Esophageal Cancer
Discussion List
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The end has come
For those of you who have read my previous posts regarding my dad, I am sad to announce that he passed away last night. He originally had the MIE with Dr. Luketich on May 20 and experienced significant complications over the last two months. Several weeks ago they put a stent in due to a leak. Three days ago they went in…
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A little scared
Hi all Mark has been in hospital for 2 days now on intraveneous antibiotics and fluids, still his temperature has not come down, where the antibiotics are going in he is all red like when you see an infection, he is also off all foods nothing appeals to him (notwithstanding the awful hospital food)I bring him up food daily…
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EC and esophagectomy questions
A friend on another board told me about this discussion board and suggested posting to it. I appreciate the suggestion and am glad to find it! I posted the following to another group so please forgive the duplication if you follow other EC groups. Just 'widening the net' so to speak. And thanks for the feedback! My dad is…
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Esophageal cancer and agent orange.
I went to the VA again today to see how things were going concerning benefits as Vince served in Vietnam and was exposed to agent orange. Just wanted you to know this is not one of the cancers the VA considers related to agent orange. BUT the gentleman there told me if I could get enough people together we should file a…
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diagnosis stag iv
I found out today that mothers ec is stage iv. Wow , hard to believe. She says that she feels fine , no symptoms ?? The endoscopy test showed that it was positive for around the bottom throat , a knot on her collarbone and in the middle esaphagus. SOoo , next week she is meeting with radiology?? , her oc , and in all this…
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Today is the day
Mother will see her oc today to confirm a stage 3 im thinking. The ec has spread to lymphnodes and up to around the the spot above the collerbone. She is still thinking that the small town oc will take care of this. I have been telling her the severity of this , to witch she has now considered the Mayo Clinic in…
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New to site
Hi I'm new here. I found out about this site from my sister. Our dad was recently diagnosed with esophageal cancer. She told me about all the support thats out there and I'm pleased to find it. It's hard when you first find out about something like this and it's nice to know there are people out there that can help you…
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Could Bill have the Schatski Ring Problem?
We are still going round and round about Bill's coughing, gagging, and throwing up thick phlegm. Sometimes, a little food comes up, even from 2 days or so before. The doctor has put him on Claritin, Papaya Chews, and now Erythromycin to try and thin his mucous. He also has that nasal drip. Today, he went for another Barium…
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A bit of a setback
Hi all Mark is currently on his second round of Chemo (Taxol), everything has been going really well except that now he has a really high fever I have just left him at the hospital where they are admitting him for a couple of days for antibiotics and fluids, just really praying that we have caught this in time, you know it…
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bad news for us today
As a result of our trip to the ER last Wednesday, we scheduled a trip to the oncologist for today. During our trip to the ER, we were told that the tumors in Lee's liver had grown and also that there were new ones. Our last CT was only a month ago, so this was a bit alarming. The oncologist turned our alarm into terror, as…
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Very Concerned Daughter and new (grateful) for this site
My father is 73. Up till now, he enjoyed good overall health. Within the past 3 months he endured the removal of his appendics and colon (no cancer found/the removals was due to severe ulcerative colitis/nonerosive gastritis). Then he needed some other surgeries due to complications of being bed-ridden (drain in leg due to…
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latest ct scan results
My latest ct scan results were discussed just before my 5th infusion of wicthes brew. I think that this is the most excited I have ever seen him. My primary tumor in the espohagus has gone from 13 cm to 6 cm all my mets are stable not bigger nor smaller at this reading. There are no new mets observed. treatment plan is one…
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Hello to all of you
I have not posted in such a long time and I am sorry. After losing Vince in February I have been dealing with the care taking of my mom. She is almost 91 and lives with me. She is in fairly good health, except for the pre-cancer on her vocal cords. It seems like every day I am taking her to the drs for something tho. I…
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For those of you following the story of Ray (Jr.)
Hello everyone! I haven't posted in a while and see some are wondering where I have been, but (thank God!) there is nothing new to post on my brother. Jr. has been doing much better since they are keeping him hydrated every week and he seems to be tolerating the lower dosage of chemo. We all know it is pretty much a wait…
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HAM6789 and my post-op status
Hi everyone! I know it's been a while but I've been recovering. I was released to leave Pittsburgh today. Figured we'd just wait and get an early start tomorrow so we're spending one last night here. They took my JP drain this afternoon. Said the drainage was good and clear. Since I will be having chemo when I get home,…
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Sciatic nerve pain...or blood clot?!
Hi friends, Husband had round 5 of chemo today and we met with the nurse practioner of our Medical Oncologist. We had told her last week Jeff was having pain in his lower right leg, it is the same pain that he had 6-12 months ago when he was diagnosed with a sciatic nerve. He was told last week to take Advil and the pain…
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Update on my dad "Seeing Dr.'s at University of Chicago"
Just wanted to give you an update on my dad age 67, b-day next month. On July 1 diagnosis with EC T3, N2, MO, had PET/CT scan last week, nothing has spread. Port will be put in on Thurs. So, chemo starts on Monday: week 1: cisplatin and 5FU continuousv(portable pump) for 5 days along with radiation Mon-Fri. Week 2-4:…
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It's NOT all in my head!
Ok, endoscopy is done. Glad to have it over with. Just about ready to go take a nap now, cuz I'm groggy. (I'm pretty sensitive to sedatives.) First, I do NOT have EC. I can't tell you how relieved I was to hear that. What I do have is a hiatial hernia, Schatzki ring, GERD and laryngopharyngeal reflux. (it's unclear why the…
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EC stretch complications
Well, we thought we were going home yesterday . All 3 doctors had signed off on it,blood count looked good, no more bleeding. They gave Rickie an iron shot, and as he was getting dressed to go home he felt nauseated and started wretching and began bleeding again. So much for going home.this continued for about 5 hours.…
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Post treatment blood test results?
Hello, During chemo / radiation treatments (summer/fall 2010) my hemoglobin level held at ~14.0. The normal range for HGB is 14.0 – 18.0. Blood work from 3/11 had my HBG at 12.9, today’s blood work at 12.2. My PC says I’m slightly anemic and we’ll just keep an eye on it. I find it strange my HGB level continues to drop…
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Glad to have found all of you!
What a difference a day and a few new found friends can do for a persons outlook. I thank all of you who have taken the time to post. I really do feel so much better, as well as armed with a lot more positive information. With your help, I made a pact with myself to stay away from statistics and to close out any page that…
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Done with Chemo/RAD...Think I'm a Sophmore now!
I just finished my last radiation treatment (24) and I finished my chemo last week (5 rounds Taxol/Carboplaten). I managed to hold my weight, and I have very little trouble eating or swallowing. My Catscan and Petscan are set for August 15 and 16 respectively with a surgical consult on the 17th with Dr.Prashant Shah at Fox…
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Thank you and Endoscopy questions
Thank you, everyone, for your support. *note* if you don't want to read my rambling, just skip to the bottom where I have a question about the endoscopy.* I came here really freaked out about all the "what-ifs". I won't lie, I still am, but least I know it's normal! My daughter is away at camp for the week, so it's just my…
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Need some nutrition advice
Hi folks, Need some ideas here, husband jus completed week 4 of chemo. Up to last Thursday he was feeling fine, zofran and compozene were keeping nausea in check and he was getting 2300-2600 calories a day. On Thursday he started lose his appetite, Friday he was back to normal and then Saturday and today no appetite.…
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Hello, needing a place of hope.
Hello, my father was recently diagnosed with stage 3 cancer of the esophagus. I am so scared that he will not make it throughout this and everything I read on the internet is all bad news. I am hoping that I have come to a place where I will be able to get some information and positive feedback that will help us through…
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Surgrey
Is surgrey performed on the tumers found in ec? Mother is more worried about that . From what im hearing it is the best way to start ? God bless ya'll out there today and this comming week. Jason
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Scared to death
I just turned 44 years old, female, rarely drink and have never smoked. I have 4 children: Two adult sons who are out on their own, a 15 year old daughter who has Down syndrome, and a 10 year old son, newly adopted from Serbia who also has Down syndrome. Back around October or so, as my husband and I were preparing for me…
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Anyone else with this problem?
My husband, Rickie,stage VI EC, went to our local hometown GI doctor on Wednesday to have his esophagus stretched. Swallowing had become more and more difficult since early May when an unsuccessful PEG tube placement was performed. At that time the esophagus was dilated and he was able to eat fairly well for about 6weeks.…
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Insurance!!!
Hello hope everybody is haveing a good day. I am in G.A. and mother is haveing trouble getting insurance for her ec. They told her to get on disability ? This makes no since to me. Her tumer a large one need to be addressed ASPAP . Hope we can cross this problem off the list fast! She was laid off her job more than a year…
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The endoscopy test are back
Good day to all. Mother's endoscopy came back with a 3cm tumer on the mid-mid/upper. Also has spread to the place above her right collarbone. So now we have to waite to see what this small town Oncologyist is going to do. I feel strongly that any surgrey or anything out of the ordinary would take place at Piedmont in…