 4th cycle
my dad has his 4th cycle infusion 21st march...avastin was also added from this cycle.he is taing xeloda now but surpringly he has had almost zero side effects. There has been no loosies, no loss of appetite, no bad taste in mouth, no irritability . has anyone had same absence of side effects so far into the chemo ?
If true,this could be a cause for alarm if you're on medicare
http://consumer.healthday.com/Article.asp?AID=675134
should I be on 'Dr Phil' ? Have Hypertrophic Cardiomyopathy with multiple colonic polyps and no one
Still waiting to hear does any one know of anybody with the above conditions? Thanks.
I have not been on lately, but learned
something new today. Robert has adenosquamous carcinoma of the colon, which is pretty rare and the prognosis for stage IV is not as good as the more common adenocarcinoma. Didn't know there was this type... "The clinical signs and symptoms of colonic Ad-SCC are the same as those for a typical colonic adenocarcinoma, but…
Illiostomy reversal-rise in cea
I had a illostomy reversal at the end of January. I had my last blood work done the middle of december 2012. I just had my blood work done and my cea went from 2.1 to 5.7, can an irratable bowel cause my cea to rise. Inflamation of the bowel. I'm still adjusting to my bowel, some days are better than others. Please reply…
Deadly radiation?....... How about some recent advances?
Within the past week or so,from a variety of institutes,maybe ready for prime time soon http://munews.missouri.edu/news-releases/2013/0403-breakthrough-cancer-killing-treatment-has-no-side-effects-says-mu-researcher/…
multiple polyps with hypertrophic cardiomyopathy
Hi folks...docs say most of bowel needs to be removed....but have heart disease...which may mean they won't operate...any one out there with these combined conditions? Thanks.
Newly Dxed Stage II/III might want to check out this video on"Managing Adjuvant Treatment in CRC"-ad
Part 2 will probably be more informative www.onclive.com/peer-exchange/colorectal-cancer/Managing-Adjuvant-Treatment-in-Colorectal-Cancer-Part-I
Jx594 clinical trial
my husband started this triahey yesterday. He will continue it for who're weeks then he will get scanned in 8weeks. We will let you know how it works out. The side effects were rough for about 10 hours. I have typed this five time on the iPad and each time I correct something it all erases and I have to reconnect hop it's…
Duloxetine for neuropathy? Maybe,,,,,(update from Mayo)
www.medpagetoday.com/Neurology/PainManagement/38209
1st Chemo Week
Hi everyone. I hope we all are hanging in there. My mom is doing fine with her chemo regimen (Oxalipatin, Xeloda 3,300 mg and Tamoxifen 20 mg). So far, the side effects were tolerable for her (dizziness, nausea and sensitivity to cold). Today marks her first week and I am thankful that she is showing strength. I still have…
CAM: I.V vit C (again)
http://www.3news.co.nz/Living-Proof-Vitamin-C---Miracle-Cure/tabid/371/articleID/171328/Default.aspx 17 interesting minutes.
Irrotecan - extreme fatigue
Last Monday I had my first full dose of irrotecan and I have been extremely fatigued. I get chemo on Mondays and usually by Thursday or Friday I am pretty much normal but this week I just couldn't make it. It's Tuesday and I'm still tired. Not looking forward to starting this again on Monday.
Back in the hospital....
I guess I shouldn't have been bragging about how well Jason is doing, he had a fever of 103.1 this evening & we are back in the hospital. UGHHH! His fever is down now (99.8), chest x-ray was alright, urine was good, blood work showed his WBC was 3.9 (I think?) so they aren't sure where the infection is but are pretty sure…
Side effects & outcomes with Avastin?....
Jason goes Wednesday for his third chemo treatment (Oxaliplatin, 5-FU & Leucovorin). His oncologist told him during the consultation re: the chemo that he wants to start him on Avastin but wanted to wait until his incision from the surgery on 2/8 is completely healed due to bleeding issues that can be caused by Avastin.…
Afraid of Recurrence
I was diagnosed with Stage 3c Colorectal Cancer in August 2011. Had surgery to remove about 12" of sigmoid colon and cancer in 5 lymph nodes. I completed six months of Folfox chemo a year ago. So far any follow up tests have shown no sign of any cancer. I am so thankful for that. I have a CT Scan next week. It has been six…
Avastin co-pay card assistance
Don't know if it's common knowledge, but Genentech offers assistance to help with co-pays for your avastin treatment. http://www.genentech-access.com/avastin/patients/find-patient-assistance/co-pay-cards
Research item on how variations in KRAS-wild status impact Cetuximab effectiveness
www.biomedcentral.com/1471-2407/13/169/abstract (there's more info in the link attached but this is all rather "technical")
Pathology is Back
2 out of 3 tumors were cancrr and it did not reach the lymph nodes this time. Whoohoo! lol who woohoo's about cancer. So glad it didnt get the nodes this time and the doc said two small tumors are better than one big one :/
Radiation Offers New Cures, and Ways to Do Harm
"As Scott Jerome-Parks lay dying, he clung to this wish: that his fatal radiation overdose — which left him deaf, struggling to see, unable to swallow, burned, with his teeth falling out, with ulcers in his mouth and throat, nauseated, in severe pain and finally unable to breathe — be studied and talked about publicly so…
Caution - Palliative care information
I hope you do not mind me posting this from an article I have just read which some may find interesting. Quote: It's from a Palliative Care female nurse, who has spent the previous 50 years in long-term, aged and palliative care. After seeing 13-year-old boys turned into quads after diving accidents grow old in care and…

Colorectal Cancer

Discussion List