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Morphine
For the past few day Lee’s pain in his lower right abdomen was getting worse, to the point where he’d be up during the night, and be groaning in pain all day. We paid a visit to the oncologist on Wednesday and he suggested another CT scan to see what was going on in there. He also prescribed a slow release dose of…
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Just Another Newbie
For those of you who have not clued in yet, God has a sense of humor! I was diagnosed with type 2 diabetes in 2001. In 2004 I was diagnosed wtih Fibromyalgia. Now on march 16 ,the day before my wife's birthday, I was rushed to the hospital because I was puking blood. Had an endoscopy done but there was too much blood to be…
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The Suffering is Over
I am sad to post that John passed away on June 18th. Exactly four months after the Stage IV diagnosis. It does not seem real. He passed at home like he wanted, in Mom's arms with her singing Bob Marley "Baby don't worry, about a thing, cause every little thing is gonna be alright." All of his family made it in before he…
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Second Opinion surgical consult −7-13-2011
Meet with the surgical team at Moffitt (Cancer center in Tampa) today. Dr. Meredith and his team explained the MIE surgery (with robotics) to John. Now I must apply for out of network coverage to have MIE done. I would appreciate everyone’s prayers that this will be an easy process. I was very impress with Dr. Meredith and…
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Post-op drainage
Hi everyone! I'm doing good after my MIE on 7/1. I still have my JP drain and I was wondering what some of the vets were draining per day at this point. I'm averaging around 140 ml per day.
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tonsil cancer
My husband finished radiation and chemo treatment for tonsil cancer last Friday. He has a feeding tube but can't keep anything on his stomach. He is vomiting every day. He is able to keep some water in him. He uses his anti vomiting medicine but it hasn't helped. They are giving him Jevity to put into his feeding tube but…
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Daughter now has acid reflux
So early this morning, 2:30 am to be exact, I got a call from my beautiful 20 yr old daughter that her sternum had pain and some radiating out and even some in the back. She went to the E. R. where they told her she has acid reflux. Backtracking a bit, she's been working with her family physician regarding this new pain.…
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Concerned Daughter
Hi Everyone, I've been reading the post for a couple days now debating on opening an account and its become quite clear to me that, this is the place I want to be right now. On April 8th my mother was diagnosed with Kidney Cancer (renal cell carcinoma) After a few test it was settled Stage one "A walk in the park" the…
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I am curious
I have been reading a lot lately about the reluctance of the jtube. Seems like some docs just plain dont want to use them and wait so long that it is impossible to use them? I just was curious, for all that do have them or have had them, as to what procedure everyone went through to get one. For Steve it was an extremly…
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What a difference 4 years makes!
Four years ago my husband and I were at a place that so many of you sadly are right now. After having a sore throat that dragged on for several months, difficulty swallowing, a primary care appointment and finally the Heimlich due to choking, testing began fast and furiously. On July 12, 2007 an endoscopy ended with the GI…
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Magic mouthwash
Magic mouthwash is a combination of Maalox, Benadryl and lidocaine that numbs the esophagus so that our loved ones can eat. My husband squirts it into the back of his throat with a 2 tsp plastic syringe. He has to try not to get any in his mouth or it will numb his tongue and cheeks and make it more difficult to eat. Right…
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Surgery Postponed Again
My dad's in icu for the third night tonight with aspiration pneumonia; this is his third bout of pneumonia since mid-May (finished chemo/rad May 31). His surgery was originally slated for July 5, then postponed because of malnourishment to August 9, and today, it was pushed back to August 22. For the first time since all…
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Last Radiation Treatment Today
59 YO T-3, N-1M-0 –May 17, 2011 Started Radiation/Chemo-June 1, 2011 My husband (John) completed his last radiation treatment today. Next step we go to Moffitt Cancer Center for second opinion surgery consult on Wednesday. I am hoping that he is a candidate for MIE surgery; if he is then I will appeal to the insurance…
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Hey , new hear
Hello , my mother was diagnosed with ec.....These are the events that took place so far. Mother had a knot on above her collarbone on her rightside , about a month ago. She made her yearly appointment with her Dermatologist early with this new symptom. Also need to know that she has had melanomia in the past and has…
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Something to look forward to
Hi everyone, I see a lot of new people on the site, scared and desperate for some encouragement. I am still afraid to make any bold statements, but just to give people going through the treatment something to look forward to, here is a short comparison of where we were two months ago and where we are now. May 11 (6 weeks…
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Goodluck with treatments
Hi all, I just wanted to wish everyone a good week for those who are currently in treatment. I know that there are a few other newbies out there like my husband who are going through chemo and radiation. Please let us know how your week is going. If this is anyones last week good luck...from what I read it gets better from…
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Out of Hospital
My three week vacation was cut short by a week due to swelling in my esop. that made it imposssible to swallow anything. We made a miserable 15 hour trip back to Virginia and I was admitted to UVA at 2 in the morning, last saturday. Apparently some food had gotten stuck in my esop and caused irritation and swelling. When…
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Jim's Catscan
Hi Everyone, Great news, Jim's catscan shows no cancer! Praise God on high! It had not been read by the radiologist yet, but the surgeon said it looked good. We are both so relieved. This was his six month check after surgery in January. We were able to see our friend that had the MIE there at OHSU in Portland the day…
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What a nightmare
My name is Denise, and my dad who just made 65 last month was recently diagnosed with esophageal cancer towards the lower part, near the stomach area. Symptoms started in the first week of May with "acid reflux" like symptoms, including throwing up. His MD gave him an RX for Nexium AND Pepto Bismol, told him to give the…
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Just found out today Mom has Stage 4 esophageal cancer im lost
I am an only child and about a month ago my mother was having stomache issues and she figures it was related to her acid reflux. After 2 weeks of testing they determined she had esophageal cancer. It has gone down hill every single day since. Im so lost and dont know whee to turn. I live a long distance from her and have…
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Consuming enough calories
I had surgery last August and as most of you was sent home with a feeding tube. The feeding tube was removed at the end of December. Since then I have struggled to maintain weight. I try as best I can but just can't seem to consume enough. I have lost 100 pounds as of today and do not want to lose more weight as I am very…
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My latest post op update
Well, better part of a week out now and I feel amazing, all things considered. UPMC has such an amazing program up here. From the time I walked in the door, everyone has treated me so well. I want to thank everyone for their incredible well wishes and prayers. I am up to eating 2 ounces of full liquids an hour. I am also…
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Swallowing exercises are not working
Hello all, We still need your advice. Last time, I mentioned that the surgeon said after Bill's bronchoscopy that his muscles were weak in his throat and he needed to do swallowing exercises. Well, he has been trying but is unable to do those exercises because he is gagging and throwing up phlegm so much. They have told…
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Where are you Callaloo? Sherry's Gall Bladder surgury.
Hi Lu Haven't seen you post for awhile and was wondering if you are off in The Caribbean again. I sure hope so. Please call or let us know how you are. I hope you are feeling better each day Sherry after your surgury. Hope you don't mind that I mentioned it on the site but you have been a LIFELINE to all of us now its our…
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Doctors in Chicago
Just wondering if anyone has any experiences with the Dr's in Chicago? My dad saw Irvin Waxmann, Marco Patti and will be seeing Victoria Villaflor and Renuka Malik all out of Univ. of Chgo. Carolyn
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Tom's onc appointment
Everything is fine..the tumor board met this morning and none of the tumors are growing...lymph nodes are ok and the tiny one in the esophagus shrank. That said, Tom was given a choice of take a break or continue. He opted to continue the chemo...aside from not tasting well and feet that feel like cement boots, he's doing…
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Prayers for a fellow MIE tomorrow
Hello friends, Jim and I have a new friend who is having the MIE tomorrow at Oregon Health and Science University in Portland, Oregon. We fortunately were able to enlighten him about the MIE a week prior to his scheduled Ivor-Lewis in Coeur d'Alene, Idaho. He is a stage 2 and the prognosis is good. Thank you for your…
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Severly upset stomach after having a stent put in
Hi, My dad's scan showed that his oesophagus was completely blocked (partly by the tumour and partly by scar tissue) so the surgeon made the call to insert the stent. The procedure was done yesterday at about 16h00 (about 24 hours ago South African time). My dad says he isn't in much pain and has managed to eat some…
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My dad was diagnosed on July 1 T3, N2, MO
Hi Everyone, My father 67 will be 68 next month, went to the ER last week, he felt food lodge and it wouldn't come up. The dr. did a egd-found a mass and food lodge, suggested it was adenocarcinoma. At this point my mom and I started to look for comprehensive cancer center dealing with esophagus cancer in Illinois and we…
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My post-Op progress
Well, just a short 72 hours ago, I had the MIE here at UPMC. I am doing wonderfully. I was up walking yesterday while I was still in SICU while waiting on my room. The clinical staff in the SICU are and the 7th floor are have both been incredible. They have attended to my every need. I am still NPO pending the swallowing…