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The tides might be changing for me
Well, I got my PET results today and things appear to be doing well. I only have two tumors in my liver and 3 in my right lung and a possible one in the portacaval cavity. That is down from several in each lung and 6-8 in my liver and 2 in the portacaval cavity. Not bad for having only been on xeloda for the last 9 weeks.…
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Could use a little help and Lot of advice
My mother had to have surgery for colorectal cancer. Unfortunately it metasized to her liver in about 8 different spots. The surgeon felt that there really wasn't anything to be done for her and didn't want to bring in the oncologist. We demanded to see the oncologist. I am frustrated and angry that the surgeon wasn't…
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Have you seen Molly the Owl?
If you want to see something kind of cool? go look at Molly the Owl and her 2 babies Max and Pattison. The story is= This guy down here in San Marcos, Ca got a Owl Box and hooked up a camera in it so he could see if any Owls come. Go check it out. HUNTER AND I ARE HOOKED!! http://www.ustream.tv/theowlbox BROOKS
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My Oncologist recommends that I stop chemo.
Due to a perforated diverticulitis that landed me in the hospital, my Oncologist has said the chemo (Fluorouracil) could cause another perforation that could lead to emergency colon surgery and since I’m Stage IIA I should stop the chemo. I’m a little more than half ways through the Roswell Parks regiment, in which I was…
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Son on third treatment
Thought I would post an update on Scott. He went in for his third treament today and doing fairly well. He has had some nausea and fatigue with it but ohter then that reacting fairly well to the treatments. The day of the treatments gets to be a long day for him but he did take his mp4 player today so that helped pass the…
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Long delay between surgery and chemo
My husband who was operated Feb 1st for a rectal cancer is still waiting for the OK from his oncologist to start his chemo. The reason for this is that he developed an infection at his resection site one week post surgery. He was treated with antibiotics for 23 days and the infection site was drained during a one week…
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Scan Update
Well, what a day!! I go in for scan results and chemo and end up in hospital having fluid drained from the base of right lung ( between the lung and liver) pleura area I think. The scan report read that my tumors looked larger and I had fluid. Onc. did not know why the tumors looked larger, wanted the IR to look at it…
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The wedding!
Our son's wedding on Saturday was so beautiful! The weather was so warm and lovely, and the ceremony was touching, and I loved every second of it. Matt and I did the mother/son dance to "Baby Mine," which is the lullaby from Dumbo. This was Allison Krauss's version. So tender and so wonderful. If you're on facebook, you…
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gluten and the bowel
Hi I have been noticing that when I eat breads, pastas, or other items with gluten, then I have lots of leakage. But when I stop the gluten I dont' have the problem. I can even eat salads and fruits without having a problem. I had resection back in 2007 and have in treatment of some sort since march of 08. Antone else have…
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my brother and his brush with polyps
My brother, age 47, had his first colonoscopy over a month ago. They found several, one large, one medium. Being a Vet and getting the exam at a Vet hospital, the word on the biopsy took fcrever. Like over a month. Nothing like taking care of our vets eh? Anyway they did find the polyps were adenomas, which if left will…
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scan report
Haven't heard from ONC but did get a report for myself and I am not a doctor but it states no cancer /tumors all it does say is I have cysts (sp) in both kidneys so I am wondering if that is what threw off liver enzimes. My eyes are very yellow and so is my skin...I will give doc a call tomorrow if I don't hear from him…
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Modified Citrus Pectin
Guys, this would be especially important to our Stage IV folk. Please don't overlook this info! Also, I'm trying to find the best brand to buy and know nothing about vitamin brands! I'm not finding this very easily, either. It has to be 'modified citrus pectin' because it isn't absorbed otherwise. Effects of daily oral…
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I need the best ileostomy reversal surgeon in Southern California
My 28 yr old son Jeff who lives in San Antonio, TX had to have a colon resection about a yr 1/2 ago due to cancer from AIDS and has had to live with the "temporary" ileostomy since. It's been a HORRIBLE experience for him as many of you know and his doctors have decided FOR him that this is the best life for him and refuse…
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CEA Marker
My CEA marker has continued to rise since my initial resection surgery in November 2009. it was 4.8 in the hospital. The next month it was 5.2, then 10.4, then 12.3. I have had scans, xrays and blood tests, and nothing else had presented itself. My onc is baffled, and thinks it's just an anomoly, and said not to worry, as…
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Not sure where to post this but...
On March 21, 2010,my wife passed away after a long battle with cancer. She had the HIPEC procedure done in Boston but her body could not seem to overcome the side affects and complications. Her name was Elizabeth Rumohr, I am not sure what her name was on this site. I love her and always will. To those who have cancer,…
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Hot flashes
I've been having the worst hot flashes at night in the last two weeks. I've gone through menopause already and I don't have a thyroid for that to be the problem. Any one have ideas if it is connected to chemo, my cancer or just being an "old" woman? Thanks, Debbie in Arkansas
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CEA and other bloodwork is stable and within normal range
Whew...... The doctor's office has never called with normal results before and I was freaking out when I returned the call! Thank you Lord Jesus for healing me! CT is next Tuesday.
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“The Road to Ruin” – At the Financial Crossroads – A Sundance Update
The sign up ahead said “Rest Stop.” So, I thought I would pull over and talk to you again this morning. You know, I just really need someone to talk to today…I hope you have a minute? Well, maybe more than a minute…some of you know how I am :) Lots of things have been rollin’ around my head lately and I’ve been wrestling…
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Friday Riddle Answer
CONGRATS to robinvan !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: A rich old lady died and left all her money to her grandchildren and her children. At the end of the will she stated that she had one last thing to give away: her precious diamond. She gave a clue to where it might be. She said "it's in a cylinder…
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CT scan today
Hi dear ones, It's been a while since I posted. I admit I have been lurking. Think of you all often and pray for you all, good thoughts, good vibes you name it. I try to post but can't get my thoughts out. I really admire all of you who have the ability to so eloquently express yourselves. I keep telling myself it's the…
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4 Years NED Today
Four years ago today was my resection for Stage 1 colon cancer. I've been fine since I recovered from the surgery. Had my annual physical last week and no sign of cancer anywhere! My next colonoscopy will be in October. My gastro doc says that I'm the poster child for early detection. The threat of recurrence never goes…
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Insurance woes
I recently got a letter from my insurance company (Aetna) that Pennsylvania Hospital will no longer participate in Aetna network as of 2-15-2010 (where I had my surgeries, radiation treatment, scans, follow up visits, which I am still currently doing, and even my counseling sessions). This is a kick in the gut. I need to…
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Any help would be grateful
Hey things are not good CEA is up to 280,, and Liver blood work came back bad Dr. Harvey said that cancer can hide so we are going to do a PET scan and see what that comes up with anyone know about this or is this something to get worked up over which I already tanking 1.5 mg of (Ativan) Lorazepam and that is not doing a…
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NED
Got results from CT scan and lab work today. CT is clear, CEA is 0.6 YEE HAW. A little redneck humour. Changing scans from every 3 mo to 6 mo. It's always a little nerve racking the day before you get the news, so for the moment I can relax... ...but tomorrow say a little prayer for me. I have a polyp in my uterus and will…
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MRI and CT Results
Hey Semi Family! Well, here's the results from the tests I had last week. MRI - Performed because of back pain. I fractured my T7 vertebrae back in late Dec,2009. I thought it had healed because the pain had ended. I went and got a professional massage...and it was quite rough. Obviously TOO rough for my condition. I was…
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The Reading Room:Los Angeles Times-Obesity's role in cancer
This article was printed in today's Los Angeles Times Newspaper. I thought you might find it interesting. Link: Obesity's role in cancer Hatshepsut
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fresh spring chemoites.
please do not think I am gloating....so many of you are suffering right now...thought I'd just send a lighter spring-fed note. :) :) last year at this time I was on oxy and xeloda and dragging my a--. Towards the end of oxy I did not want to get out of bed...some days I would lie in bed and pray I wouldn't have to turn my…
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Colonoscopy Results
Thank you all for your support. Colonoscopy procedure really was a piece of cake. The results - 3rd degree internal hemmorhoids. That is what caused all the blood. If it doesn't clear up in a couple months banding surgery is a possiblity. Thank you all for your support this weekend! I wish you all continued health and…
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Scan results tomorrow Update
The scan I had back in October showed a single small met to my liver, which I scheduled to have removed via Microwave ablation. He also ablated a met on my left adrenal gland and now it's time for another scan. My CEA continues to rise, so I'm afraid of what the scan is going to show. At least I don't have to wait a long…
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health reform hmmm
Well, I don't know how all this is gonna go down but I do know that if I live until 2014 I'm gonna bust some insurance companies bottom line all to hell.