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Insurance Frustration
Hi, I just returned from San Francisco today. Went over on Monday for a physical, tests and such while waiting for Ins. Co. approve my clinical trial procedures. There was only a few days window to start the trial otherwise wait a month. Waiting is not what I do best, especially when I know my little tumors are growing. My…
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Erbitux Rash..ARRGGHH
My erbitux rash is usually just on my face and chest, now I have pimple like bumps on my arms and a few on my legs..is this still related to erbitux? peggy
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Scan results
Bad but not as bad as I expected. Increased activity in liver mets and new lymph activity in abdomen. The doc is talking about clinical trials but I am going to md Anderson. Time to run with the big dogs now. The positive side is that it has not spread to lungs and there are no new lesions but the ones that are there have…
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Emotional support needed
MY mom Has colon cancer. She's 83 and before this in perfect health. Tied of people saying she's old and lead a good life ever time she was in a critical situation. Unless you've gone through it people can't understand, but I try not to fault them because before this I too said those same words at times. My problem is that…
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Reading Room - Conference Call Chat - Managing Ostomies and Temporary Ostomies
Please Join Us! Talk with Dr. Laura about Colorectal Cancer Managing Ostomies and Temporary Ostomies Featuring Ostomy Survivors Fred Thompson and Nancy Taylor Wednesday, June 2nd 8 p.m. EST This chat will be accompanied by a live conference call. To participate, please call in using the information below, then click here.…
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At the doctors office waiting on scan results
I am waiting on scan results and not feeling good about it. I guess I will know in about 20 minutes. Iam sitting here biting my finger nails. Eric
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What the heck does this mean?
I was reading my CT scan and came across this.... "Heart is enlarged and coronary artery calcifications are present". Am I on my way to a heart attack now? No one mentioned this to me so maybe it is no big deal but if any of you have seen this, can you let me know what it means. I emailed my Dr's nurse but I thought I…
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From whence I came....for the breast cancer board...
I found this pic, taken for a magazine article, of me with, well, a short haircut... Wow! 5 years later! It's hard to believe! Hugs, Kathi
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Check out videos at physorg.com on latests in Radiation at:
"Super Accurate Radiation Robots Kill Cancer Cells and Leave Healthy Ones Untouched (w/Video)", dated 5/25....brief article with 3 short videos on three radiation techniques.....proceded with caution.......steve
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clear scan
YES YES YES another clear scan. YES YES YES. Happy Dance.
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Chemo resistance
10 years ago my father had colon cancer/colon surgery. After several surgeries due to complications he was left with a colostomy. In March he was diagnosed with liver cancer and lung cancer that met from the colon cancer. the onc has given him 6months to live, with no other treatment options other than systemic chemo. He…
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Oral FUOX (Xeloda?) vs. IV 5-FU
I'm new to this site and wondered if anyone had advice re: treatment with oral FUOX (is that Xeloda?) vs. IV 5-FU as a post-operative treatment for Phase IV rectal cancer. I've had rectum removed and liver resection and am getting ready to start adjuvant therapy. My oncologist says the two are equivalent in terms of…
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A Dream To Come True....
I just wanted to let everyone know my kids will be seeing the beach for their first time this weekend, and I can't wait! My brother has paid for us to go to Myrtle Beach to meet him and his family, so the cousins and all us can be together again. We'll be leaving for my brothers in Virginia on Thursday, and will arrive at…
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My brother
I just got off the phone with him everything has been good still on chemo for the gmb stage 4 but cat scan done recently is showing some growth in the same area they will do a pet scan and then know for sure ( I hope) I am so scared. but he still has options and i so thankful for that if it cancer they will go in and…
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CPT11
My CEA was up again for the eighth time in a row. It is up to 8.4 now so the onc decided to add CPT 11 to my Avastin, 5FU, and my Flolic Acid. He was telling me to expect early onset diarrhea, but didn't say a thing about nausea. I am so sick again, just like when I was on oxy. I don't want to move, I don't want to eat and…
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Louann asked me to tell you
From Louann: I am in alot of pain and go to pain doc tomorrow just dont feel like sitting here at all houston is june 14 hope for the best please let everyone on csn know for me thank you
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"Cancer-Targeting Virus Delivered by IV Is Successful in Treating Advanced Cancers,Research Finds":
"Intravenous delivery of a cancer-targeting virus is successful in destroying cancer cells that have spread throughout the body......." ............. "A recent study tested 23 patients with metastasized colorectal, skin, ovarian and lung cancers. Patients received a single intravenous treatment at one of five dose levels.…
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Question about Cancer Centers of America
First let me say, I'm still NED. 3 years now. I am asking this question for another member of my family. She has a tumor in her liver (GIST). I'm trying to get some kind of "feeling" about Cancer Centers of American". To be honest with you, there are things (that I've heard) I don't care for (specially since they are for…
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parenting with cancer
Something I am having a real hard time with that I would ask the board to offer thier perspective. I have a 3 1/2 year old daughter. I wont go into how much I love her and how she has changed my life and how she keeps me alive and all that. The thing that I am having a real hard time with is my energy level. I work full…
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Not 1 node - 17 out of 19 ugh
Hi Friends, Well **** met with Dr. Lenz today (my mom was with him) and the good news is they tested 4 areas and 3 of them were cancer free. However, there were numerous lymph nodes involved 17 out of 19. In the report is said something like they were 15% active. They were all clustered together and the surgeon thinks he…
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Back with a vengeance
Well everyone, I had my 3 month scans over the past 2 weeks (pet/ct). The cancer is back in my liver and lungs. I'm being enrolled in a phase II study. All prayers are welcomed! -Sheri
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stage IV roll call
everyone, own members are not fairing to well or are we? I need to know, we all need to know Here I go, the rest of you need to follow, Age 44, Dx may 2009 stage iv, large primary tumor of the rectum, spread to liver, and most recently several varing size mets of predeim. abdomen wall, currently on chemo, for control Docs…
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First CT scan and I’m Cancer Free!!!
Or is it NED? Call it what you want it’s GONE!!! We did it TOGETHER . We got another person through the cancer fight. Now if I can just get this pooping thing figured out we’ll be great! Life is funny sometimes Brooks
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my daughter- updated- good news!
I didn't mention this in my other "fainting post", but we've also had a recent scare with our 10 year old daughter. About a week ago, Allison asked me "What do you think this weird bump on my leg is?" It's on the lower back side of her knee on the left leg. It feels about walnut sized and is very hard. Of course, my…
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Post-FOLFOX vein pain
I've found that since my FOLFOX treatments, my veins have been painful, such that having blood drawn or an IV placed (for CT scan, for example) is quite uncomfortable - separate from the "sticking" part, when the canula/needle is in place. One of my fears of my upcoming surgery is of how I'll tolerate an IV on an ongoing…
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interesting Friday
I had one of my stupid fainting episodes again- this is getting so annoying! It's all related to having to adjust my blood pressure medication because of going on Avastin again. I was volunteering at my 10 yr old daughter's school Friday for "Pioneer Day". I was working at the candle making station with another mom…
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CP8
The planning for CP8 is going forward. Lots of interest! It will be a great time of the year and the chance to make new friends. Most of the people who came to one Paloosa, have come back to another and another. Don and I have been to 3 already. Just give it a try, you will be so glad you did. This is a dedicated booking…
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Quilt Squares
Well the Quilt squares are starting to go-finally. Scans and family stuff slowed down the process, but they are finally hitting the post office. We could use some more help. I will send you the squares, you decide what to put on them, then send them back to me, I will make the quilt. I think the idea is to have it be a…
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Has anyone had liver resection before rectal resection
Any experience with this? Husband was dx'd May 2009.
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Anything I should be aware of: having port removed later on?
After all I've been thru this should be nothing as surgeon who put it in a year ago and did colostomy will be removing it at 10:30 AM when he's wide awake and alert (he took a minivacation prior to my surgery-I love this man!!!!)I might not ask all I should (and even when I write things down, I then forget where I put…