The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

Archives for January 2011

CT scan reveal shrinkage
hi everyone, on monday i had my first post chemo ct scan with, i guess, good results. background info...at surgery to remove ovarian cyst, surgeon found ovarian cancer, colon tumor and 3 positive lymph nodes, did colon resection and total hysterectomy, along with any lymph nodes that could become cancerous.. pet scan later…
Has anyone had the pain last this long?
APR w/ perm colostomy surgery on Sept 22nd (4 months ago) Still in substantial amount of butt pain however the stiffness in my hips,lower back, thighs, groin and hamstrings is getting to be unbearable. Really tough to tie my boots. I get up in the morning feeling like im 90 yrs old. Drive to work in Boston (1-15 min…
It's another day in Holland, dear family...good morning!
I woke this morning to mist so thick I could barely see out the door. But then, thru the fog, I spied a bit of movement! It was two bunnies running and playing and chasing each other!!!! They could see just fine with each other's help...and safely under the cover of mist from predators always lurking! It rained hard…
Going out the door
On my way now to get bloodwork done. ICK. CEA results on Monday. *hugs* Gail
Rare Opportunity to meet a Fellow CSN member
As much as we are a family here, most of us have never met face to face. We may live close or far apart and the opportunity is just not there. But I am going to meet Sonia face to face! We live a continent away but will have the chance to meet up in London in about a month. I could not be happier about this. I cannot wait…
My mom recently diagnosed
My family and I planned a huge Thanksgiving celebration, with all sides of the family this year. We were so excited, rented a small place and planned a huge family event. My mom cooked her food items, then had a terrible stomach ache. My dad took her to the ER. They were gone awhile so my sisters and I left and went to the…
Avastin rebound??
My oncologist informally chatted with me today about possible rebound effect after stopping Avastin. I've been doing a little research and it seems most of the evidence is from mice and brain cancer. Here is one link (note it is 2009 and from a lay, not medical, publication)…
Hi people today is FRIDAY any interesting plan for the week end?
I'm going to stay at home as I got this terrible Flu!
Friday Riddle
Remember NO GOOGLING or searching the Internet allowed and GOOD LUCK!!!! LWS Inc recently came out with a series of three digit combination locks. The only problem is they were slightly defective. No combinations that started or ended in a zero would work, and combinations worked whether they were entered backwards or…
Thought of the Day
There is no limit to what can be accomplished if it doesn’t matter who gets the credit.” ~ Ralph Waldo Emerson
good news and bad news
I'm asking you to join me in prayer for Pam Berg, a family friend in Madison, WIS. Her husband, Mike, died this morning from brain cancer. He had been in hospice since New year's day. He fought it for a long time. When Mike and I could fish together, people would liken us to the characters in the movie Grumpy Old Men. I…
New Year
I haven't posted for a while as both my sons were home for the Christmas holidays, and I just felt like pretending that I really don't have stage IV cancer. Am I crazy or what? Anyway, holidays were wonderful. Ate too much so I guess I'll just keep adding to the 30 lbs. I've gained since this whole cancer crap began. No…
Last Chemo Today
By the grace of God I have made it through an amazing and tough ten months of hell on Earth. DX stage 4 colon cancer in late Feb 2010 I just finished my last chemo today. I cannot tell you how happy I am to have that dumb pump taken off me for the last time. I know that there is a chance that it will come back but at this…
Prep medicine for colonoscopy (anthing new)
I will be having a colonoscopy. I've had a few in the past and would like to know what prep you guys have taken. My problem is, the gallon jug of stuff you have to drank. It makes me sick and i can never drank it all. The last time I had this procedure, they gave me pills (30 or 40) and I did well with those, but now i'm…
My NBC video arrived today YIPPEE, ITS GOOD I THINK, interested in your comments
I would be interested in your feedback. I hope you like it. This is kind of the serious version of the movie Kerry is proposing. This is the best video on the net of my story. I just got a survival story final edit from NBC. It about 10 minutes, have a look if your interested. I think it touches on many quest themes I am…
CEA is
2.6 I continue to beat back this beast. I am grateful for 2.7 years NED :) :):):)
blood in urine
The doctors found blood in my mothers urine. She has finished chemotherapy in the week of Dec 23rd. Is this usually a side affect of chemo? She can not see it and it is a trace amount.She had a CT scan and nothing showed up. Dang it! Does this ever end.
question about radiation to the pelvis (maybe tmi)
Hi! I have a question for any women (sorry guys) who might have had radiation to their pelvis. I'm wondering (sorry about this) if a discharge that has an odor and greenish is a side effect of radiation to your pelvis? Who should i call, my gynecologist, my radiation doctor or my oncologist? I know its not right, just not…
3 down and 9 to go! :)
I had my third folfox yesterday and I slept through a lot of the 6 hour day. Makes me a little more tired and some nausea, but I use my meds and I'm still eating ok I think. The main thing is the cold sensitivity is worse this time tingly fingers were hurting and I wore my Target gloves all day today. And my hands began…
C Dixon Update After Surgery Consult at Duke
My devotion from yesterday morning was preparing me for today. It was this: For everything there is a season and a time for every matter under heaven: … Ecclesiastes 3:1 God has ordered this world and the life within it with natural rhythms and cycles, with beginnings and endings, that are time honored and enduring. All…
Thicken of the bowel wall
Anybody have thicken of the bowel wall when your cancer was found.
I Missed You all Very Much!!!
Sorry for the long post Hi everybody, I hope you all had a wonderful holiday and New Year!! I missed you all so very much and apologized for my abrupt disappearance:( I had some personal (marital issue) that I needed to sort through. I want to explain my disappearing act and hope I am forgiven :) My husband and I are a…
Number 3 Folfax delayed
One number one treatment I had so many side effects that for number two they lowered by 25% hoping this would help. Well it didn't and I have had every side effect there is and some new ones added on. I have had a headache for over two weeks and no meds take it away. So when I went in today they gave me some tylenol 4…
Liver Biopsy Results--Good News
I went to my gastroenterologist today to get the results of my liver biopsy two weeks ago. I had the biopsy because of persistently high alkaline phosphatase levels that started during chemo. I'm stage IIIb, with colon resection surgery in August 2009 followed by 12 treatments of Folfox that ended in April 2010. Naturally…
Howdy - Not Been Myself Lately - Sundance Update
Well, I can see that there is concern and folks have been asking about me. Thought I would take a minute out to put out a status to ease everyone's mind... Bottom line: Treatment has been a rough go this time 'round. From the open surgery, the 30 rad Tx's the 6-week chemo, 46-hour pumps, and the Big Folfori Margaritas,…
Matt's liver is NED after liver resection
Went to see Matt's oncologists today for the first time after his liver resection in December. He was so impressed how well he has done & healed. He also told us he his NED in his liver with his path report coming back with negative margins. YAY!!!! I thought he would discuss next about chemo/radiation but he said he may…
Changed my user name.
Hi everyone - Just wanted to let you know I have changed my user name. Just in case you were wondering who I was. LOL! Jan
If its not one thing its another -
So had PET and CT scans in November, showed cancer on the move, this was not a big surprise. So doc orders liver biopsy, showed only necrotic, so doc orders another liver biopsy, bingo, mets on the move. They wanted the biopsy to insure that it is colorectal mets and not something else. So started CPT-11, first infusion…
Got some fever (100) and a kind of stiffness in arms legs and shoulders also tired!
But not ant other symptoms, shoulD l be worried or just a flu? Hugs!
Recycle your Christmas & Greeting Cards by sending them to St. Jude Ranch for Children.
Recycle your Christmas & Greeting Cards by sending them to St. Jude Ranch for Children. Only the card front can be used so tear off the front and discard the rest. A great way to recycle for a good cause. Over thirty years ago, wishing to show our donors appreciation for making St. Jude’s Ranch for Children possible, the…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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