The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

Archives for January 2011

To work or not to work...any suggestion?
Greetings everyone! Real quick...stage IV and getting chemo for the third time in three years...cut two feet of colon, half my liver and the top of my lung... Several weeks ago the cancer clinic admistrator out of nowhere visits my chemo booth and says he thinks I should stay on some kind of chemo regiment for the rest of…
Help PROOF vegetable juicing safe with diarrhea and help cancer ONC SAID NO JUICING TODAY !!!! help,
I am depressed, my ONC said I cannot use my fantastic new juicer as VEG JUICE worsens DIARRHEA. Some thing called the osmotic effect. I am really stuck with taking ONCs advice, she is really worried about VEG JUICE. She has another patient in ICU because of diarrhea and stoma, she said diarrhea can kill you!!!! She said no…
folfox 5# went well THANK GOD I AM LUCKY
I am sorry that Lori and Jack and probably some others are having a bumpy ride on the folfox express. I wanted to share how lucky and grateful I feel, knowing but for the luck of fate, god or dna I could and maybe in similar shows next cycle. I pray my good run continues though and that we all make it through our chemo…
Questions to ask Matt's Oncologists??
My husband just had a liver resection in Dec to remove 7 liver mets & had 1 ablation. He still has his colon tumor. We are 2 weeks from surgery & go today to meet with his oncologists for a meeting, im assuming what the next treatment plan is. I sometimes feel like i have chemo brain & dont know what questions to ask the…
(FOLFOX + Avastin) what to expect? ???????
Hi everyone, My mum was in the hospital after severe diarrhea from XELOX + Avastin treatment on 26 Nov 2010. She was in the hospital till X'mas eve! The onc was so worried and almost stopped all the chemo all together. However, he saw some improvement in her CEA and decided to give her another round of chemo treatment. He…
Folfox #5 didn't go well at all
Jack went in yesterday and had lab, platelets in 160's. Onc said he could have chemo today, and he decreased the Oxal for the 2nd time. Couldn't get a blood return on his port so he had to go have an xray before they would start treatment, that worked out okay. I left him to get lunch, then sat with him for about 30…
I've got a brand new shiny power port....
well, I'm imagining it's shiny anyway, but I do know it's working great. I've been AWOL around here, I come by to read, but am mostly quiet, sorry! I really suck at being supportive. I may need to vent and rant a little in the future, hope you all don't mind, I'm really not a complainer by nature, but this just really…
Questran is used to treat diarrhea UPDATE!!!
I thought I’d update everybody now that I’ve been on Questran now for about a week. The results have been life changing. I’m now having regular BM’s about 5 times a day. I know to some people 5 times might be a lot but I was going 40 to 100 times a day with NO control!! I couldn’t take my kids to school or even go check…
A reprieve!
Happy New Year! Feliz año! Here's the short version after my visit with my oncologist today: "let's look at the long view re: metastatic disease, balancing quality of life and treating cancer as a chronic disease (which I probably will die from, but no one knows that answer of when)– these nodules are slow growing, and…
Chemo #3 on hold for a week !!
Just got back from my trip to the hospital. I was supposed to get treatment #3 of the mop up chemo but red blood counts were down and I am a little anemic so my ONC is having me wait a week to get the count back up so less side affects. I am happy not to get it but on the other hand that means an additional week in April.…
Phil and Krista
Havent seen a post from either of you in a while(atleast that this old chemo brain can remember anyway) Just wondering about you and hoping you are both doing okay. Smiles, Dawn
If you have a high insurance deductible -
there may be help out there. I just received a call from our infusion center. Rep. from Avastin was in their office. Avastin people are starting a program to help those with a high insurance deductible. Combined income of $90,000 or less. Program will help with deductible up to $4,000 per year. Since George gets Avastin if…
Second Round of Cancer
Hello I am new to this network. I am 30 years old and this is my second round of cancer. I first had cancer in my appendix and now two years later it has appeared below my kidney. I guess I am unsure of whether it is considered a colorectal cancer or a kidney cancer.Having surgery on Thursday to have a bowel resection and…
My bracelet was found!
Not cancer related, but I had lost my diamond tennis bracelet when I moved to California three years ago, I really thought I had swept it up and tossed it in the trash. The last night in my home, I had swept up the garage and tossed all the dust in to the dumpster. Later when I got in my car, it was not on my wrist and I…
AFTERNOON/Jim's oncology appointment//UPDATE
Went to the oncologist this morning and Jim is being switched to Folfori with erbitux. We really didn't ask too many questions other than about side affects. I'm sick still so my head is in such a fog. Will he still have the neuropathy and the sensitivity to cold on this treatment? Have any of you found that you did not…
advice on chemo for stage 4 colon cancer pls
my dad has been told today that they want to give him a round of chemo every 21 days for 3 months and review after that. how much is a round, one two injections,???? isnt that too little for an advanced stage shouldnt they be attacking it more aggresively?
Love and hugs to all who sent me Christmas cards.
I'm sorry I haven't been able to send any out this year, just been ill with the flu or gastritis. God willing I'm still around by the end of the year I will be sending out cards to my online family. Those who have sent me cards I feel so blessed and I'm so grateful. I have got cards from people I haven't really spoken too,…
Buddy system for new members
I know Kathy, Nana B and Lor have worked on a buddy system, and I like to give a big shout out to my bud Chris. :-) I'm just wondering should we do something similar for new members? New members pairing up, or an experienced member pairing up with a new member, like a mentor? Just thinking so many new members, and some may…
miserable folfox treatment # 6
On Wednesday I had treatment #6 Folfox scheduled for 10am. My platelets had returned to levels high enough for me to do chemo. Normally, I get chemo on Monday and unplugged on Wednesday. They delayed my chemo on Wednesday because they were not sure if the Neupagon shots they gave me increased my WBC way high to 12.5 or if…
New Caregiver
I am really new to posting on a discussion board. I think I did this once or twice in college so I don't know if this will even be read. My Husband was diagnosed last Wednesday with cancer. We still don't know exactly how bad it is. He is very shocked and needless to say so am I. 38 seems kind of young for colorectal…
Hi !! NEW UPDATE ON SON
I spent the day at the clinic as this last round of FOLFOX hit me very hard. Everything that could happen seems to have happened. I survived it so there! They gave me iv fluids and platelets and told me to go home to bed. So before I do the bed part I wanted to say a quick hello and let everyone know I am doing ok.…
Allergic Reaction to Oxi
Well, no more Oxi for me. I had a reaction to it today and they had to stop the infusion. My doc said it was too risky to try again. I go to Duke Wednesday to see the surgeon about more cytoreductive surgery and RFA to liver. I am praying for them to say yes. I'm not sure what they will do about chemo but the doc wants me…
Your opinion
I have been reading messages on the board for about 6 mos but have never posted a comment. My husband, Jimmy, was dx with stage IV colon cancer on 5/10/10. He had a cancerous polyp removed 5 yrs ago and we're not sure if it was completely resected or if it reseeded, but the tumor is outside of the colon with 1 lesion on…
CEA from 2.4 to 547 in 6 months
Saw my oncologist last Thursday and he had them do the blood work over as he thought there might be a mistake in the lab...I am hoping that is the case. I have been out of treatment for over a year and have check ups He also siad he would go ahead and schedule me for a 6 month check up. He didn't seemed too concerned but I…
tooth 'abscess'
I've developed a very painful swelling over my lower wisdom tooth area (no wisdom tooth there). Thought it might be an abscess. Saw dentist yesterday -- no clear signs of infection or abscess or other specific cause. But it is clearly swollen. He suggested painkillers only. Then it got worse and after consultation with my…
Looking for a way to give back? Check out this page on ACSCAN/CSN.....
I am a member of a group in ACS called the Cancer Action Network. Every so often, when there is a piece of legislation ACS is interested in that is up for a vote, I receive an e-mail that alerts me of it, and asks me to send a message to my representatives in the government as to how I feel. Included is a form that I can…
Pushed through a CT before insurance change
I was totally shocked when my onc called today and said I showed a asymetrical thickening of my left rectum (tumor was removed from right side). WOW just a little unnerved until I see my surgeon and get a scope really didn't expect this. Laura
A new member
My daughter posted a msg on this board last week as I was diagnosed with Stage III colon cancer on 12/30. This started as a large polyp with two biopsies being benign. After surgery was performed on 12/14 a detailed pathology report indicated that one of 13 lymph nodes removed showed signs of cancer. I am no expert in this…
New to this site!!!
hi everyone! my name is Jennifer & my husabnd was DX with colorectal cancer stage IV on May 2010. We were so scared to hear the words cancer that our world would be crumbling down. But after i got myself together (Matt is so laid back & says im so inpatient- he said this will take time but will be alright). We went to our…
Blood test to spot cancer (lung, breast, colon, prostrate); 4 Top centers to start using test this y
This news can make a big difference. http://www.usatoday.com/yourlife/health/medical/cancer/2011-01-03-blood-test-cancer_N.htm BOSTON (AP) — A blood test so sensitive that it can spot a single cancer cell lurking among a billion healthy ones is moving one step closer to being available at your doctor's office. Boston…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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