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RIP Marco - I will love you forever!
Hi there, I haven't posted in awhile and I always enjoy the time away. Away from reality. Some of you already know my story but for those who don't I'll give you a bit of history. My uncle died from Colon Cancer in 2000, my mother was diagnosed in 2004 with Stage 3 Colon Cancer and is still doing well today. Four months…
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Hurry up and Wait
Is it just me or are all doctors trained in the "hurry up and wait" method for recently diagnosed patients. I found out I had cancer of the rectum on 8/26/09. Eveyday that goes by I find myself thinking "everyday that goes without treatment is another day closer to death". Am I wrong to have these kind of thoughts? I met…
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Cancer spread to lymph nodes - Can chemo take care of this (Dad has had disease since 2002)
My dad was diagnosed 5/02 with stage IV. He was thinking about getting radiation on lungs and liver (totally possible) until we found out that he has activity near his lymph nodes on ct scan (near esophagus). He is starting folfox + avastin + xeolda next week. Has anyone had chemo completely erradicate cancer in lymph…
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EXOLDA Question
Last week my DR. took me off of the IV infuions after 7 treatments. I am now taking Exolda for the remainder of my treatments, At the DR office she told me I would be taking 5 pills a day, 3 in the AM and 2 in the PM, but when I got my perscription filled it says to take 5 in the AM and 5 in the PM. I called my DRs nurse…
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I would love some input on CAT results -
Hey all - QUick rundown - I am 35 year old mom of two - stage 3 - colon cancer. Finished 12 rounds of chemo a year ago this week - I had my blood work done this week - CEA totally "normal" and all blood work looked good. I had my CAT done - Onc called today and said that they saw two tiny tiny spots - one on the liver and…
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Menstrual problems
I had a fairly large malignant tumor in my sigmoid colon and had it removed in March of 2007. Nine out of the twelve lymph nodes removed showed cancer. I had six rounds of folfox and became "allergic" to the Oxalaplatin and finished up with six rounds of Xeloda. In March of 2008 a CAT scan showed metastases to my liver. I…
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Any other stage2's doctor says no chemo needed
I had stage 2 colon cancer that was removed did not spread anywhere else.possibly have lynch disease.Doctor says I do not need chemo.Does anyone else have had this recommendation and has it worked for you?
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My Husband
My husband is Stage 4 with spread to liver and lungs - and I think I saw somewhere on the reports that they think he might have a lesion on his L4 verterbre. I know he has been complaining about a sore back lately - but I don't want to say anything as I don't want to upset him anymore. He just confided in me last night…
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Just getting started...
I'm brand new to this forum and am grateful for your help, support and thoughts. My 75 year old mom was diagnosed about a month ago with Stage III metastatic colon cancer. She had surgery (colon resection) about 1.5 years ago and was told no further follow-up was required . Unfortunately my parents are of the generation…
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I lost a friend today.
I just wanted to share my feelings with others who will understand. I was contacted by Leona a couple of years ago. She found my email address on a cancer website I had registered on. Her diagnosis was similar to mine, and she had questions for me about chemotherapy, side effects, and so on. We were comrades together in…
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stomache bloating
Hi I have had 12 rounds of 5fu, I have had the last 3 weeks off everything to prepare for surgery, does anyone out there have stomache bloating? I look like i'm 5 months pregnant!!! My eating habits have not changed since starting. I also don't exercise, but I never have either. Please let me know, if so, when does it get…
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severe pain from gas
Hi wondering if anyone has had this type of issue. I am stage IV, tumors in my colon and in the perotenium muscles outside the colon. I have sever pain associated with gas that is bringing me to my knees. This goes on 20 hours per day and some days is so bad, I have had trouble getting out of bed. has anyone had this kind…
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Colon cancer patients not getting follow-up care
Article http://my.earthlink.net/article/hea?guid=20080908/48c4a340_3ca6_1552620080908-1879592725
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Friday Riddle - ANSWER
There was no winner this week :( RIDDLE: What is that which goes with a car, comes with a car, is of no use to a car, and yet the car cannot go without it? ANSWER: Noise
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Where are you from?
Just wondering! I am from the Hickory, NC area. Mary
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Very embarrasing question
Ok, so my husband and I were talking the other day and I asked him, do you think when you are on Chemo that we can still have sex? He said, well I thought that you couldn't exchange any bodily fluids with me at all when I was on Chemo. Now I'm not saying that we are planning on having sex during his chemo, he probably…
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How long will this Erbitux rash last?
Hi, I've now had two treatments of Erbitux/Camptosar/Avastin. I've broken out in a horrid rash from the Erbitux. I never imagined it would be this bad and painful. My entire scalp is extremely sensitive- not sure if this is from Erbitux or maybe my hair will start to fall out soon from the Camptosar? I feel like I look…
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Starting chemo
Hi everyone, I'm going in on wednesday for my first round of Folfox, I would appreciate any advise or suggestions on how to make this easier as I'm getting really nervous about this. I did pretty well with the 5-fu and radiation that I did already, so I'm hoping this is a good sign. They told me I should be there about…
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Here I go again. Xelox this time
Well, I am soon to start chemo again -- for the 4th time! I have mixed emotions -- on the one hand 'yuck'. But on the other hand, I am glad there is something I can be doing actively to reduce the chance of recurrence or at least postpone recurrence. My situation is a little unusual (I think - altho I am aware of a few…
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Bad reaction to oxaliplatin
Hello, this is Valerie, colon cancer, stage 3, currently going through treatment w/5FU, Leucovorin, and Oxaliplatin. Well I went for my 7th treatment today after beirng off for 3 weeks due to low blood platelets and took my vacation which was sceduled to take place even before I was diagnosed. Today I had a bad reaction…
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Friday Riddle
RIDDLE: What is that which goes with a car, comes with a car, is of no use to a car, and yet the car cannot go without it?
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Anybody have throat paralysis with Oxaliplatin
Just had my 3rd round of chemo Wed afternoon. Early Wed. evening I could not breath and had to call 911, chemo Dr. said I had a rare throat paralysis reaction to Oxaliplatin and now have to get allergy tested to see what my sensitivity is and next chemo treatment I have to stay overnight for monitoring. Anbody have this…
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Happy Birthday SPONGEBOB!
Today is the great day that my dear husband Bob, AKA Spongebob, came into the world...today is his birthday! Everybody sing, HAPPY BIRTHDAY SPONGEBOB! Happy birthday to you Happy birthday to you Happy birthday, dear Spongebob..... HAPPY BIRTHDAY TO YOU!!! ....and many more.... Love you!
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Recently diagnosed
Hello anyone or everyone out there. I am 51 healthy all my life until this past July. July 25th I had surgery because my dr. thought I had ovarian cancer, turns out it originated in my colon. I had a complete hysterectomy plus 10 inches of my colon re-moved. I have stage IV colon cancer. 13 out of 28 lymph nodes positive.…
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elevated cea
My mom's onc suggested to redo her cea level. She is on treatment 3 of her second round. First 12 were 5fu+avastin+oxiliplatin. After 12 her cea went from 189 to 8.1. The last few cea tests have fluctuated between 8-11. This last cea was 11 something and my mom is scared. Her onc ordered another cea and said that he might…
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Fighting/Scared for the Future
So, while my husband and I are waiting for him to have his colon tumor removal surgery, it has given me plenty of time to think. And I know I'm supposed to be lifting my husbands spirits right now - and I do that, whenever he needs it. But you know when I'm alone and driving to work I get thinking, what's going to happen…
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Great presentation to Dr.
At another site that I check regularily, a heroic colon cancer survivor who has dealt with a lot has used this form to chart his treatments. He says he used this when he had to change Dr.'s. I loved the simplicity and pacing of it and he made it available to others. http://hewletts.org:8080/archives/One Guy's Treatment…
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A little healthy dose of inspiration...
Check it out... http://www.thesurvivormovie.com/
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Needing to hear from stage IIIa people please!
Hi, i was diagnosed in July with a malignant polyp that was in the rectosigmoid junction. All along everyone thought it was benign until it was removed by a polypectomy and had a small bit of cancer in it at the base. I then had a lower anterior resection where there was no residual cancer found anywhere. They removed 26…
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DR VISIT
WE WENT TO THE DOCTOR UESTERDAY HUSBAND TOLD THE DOCTOR THAT IF HE IS GOING TO BE SO SICK VOMITING 4 DAYS HE DOSN'T WANT IT.HE IS GETTING ERBITUX AND CAMPTOSAR. HE SAid they could lower dosage maybe change chemo drugs ect. doc did say that his cea maker is 4 the chemo could be working i let into him sayiNg you can't…