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For beetree2
Hi, Wondering if you've come to any resolution with your decision regarding treatment? Howard
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should I be concerned?
Nurse gave me a copy of my blood work. Of course I have no idea what the numbers mean so I started scaring myself silly. I'm at #15 of radiation/chemo combo Leukocytes 3.9 Hemoglobin 117 red cell distri width 16.1 Hematocrit 0.365 these are the numbers which are circled on the sheet. Can someone tell me if these are way…
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liver surgery and hepatic pump
I posted on this before about a month ago. Thank you all the responses. This is such a great place to ask questions and getsupport. My father who has stage 4, with liver mets is going to have a liver resection surgery tomorrow. There was some discussion on whether to install a hepatic pump or not. He reluctantly agreed to…
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Feeling much better...
Thanks so much to all that responded to my post regarding my friend Mark and his bad response to the chemo. The meds he had were not strong enough so they gave him composene (sp), both an IV and pills to take home. That seemed to do the trick. In case that stops working I have several suggesions from everyone on what to do…
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My first REAL relay
So, Saturday was the first real relay for life I have attended...last year I was only strong enough to go around on the survivor lap, having been discharged just 4 days earlier from my bowel surgery. I had many people come up to me (I'm still very hairless) and just start talking, wishing me the best, asking when my…
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for Ross(huggs)
We did a lot of hugging, and I told her the last one was for Kanga.. Bud
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for Ross
I'm behind schedule..still a thousand miles to go, and promises to keep..but then I'm old , and have to stop at all the wayside rests..had to reply with a new post, can't reply to posts for some reason Jose.. Bud
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for Kay(kanort)
Hiya sweetie....strewth gal...talk about kiss n run. Was it my b/o, my poorly look, my clothing...huh..huh? We only had a short time at the airport....oh so short time...and we never got the chance to thank you my dear! Yes....I do know you had to go with your mum home...so I am only kiddin sweetie. I had to "topic" you…
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Good Palooza Wishes and Good NED News
Hi all - Wish I could be joining you in Austin. I know you will all have a great time and I so look forward to the pics. Ross and Jen, I hope you have a good visit in the "States". I completed a second round of testing at NIH this past Wed-Fri. They have booted me back to my oncologist because they can find no evidence of…
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For Ross
Well Ross...how do you like Texas? You'll have to learn to speak redneck now.
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The Aussies have Landed
Hi Everyone, Ross and Jen (Kangatoo) are now in Austin, Texas preparing for the Colon Palooza 3 next week. Photos will start coming your way soon. Take care everyone and we'll see lots of you next week. Kerry
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NED (pretty much)
Hi y'all! (Said in spirit of Austin festivities!) I just got back from getting my PET Scan results. I am pretty much NED!!! The edge of my liver where they lopped off a third of it showed some "uptake", but they think this is just because the liver is re-growing like it should and being highly metabolic. I'm not too…
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Very sick from chemo...
My friend Mark made it through his first two weeks of his trial (Xeloda, Avastin, Oxy.). First two days he seemed normal then huge naseua (sp), some diarrhea, headaches, eye aches, jaw pain. That subsided then he spent most of the two weeks in bed - very low energy. He did get out and drive to do some errands but that…
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Poll - Who Had Ovaries Removed?
Hello Ladies, I was wondering if you could help me out, by sharing whether or not you had your ovaries removed after your colon cancer diagnosis. I had rectal cancer and received the standard radiation for that. I am very likely in permanent menopause at age 34. Before my rectal surgery last year, I decided to keep my…
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Info for fighting HMOs in California
Hey, just got this information if anyone needs to complain about their HMO. Called, and they were VERY helpful...even gave me HIPPA info! HMO Help Center 1-888-466-2219 www.hmohelp.ca.gov Hope you don't have to use it, but good info to keep, all fellow Californians. Hugs, Kathi
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Irinotecan(CPT11)/Erbitux Chemo
My mother is a Stage IV with meds in her liver and lungs and just recently got her chemo switced from CPT11/5FU/Avastin combo to CPT11/Erbitux. Has anyone had this combo and how effective was it for you? how were or any side effects from this combo?.......Thank you to anyone to takes their time to respond to my question.…
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worried about avastin
Hi everyone, I've posted a question about avastin in the past, and I'm still concerned about my dad being on it. He just completed his 4th cycle of chemo with 3 cycles of avastin. So far, I believe that the avastin has increased my dad's blood pressure. He now takes 2 extra blood pressure meds because of the avastin. It…
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up, up and away!!
This is my last post for about 2 weeks, that is unless I can beg, borrow or steal "mine hosts" puta. I think Kerry will let me use hers but you guys know how women are...they have an incredible pet aversion to males using their personal property(I know 'cos Jen was a woman last time I looked...lol!) "belt , thump, ouch!…
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Dennis Quaid and Olympus
A few days ago I posted a note asking about famous people with colon cancer. Today I was at my infusion center (getting an infusion of Avastin WITHOUT Erbitux!!!!!!!!!!!) and there was a People magazine. In this magazine I saw an advertisement for Olympus digital cameras with Dennis Quaid saying something about the…
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results
well today i finally had my colonoscopy which my first surgeon did not request since he could see the tumor. thankfully there are no other growths. i am sleeping sounder tonight!! 2 week on chemo only a slight bit nauseated and so far no hair loss.radiation is suppose to burn me pretty bad because the tumor is so far down…
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no news of Wanda(Shandle)
Hi all..............I thought you might like to know that I tried to call Wanda this morning(about 4.00pm Pheonix Ariz. time) Wanda and Harold were not home so I left a message saying she was in our thoughts. The last time I spoke to her she had very bad pain in her leg and was unable to get around. At that time she was…
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Sacramento: I kicked in, quoted numbers!!!
WOW, was my day at the state capitol great!!!! I am tired, but very excited. First, the building itself is awesome, I'd never been there in all my 45 years of living in California. Second, we all WERE THERE when the CRC bill was read in committee!!! All of us (about 50) wore black T-Shirts with "Colorectal cancer is…
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Resection J-pouches that dont work
First of all, Thank God my mom is still cancer free! Q; Is there a colon surgeon anyone would reccomend to fix lower bowl "death"? My mom is currently under care at UAB in Birmingham Alabama. My mom had a j-pouch made almost a year ago and still has to have enemas to evacuate. She had her original resection more than 3…
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To Dear, Dear Kanga (Ross)
Ross, I can imagine, or at least think I can for I too as well as old Mr. "No Type" am so very grateful to everyone on this board who really listened to me and shared my joy and pain throughout the last three years. Better than anybody else could. And yes, even helped play a role in my Bert still being here today because,…
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colon sneaking up on breast
I've been watching for some time now, the total number of posts on this board. ( I know, I need to get a life) But, we are very close to the number of breast cancer posts. I'm not sure if that is good or not, but thought it was worth mentioning. Barb
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Cancer Treatment Centers
Hi again. I am moving onto a new more aggressive phase of my treatment to stop progression. Not really happy with my current doctors or program. I've checked out a local Cancer Treatment Centers of America hospital. Everything they say sounds like what I'm looking for. Just wondering if anyone in the group has had any…
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Resection scheduled...
Hi everyone, thank you for sending me good thoughts this morning about my appointment. My husand and I went to OHSU and my liver resection is scheduled for May 17th, 2006. I am thrilled with this news, just to have a chance at this surgery answers one of my prayers. Both of us have faith in this doctor, he came very highly…
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Travel question
Now that I'm starting my eight week Erbitux break and the semester is almost over, I'm taking a little trip in May/June. I decided to take some of my beloved multivitamins, fiber supplements, and fish oil with me. Well, to save precious packing space and weight, I took the pills out of the bottles and put them in ziplock…
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CT scan
Hello everybody!!! I have been on CPT-11, 5-FU, and avastin for recurrent CC (signet ring cell). I have two small tumors in my pelvis (non life threat). I have been on this chemo since late January. Today I received my CT results and the scan showed no change in the size of the tumors. But the good news is my blood tests…
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going awol
Hiya all. Yup, I know I keep talkin about our trip to Austin but there are things I need to say before we leave in about 48 hours. I have been coming here for just over 2 years and in that time am so gratefull to have found you all. So many survivors/friends that are too numorous to name and I try very hard to remember all…