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Colorectal Cancer

Archives for November 2009

Just wondering
Ok, today I went in for round 6 of my treatments. 2 weeks ago I was admitted into the emergency room for blood clots. I was told today that I would have to be on blood thinners for at least 6 months or maybe longer. Does this sound like the norm for blood clots. Anyone who knows about this please let me know. Pat
Just wondering
Ok, today I went in for round 6 of my treatments. 2 weeks ago I was admitted into the emergency room for blood clots. I was told today that I would have to be on blood thinners for at least 6 months or maybe longer. Does this sound like the norm for blood clots. Anyone who knows about this please let me know. Pat
I just want something to go "normal" just once
I am tired of being the oddball. Once again, not a "normal" day in the life of chemo for me. I thought I'd been doing better this time than first round, and I swear I've been eating more and drinking more, and should be fine. But that isn't the case. I'd lost 8 pounds this morning since infusion day - again. I've been…
NED..
YEAH>>>YEAHH..We once again to do that NED Happy Dance..Stage IV and NED, Yes there is hope for all. Patti & Dennis
Autumn Colors at the Aboretum in Boston
I went out this morning...not on an errand, or to the doctor, or hospital, or pharmacy...but to a local Aboretum in Boston. It was suggested to me while I was doing laundry last week to go there. I love it there and hadn't been since my diagnosis. The colors were amazing, even though it is really late Fall here, the…
CAT on Thursday
Dear Friends, As Rob so beautifully wrote we are all somewhere on this journey and this week brings something new. **** has had 3 rounds of Folfori + Avastin since they found that 1 nasty lymph node in September (3 weeks after finishing 12 rounds of Folfox 6). He will have a CAT scan on Thursday to see if the new chemo has…
cea
Hi everyone, its been a while since i have posted. Life seems to go by so fast! I have a new question... I am a 6 year survivor..Stage II B only had surgery. My CEA before surgery was .4 Since surgery it has fluctuated from .9 to as high as 1.9 6 months ago. However my last test revealed 2.1. We are doing a re-test and…
The compassion of the people on this site
in addition to providing useful info and advice has been a lifesaver for me as I have only my girlfriend,doctors/nurses/staff to talk to.I can;t properly express how vital this board has become to me. Thank you all from every healthy cell in my body...Hopefully, I will be able to help others as well..Steve
Friday Riddle Answer
This week's winnder is PGLGreg. CONGRATS !!!!!!!!!!!! RIDDLE: COUNTING TO 50 Henry and Gretchen are going to play a game. Henry explains, "You and I will take turns saying numbers. The first person will say a number between 1 and 10. Then the other person will say a number that is at least 1 higher than that number, and at…
Ok Phil, check in when ya can...
I know that you have things going on so whenever you are able to give us a shout please do so....absense makes the heart grow fonder (did I say that ?)...LOL Just kiddin bud..hang tough, Buzzard
Johns Hopkins opinion
Hello all! Well, as you know I've been being treated at Georgetown Hospital since the beginning. And even though that is a major cancer center, I decided to go to Johns Hopkins for a 2nd opinion on treatment. WELL...they had nothing new to offer me. The doctor basically said that he would not have done anything different…
Hate is not a strong enough word
to describe how I feel about chemo. Nor is abhor, detest, despise, loathe, fear, dread....But I feel even more animosity agsainst this cancer so to fight it to win I guess I have to put up with it again and hope no more chemo after this. Four months to go as of this Wed. Wishing all going thru this nightmare successful…
stupid question probably but where does all the mucus come from
Last surgery for my husband was in April to reverse bag but he discharges lots of mucus-is this normal. Doctor does not seem concerned. Where does it come from???
One Week in the Life of Semi-Colons
As I remember my many friends here in this community I am overwhelmed by what we collectively face in any given week. It is now Monday with a new week ahead of us. This week we will undergo surgery to reverse an ileostomy. We will stand by the hospital bedside of a mother in Italy, and a brother with bone mets. We will…
I NEED HELP!
I thought I was doing okay with this mentally but it really hit me hard today. I mean the depression and desperation. I was dx'ed 10/16, surgery 10/23 but haven't seen an oncologist yet. I'm still waiting to get an appt. I've spoken to a lot of people in the meantime, current and past cancer patients and health providers.…
Recommend Reading
Did any of you have any books that seemed to really help you while going through your cancer journey? I read Crazy Sexy Cancer Tips while in the infusion chair. I found it to really help to read of others struggles with cancer. I also really like watching the Crazy Sexy Cancer dvd, even though her kind of cancer was not…
oxaliplatin is one nasty, vile, disguisting drug
if I am allowed to HATE it, well, then I HATE it
ERIC Where are you???
Hey man are you ok??? Haven't heard from in in awhile and I am getting worried...Hope everything is ok with you.........JULIE
dorookie
Dear Beth, I went to google and typed in chemo-induced peripheral neuropathy..Then looked through most of them..It is very interesting I mean I knew about the tingeling,the effects of the cold but I didn't know it could be this painful..I am in pain all the time.I also didn't realize that the neuropathy can effect my…
ellagic acid
I met a lady today that claimed to be a stage 4 ovarian cancer patient. She had some excellent scars so I'm gonna take her at her word. She claimed to have had mets to stomach, kidney, abdominal cavity. She says she has turned down all forms of chemo and radiation, she's had surgery only to primary site and stomach. She…
Shayenne
Donna, Went to the neuropathy web site you metioned..I have 5 out of the 12 symptons. I will call oncologist to get in sooner than my appointment in Dec..Thanks alot for the help..It didn't dawn on me that all of it was related to the neuropathy..I new the tingeling and coldness but not the sever pain and balance loss and…
Foot and leg Pain
Went to a new GP..(My normal GP was to booked up) I have been having terrible foot pain and leg pain..It hurts 24/7 and my legs get tingeling sensations plus pain...I still have naropathy in my feet...I stated a new job in Sept. and am on my feet 8 hour a day but thought the pain would get better and go away once I got…
Annabelle41415
Hey I just read you are having surgery on Monday..What is the surgery?? (If I am not being to nosey) I will keep you in my thoughts and prayers....JULIE
Anyone have elevated CA 125
Hi-Wondering if anyone on here also has their CA 125 checked? My sister dx 03/09 mets to liver, ovaries and peritoneum. Ovaries removed and colon resection during emergency surgery. Was on Erbitux and 5FU now on Avastin and 5FU. Numbers went up but the CEA really sky rocketed. One specialist thought to have the tissue…
CryoStim Cancer Treatment/Vaccine
I happened on this article and had not heard anything about it. It sounds very promising and was wondering if anybody had heard anything about this. I had a liver resection last year and just found out I have had a recurrence in the liver. So back on treatment I go to prepare for another liver resection in January…
has anyone gone back on folfiri after a year off?
HI, I was on folfiri with Avastin for 12 cycles in 2008. Went off for about a year and now showing signs of more growth. so onc wanted me to go into a clinical trial only insurance has denied it. It's in appeal now. If I can't go into the trial I'm thinking of asking to go back on folfiri with Avastin. Has anyone gone back…
Hoping someone out there can answer questions
When I received my written PET and CT results there are a couple of things the doctor didn't mention, but are troubling me. This is the PET report that I have a question about: I have a subcutaneous collection right paramidline location at the level of the pelvis with a measurement of 4.3 x 1.8 cm up from 3.0 x 1.2 cm in…
Lung mets and dry cough
I have been off Folfiri and Avastin for two and a half weeks. (My scans showed progression of lung mets so chemo was stopped). A couple of days ago I started having a dry cough that is aggravated when I speak. Of course, I am immediately thinking the worst possible scenario. Has anyone else with lung mets experienced a dry…
Surgery on Monday
Hi All, Please keep my husband in your prayers. He is going into surgery at 7:30am EST on Monday for a right hemi-colectomy. He feels good and has a great attitude - ready to get the surgery over with and move onto whatever treatment will happen next. I want to thank all of you for welcoming me to this board several weeks…
6 month check up after NED/update
Hello everyone, as most of you know, I just found out the I am NED and that I don't have to go back for a scan for another 6 months. My family thinks that is a long time to go without a check up, so thought I would ask my freinds here on the board what the norm is for a followup scan after your first NED results. I know I…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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