Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for August 2008

tennislover
Lisa Rose just circulated an email announcing the passing of Heather Maes, known here as tennislover. She was a beautiful person both inside and out with a heart of gold. She posed in the colondar 2008 as Miss December. She has been absent from these boards for quite sometime, but mainly due to working on legislative tasks…
Friday Riddle - LATE
RIDDLE: I am mother and father, but never birth or nurse. I'm rarely still, but I never wander. What am I?
Colorectal cancer surgery
Hi, do they always check nodes when they do the rectal tumor removal surgery? Thank you
Still fighting, BUT...
Hi all, I wanted to share my decision to stop treatment at this time. I am Stage IV for two years and have been on chemo of some sort the entire time. Well, I had a two month break once. My current regimen is seriously effecting my quality of life. I feel good four days out of the month. With Folfox and Folfiri I, at…
Lymph nodes
I have been NED for just over 2 years. I was diagnosed in April 06 (age 46) with stage III colon cancer. 13 out of 26 lymph nodes were positive. All my test since have been clear, the last test was in May and next test is in Nov. I feel great and back to normal except for the worry that this might come back. My goal is to…
No Help
I am still in the impossible position of being diagnosed with colon cancer in 9-07 but have received no treatment because I have no health insurance and our family income puts me out of the range of getting any financial help but of course I don't make anywhere near enough to pay for treatment myself. All I know is this is…
Spread to bones?
Hello everyone! Well, some of you know that i've been having problems with arthritis and osteopenia in hips and back due to chemo treatments. Well, i saw the orthopedist Friday, and it looks as though things are much worse than any of my other doctors thought. The osteopenia is actually osteoporosis, and it's so severe, my…
Hi
Can anyone tell me what a NORMAL CEU number is? Thanks Sandi
Update
I don't post often but I read what's up with everyone else. Recap: I was dx 9/04 - stage 4. I had a colon resection and my lower left lung removed. 6 months of Folfox. Recurrence in the liver 10/05, liver resection. At this time they inserted a HAI pump so I had systemtic chemo every other 2 weeks and the pump filled on…
need advice on Camptosar and Erbitux
Hello, I'm new to this board, but I've enjoyed reading your many posts and people's answers so far. I'm getting ready to start chemo for the 2nd time this week. I'll be starting on a combination of Erbitux, Camptosar, and Avastin. After seeing how I tolerate the Camptosar and Erbitux, my onc may also then add in some…
Another Still NED - but with fatty liver??
Hi gang, Well I was at the oncologist and xray, ultrasound and bloodwork indicate that I am still NED. Definitely naked happey dance time. I am looking forward to a holiday with my family. The one thing my onc said that the ultrasound indicated what he described as a possible "fatty liver" Apparently this had shown up on…
has anyone ever had this problem
my name is sandy and im 39. i had my colon cancer surgery in oct of 2002. ive have lots of colonoscopies since then and they have removed lots of polyps. i just had to have a ct scan done because ive been doing lots of vomiting,diarreah, and pain. it showed polyps at the surgical region and at the distal part of the rectum…
Need Encouragement
Hi, I'm new to this website and blob. I'm a 43year old woman who was diagnosised with Stage 4 Colon Cancer in June of this year. Had a portion of my colon removed and currently have an ostomoy, which has become a daily dred of maintenance. I'm approaching the end of my 2nd month of chemo. . . .4 months to go. I've been…
Anyone have high blood sugar problem?
Okay, I know its not a significant issue, but it is the one thing I have a problem with regarding diet. I am craving fruit but my sugar sky rockets if I eat it. I love eating dark cherries ( so good with bioflavinoids) and cantelope, which is in season now and rich in vitamins (I'm making myself hungry just thinking about…
NED
What does NED mean? I see alot of this on here and everyone is happy, is it a good thing? Thank you Sandi
new web design
I find the new design not as user friendly as before. I prefer old design. I'm just curious -- what is the general concensus about the new design for this discussion board? I used to check on almost daily, but now I doubt I will be here as often as before.
Test results.
My dear family,I wanted to share with all of you my good news,I had a pet scan one week ago and today was the colonoscopy,everything was CLEAR. Thank you GOD!!!
abdominal pain & 2nd opinion
My mom dx stage IV last november....we're approaching that 1 year mark! Anyway, she is on Folfox + avastin. She finished 12 rounds of 5fu with oxlaliplatin which was discontinued after 12 due to neuropathy. My first question is have any of you expereinced abdominal pain for a few days after chemo? She said it always is…
Thank you
Thank you so much for your feed back. When I came to work this morning I could not function, but after joining this group and listening to all of you and reading other posts - I feel much better about the whole thing. I just need to get my husband to this point, feed him well, make him sleep and keep his spirits up. I made…
Lung Surgery - Well It's done....
Hi everyone: I had 15 nodules removed from both my lungs last Thursday. Unfortunately there is still one remaining that they think can probably be dealt with radiation, and one that was removed but he is not positive he was able to get clear margins. I just seem to feel a little lighter, and a LOT sorer (is that a word?).…
Nose bleeds
Has anyone had massive nose bleeds with treatment? Yesterday I had to call 911 as it was so severe and I was faint and weak from my last infusion. I live alone so it was scary. My platelets were low, but not too bad so all is OK now. This is about the fourth one I have had in about two months. It starts all of a sudden as…
Anyone ever had KRAS testing?
I had my second opinion consultation last week at the Vanderbilt Ingram Cancer Center. The dr I saw said I should not take oxaliplatin due to my neuropathy. As for Erbitux, she is having my pathology slides tested for KRAS mutations. Evidently it has been discovered that those with the mutations get no benefit from…
New to this
Hi, I am new to this whole Cancer thing. Actually not new - both my parents have died from Cancer. My husband and I just found out last week on the 13th that he has colorectal cancer, they assured us that they can do surgery on this and he will live to be 100. Last Mon the 18th he went for his endoscope - which thank god…
Friday Riddle - ANSWER
This week's winner is pamness. CONGRATS !!!!!! :) :) RIDDLE: What kind of animal you would hate to play cards with? ANSWER: Cheetah
Devestated - Need Help regarding spread of colon cancer to abdomen
Hello: My dad is stage IV - has been since 5/02. He has mets in his liver and lungs. His oncologist recommended that he see a radiologist to see if he or she could ablate some of the stuff in the liver. Plus, he is starting a new treatment (xeolda, oxiplatin, and avastin) on Monday (8/25). So, my mom and him went to see an…
Rectum reconnective surgery
I have talked with two surgeons. After removing my rectum, one will bring the sigmoid colon down and connect it directly to the remaining rectum with staples; the other surgeon will bring the sigmoid colon down and loop it back on itself in a J fashion to form a holding chamber for storage until it is convenient to go the…
reconnection surgery
I had my ileo reversed a week ago wednesday, I was released from the hospital on friday and am feeling probably as good as you can in this situation. Other than the MULTIPLE bm's, but even those are slowly getting better (i think....i don't want to jinx myself). I know this is an odd question, but when do the bm's get any…
decision made
Hi Everyone, Thank You to all those that responded to my post about chemo and quality of life. I have decided to try going back to school. I have been in treatment far more than out of treatment since March 2004. Unfortunately this is more a financial decision for me than anything else. I am separated from my husband and…
Easy way of changing an ostomy pouch .
I have figured out a way to replace an ostomy pouch without the adhesive pulling and hurting the skin as it comes off. There is an "adhesive remover" you can get with ostomy goods that comes in a towelette and if you will open it up and rub it completely around the adhesive on the pouch and wait for 5 minutes it will…
Post Op Chemo
I would like some input on Post Op Chemo...I have an appointment with my surgeon at Vandy Monday, and its for post surgery checkup. My oncologists suggests that I need a regimen of 6 months of post op chemo. I would go in on Monday for 4 hours of chemo then wear a fanny pack for 46 hours then back for 3 ours on Wednesday…

Colorectal Cancer

Discussion List