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Breast Cancer

Archives for October 2006

so I'm a survivor now - now what?
In May I found out I had cancer, in June I had a lumpectomy, in July, Aug, Sept (complications) I had radation. Now I'm on tamoxifin - So for months you deal with all this physical stuff - making decisions - and not really having much time or energy for the emotional stuff. That is where I am now - trying to work thru the…
Pity party
I was feeling sorry for myself one day and my best friend told me to go ahead and have myself a pity party and get it out of my system. Well, my birthday was around the corner, so instead of a birthday party, I decided to literally throw myself a pity party! We had black balloons and crepe paper everywhere. Everyone has to…
Vomiting and Nausea
I heard of this trick from someone who seemed to be much more sick than I at the time. I struggled for years with this problem and lived allot of the time on booste or Ensure. I often thought if it goes down and stays that is good enough not caring what that food of choice was at the time. This person told me they carried…
Radiation Pneumonitis
Anyone else get this radiation side effect? I have been coughing for two months now and can barely hold a conversation! Taking prednisone and cough syrup. If anyone has had this, I am looking for 1). how bad was the coughing 2). how was the condition treated 3). how long did it last 4). did it wipe you out?! Thanks in…
"Everyone should have a porn name"....to quote a movie!!!
So, I watched the movie about a breast cancer mastectomy survivor, and, during her conversations in the treatment room, she met a gal that stated that 'Everyone should have a porn name! It should be the name of your first pet, and the street you live on'...so, here goes.... Mine would be "Zippy Baseline".... How about…
bone/joint pain
I really dont post a lot here because I also have colon cancer (stage 4) and that's our biggest concern right now, but to make a long story short I was dx back in Dec. with breast cancer ( I only had radiation because it wasnt in my lymph nodes) Anyways, every single bone in my body hurts...I walk like an 90 year old lady…
the art of asking the right questions?
Hello, can somebody explain to me, what all these letters mean? HER, ER/PR,... I juat had my first treatment with Fluorouracil, Epirubicin (Atviamycin) and Cytoxan, all together and a Neulesta-shot after 3 days. The second cycle will be Taxotere. I feel so stupid, because I am not a medical doctor and don't know exactly…
NUMBER 4 OF A/C TOMORROW
It seems like yesterday instead of 4 months ago that I started this journey. I have been pretty lucky so far. Except for the Nuelasta the A/C has been easy. I do have some bad constipation at times, but I will have to live with it for a while. After tomorrow comes the Taxol for 12 weeks. It seems like such a long time, but…
Why I Wore Lipstick to My Mastectomy
Did anyone watch the Lifetime Channel Movie on Monday ...Why I wore lipstick to my mastectomy? I thought the first part when she had so many decisions to make was very well done ... how the doctors all said ... "but it's up to you". The actress did a good job of getting my emotions worked up ...I was crying for most of the…
Plan B!
Well, on to plan B! I had all my pre-op work done yesterday for my surgery on 11/6, and met my plastic surgeon for the first time. I was really hoping for a bilateral pedicle flap reconstruction, but I don't have enough tissue for 2 breasts and with a bad back he wouldn't consider risking making it worse. Implants, it is!…
My chemo cocktail
I will be taking this intravenously, Doxorubicin (Adriamycin,Adria) Cytoxan (Cyclophosphamide) and Docetaxel (taxotere). I am ER/PR neg and HER Neg. every 3 weeks for 4xs. anyone have any comments on how these drugs effected you personally. I know we are all different i just kind of want to prepare myself for different…
24242
Hello Just wondered how you were getting along. Hope things are O.K. and you are not too ill to post. Let us know how you are. wimpy
Nausea and Vomiting
On the day of my A/C treatment I felt okay. Then the next two days were really hard. They had given me three different drugs through my IV, (Ativan, Decadron and Aloxi) and then they sent me home with Phenergan and Zofran. I couldn't seem to get my nausea and vomiting under control during those two days. I am going to ask…
Hormone Blockers
Is anyone having any difficulty tolerating the hormone blocker treatment to prevent IBC from returning?
IBC and CFIDS (CFS) +/- Fibromyalgia?
I am very new at this. Does anyone know a person who has been diagnosed with Inflammatory Breast Cancer and Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS or CFS) and/or Fibromyalgia? Please contact them and ask them to email me as soon as possible. Thank you.
Joy - To Be Healthy- Took a Walk for life
On Saurday, where I live, we had our 3.1 miracle mile walk for breast camcer. There were hundreds of survivors and many other family and friends. They had blocked off the major streets in town from 9 to about 10:30 to support the walk. It managed to help collect lots of funds to keep our mobile mammogram unit rolling…
The 5 Stages of Transformation
A Woman's VoIcE on Breast Cancer.... ANOTHER VOICE This experience, all of it, has changed the ground of my being, the tone of my emotions, the tenor of my mind, and the texture of my heart. I suppose each person must discover her own list of essentials. Here are some of mine. I am practicing how to say them precisely, for…
Blurred Vision
Has anyone out there experienced blurred vision following A/C with Neulasta?
Interesting reading - FYI
i received the following in an email - i thought it was one of those crap emails, but i tested my own lipsticks on my hand and i did get a black streak on my hand from all of them!! >Subject: >Serious: Lipstick alert !! >Subject: Lipstick Alert!!! > You might just want to stop wearing lipstick> This comes from someone who…
New to the site.. Alternative therapies
Hi, I had surgery lumpectomy and axill clearance in may My breast lump was very small and could not be felt by me or the Drs. I felt a lump under my arm and hey presto turned me upside down inside out hey i'm sure you guys understand. But the surgery aside her2+++er+ and apart from Arimidex have refused chemo and rads and…
Hot flashes/menopause
Okay,since I haven't had a period since February of 2005 but had one a few days ago, lasting 6 days. Started out with spotting but extremely painful cramps,the cramps remained through out and the spotting turned to a light flow.Am I still in menopause? And as for the hot flashes...I have had them for years but awhile ago I…
3Graces
Can't find your note. Post again if you care to coverse. hummingbyrd or email me at tbyrd2@sbcglobal.net
Had my first A/C treatment yesterday
Boy, was I in for a surprise. I thought that my appt. with the onc. yesterday was to go over my tests and then we would schedule my appt. Well, I actually had my first treatment yesterday! My husband was a coulple hours away at a confernce. Of course he dropped everything to get to me. (Which he did). I first got Ativan,…
Billswife... Glad to have you back
So glad to hear that your surgery went well and that you have rejoined our board. Susan
post radiation treatment for tiredness
Hi, I am done with radiation by one week, and have yet to convince my radiologist how tired and lifeless I am. Have any of you gotten any meds that have helped you? I was on Provigil but it messed up my ulcer so I had to quit, now I am trying to work, but even though I only did radiation and not chemo, I am SURE there HAS…
Birth of baby and doing well
Hi everyone. I know, I have been gone for a long time, BUT, I am back. Follow up, I had a miscarriage a year ago, but God has blessed my husband, daughter and I to be honored with the birth of another baby girl on May 19th of this year, yes a baby girl, 5 months old today and I am very happy and excited. On October 10th I…
mastectomy and reconstruction
Hi, I just got diagnosed with DCIS after 3 biopsies. Originally thought it was just ADH, but now know the margins aren't clear, etc. A total mastectomy is necessary, having it on 11/6. Am having immediate reconstruction. Hopefully no chemo or rediation, but they will be checking the nodes. I feel such loss and grief. My…
Hummingbyrd!
Hi Humm! I'm so glad to see you posted lastnight! It's been a long time and I was a bit concerned! Sorry you're having more trouble but if anyone can work things out, I know you can! PLEASE keep us posted! We miss your wit and wisdom! HUGS!! Cathy
Wondering what I am up against
I just had surgery in last week of Sept. for breast cancer (left side) and just recently had the bulbs removed. I still have some draining that is settling under my arm. Does this go away? and i have some questions for my first visit with the oncologist prepared and my sister will be going with me. What other suggestion do…
Last treatment
is tomorrow!!!! I saw my radiation onc today and she said the healing time is usually 30 to 60 days. I was a little disappointed to hear that, but figure I can live with it. Kathy M--I guess this mean "naked dance" time! Ha Ha! Thanks to all of you for all your suggestions, support, and prayers. God Bless. Hugs, LoVonna

Breast Cancer

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