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So now......it's Folfiri for me
Okay....hmmm....just left oncologist appointment before chemo tomorrow and he delayed my treatment because platelets are a little low 84. I really really didn't want any delay's. Also....he doesn't like my Oxy side effects and is changing me to Folfiri. So now....what am I in for with the new chemo please? Oh…
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News on Kerry
I had a long talk this morning with the "scary old woman" this morning about Kerry. He's still in rehab and doing good. He did have a episode of where he snuck out for a smoke and crashed his wheel chair. "That sounds like him" So now he no longer tries to sneak off since that last try. He's eating like a half starved…
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My Husband
Ok people, i have a question. My husband has stage 4, and is on maintenance chemo every 3 weeks. I have noticed lately that after he has a bowel movement there are little chunks of blood left in the toilet. I had questioned him and he said there is no blood in his stool and comes out after and it's bright red. Hemorroids??…
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colonoscopy coming up
Hi all, my colonoscopy is coming up next week. I chose the Colytyte prep. I am a nervous wreck. The prep is murder for me as I don't have a rectum and I have no control. I just dread it. And also, the pain. Just wanted to share that. You would think I would be used to this by now being 7 years NED (thank God). Do any of…
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folfox 9 in a few hours 3 to go after this one
how time flys when your having fun! found naturopathy solution for my diarrhea, digestive enzymes, anti diarrheal mix with stringent herbs and other goodies, and a yellow powder called gut relief. these have worked for 9 days so far and I have had the mildess diarrhea, and I take the mix and it settles. so happy not to be…
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Update
I wanted to give you all an update on how things are going for me. Basically my cancer fight is not going well. I had about a 30% increase in tumor growth while on Folfori and then Folfox since my bad post op scan last August. The latest scan shows many liver tumors, a few lung tumors and the peritoneal mets have come…
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Hey guys...
I just wanted to update you a little this morning. The freaking beast is at it again. My brother silently and peacefully passed away in his sleep from his short battle with lung cancer. Thanks to all who prayed and shared good thoughts, vibes and just good wishes. Thanks for all the PM's and such, too. I'm sure he and my…
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"Fish oil fights weight loss due to chemo".......
So reports a very brief article today at physorg.com/print218091674.html During my own chemo, onc had me off all my supplements I had been taking, one of which was fish oil pill.....Interesting, as I did lose about 50 of my 178 pounds!!!!! steve
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Friday Riddle Answer
AnnCan is the winner. CONGRATS TO ALL WHO PLAYED !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: Daniel, my son, is exactly one fifth of my age. In 21 years time, I will be exactly twice his age. My wife is exactly seven times older than my daughter, Jessica. In 8 years time, my wife will be three times older then Jessica. How…
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Even the best laid plans go awry....
Oh well.... Even the best laid plans go awry.... What was going to be a two hour operation (with a one week recovery period) to remove/repair a partial intestinal obstruction, turned out to be a total mess. I went in for surgery on January 28th, and tonight (February 28th) I am home, typing. I had been released last week…
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Survivors living with cancer who are not NED
I know there are many on this board who are actively dealing with cancer but are not "NED". Some have been doing this for awhile + I would love to hear how you (long + short-term) are doing it. Many talk about this cancer as sometimes "chronic" + that may be how I survive this disease, which I am determined to do. Please…
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The Reading Room: "Treat the Patient, Not the CT Scan"
For those who might be interested, this thoughtful piece ran in today's NY Times. I certainly know that there were many times during my husband's treatment when we desperately could have used some of the words of comfort Abraham Verghese advocates in this piece. Hatshepsut Treat the Patient, Not the CT Scan
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Snommintj
John, You and your family weigh so heavily on my mind and in my spirit at this time. Much love, peace, calm and stillness. ~Christine
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Parallel Universes
Hi Everyone, For some reason I keep thinking about how I feel like I am living in 2 parallel universes. I am interested in how everyone feels about this. Some days right now seem so normal, actually fantastic. We spend time outdoors, maybe go out with friends in the evening, just good stuff. Then as Tuesday rolls around we…
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We're jumping on the juicing bandwagon!
Last week our car radiator took a dump along with my computer which we just got back up and running, so I've been out of touch here a bit. Jim couldn't get his treatment last Monday because his WBC was low. 1.4 Then he started running a temp mostly at night even as high as 102. They finally put him on an antibiotic and the…
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a poll about hospice/Update about my brother
i am quite upset. my brother is in the hospital. hospice is involved. my brother does not want to die. hospice nurse told us she was going to speak to him and would be telling him he was dying. myself and 2 other sisters said no, do not tell him, he is afraid. she told him. now he refuses pain meds, he knows what was…
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ct scan
So we have a other ct scan tomorrow for radiation to start .we will know for sure on the 8th if its radiation or not and should have a date for surgery Mmmmmmm I think its going to be a crazy week .
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Dress in Blue Day is this Friday.
Dress in Blue Day is the First Friday in March. -- The purpose of Dress in Blue Day is to promote awareness about colon cancer, Please go to Facebook and type in Dress in Blue Day Event. It was created by Tiffany Amber, Shana Gorslene, and Cheyenne Gorslene. You can check that you will attend this event or add people to…
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Share your favorite cough remedies please?... And thank you :)
Hello my dear friends....please share with me your favorite remedies for a relentless cough? I am lost with what to try now. Andrew has been to the Dr twice in 10 days, has a cough that almost sounds like upper airway and throat irritation but he says he feels it in his mid chest, fever off and on and only in the 99's…
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Liver resection?!
Dear all, May I have some sharing about liver resection? I don't know if that would be good for my mum because she is already 70 years old and she is not as healthy as before (after the colon resection, 3 rounds of chemo). Besides, the oncologist doesn't think this is a good idea! I've heard that liver resection is called…
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Checking in, it has been awhile ***Colonoscopy update**2/28
Greetings all! Yes I have been reprimanded for not checking in, Life has been crazy busy since my return from London. My life has changed since that trip for the better, My husband had an epiphnay and realized just how much he loves me and missed me and decided that he needed to jump on the train with me or I was leaving…
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ATTENTION !!! THIS IS THE NEW ONE FOR WEEKEND STARTING THE 26TH...SPECIAL CAREGIVER TO WATCH OVER YO
OK...Its time again...For the weekend of the 26th and for the rest of next week...Whose gotcha ??????????????????????
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Hypnotherapy
Hi everyone, Has anyone ever tried hypnotherapy? The naturopath office near my home offers hypnotherapy and was just curious what you all thought about it. Hugs, Sara
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A "Sitz" bath can be soothing for whats paining in the rear
Tho it gets mentioned every so often, with the recent spate of butt problems, suggest making use of a sitz bath, which provided me some relief when I still had my tumor while undergoing preop chemo and rad and my **** was killing me......Costs around ten bucks in a drugstore, its a basin you fill with warm/hot water thats…
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CEA down again
My husband's CEA went down again this month from a 7.2 in January to 5 in February. In a couple of weeks he will get a scan and another CEA. Lisa's great news encouraged me to post too. He also is trying to eat healthier, takes herbs each day & chemo every week. Erin
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Port/BP/Blood draw questions, need second opinions
When I first got my port installed, the surgeon told me not got let them take my blood pressure, or draw blood from the arm on the side where my port is (my left side). I know that blood can be drawn from the port itself, but I don't go to the infusion center to get my blood drawn, because it is too far, so they take it…
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Warm fire in the fireplace
Yes, it was said, that maybe snow would head our way tonight!! How excited we've been for two whole days, imagining snow, yes, snow in our yard!!! Wow, the pictures of snow upon my cactus would be a most fantastic picture!!! ALAS, the snow isn't supposed to drop more then the 500 foot level. We're practicably at sea level…
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The Emperor of All Maladies by Dr. Siddhartha Mukherjee
Has anyone read this yet? I have seen it in the book store, but I feel conflicted about whether I really want to read it, since I have already lived it, and I know way more about it then I ever hoped to. Thoughts?
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poo question
I am not constipated, nor is it diarrhea- but I am having some issues with stool. The consistency is great- I think any colon person would be pleased. However, I am not. I am wishing for a cleaner exit. I am going through various rolls of paper and/or wipes and still feeling like the remains are "glued" on. This morning I…
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PET scan result
Hi all-haven't been on this site for a long time but got a lot of comfort from it when my husband originally diagnosed. The story is he had rectal cancer diagnosed 2004-stage 3 with pre op chemoradiotherapy,surgery and post op chemo. He has been well ever since with no problems until Oct2010 when he developed some hip pain…