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Esophageal Cancer

Archives for April 2011

My beloved father passed away on March 27th 2011
It is with great sadness to tell you that my beloved dad had passed away after almost a year battling with EC. He passed away 2 days before his 77 birthday. He had brain strokes as a result of EC at the end. He is in heaven and in peace with no more pain or suffering. Thank you all for your support last year. It is…
Endoscopic esophageal surgery - post surgery experience
I have completed chemoradiation and am considering endoscopic surgery. I would appreciate hearing from people who have had this surgery. What was recovery like? Has it changed the quality of your life? Thanks for whatever you can share with me? Jennifer
Mets to brain, any info about whole brain radiation?
My StepDad has EC with mets to lungs, brain and lymphnodes. He did one round of Chemo, wasn't working so Doc put him on Clinical Trial. He then started having right eye swelling with double vision (before starting the Trial). MRI confirmed several spots all over the brain. Doc started him today with 15 minutes of Whole…
Prayers for Billy and DanaM ANSWERED
First and foremost, I give all the Glory to the Lord and thank Him for His humble servants who have been my support through this experience. There are no accidents, coincidences and you’re never “lucky.” The week before our scheduled surgery in Pittsburgh, my husband was having cold feet which I understood. But I…
Update on my Dad (Slydog11)
Hello everyone, my name is Katie and I think some of you know my Dad, Paul. He was diagnosed last July with StageIVb EC. He participated in a clinical trial at MGH and at first, we were getting really positive results from his CT Scans. I think his last post in November was when the doctors said that the tumor had shrunk…
Throat stretching
Hi all Just wanted to ask whether anyone here know's anything about stretching the throat, what is involved and is it beneficial, I am asking because Mark, stage iv, is having more and more trouble swallowing, we are seeing the oncologist on May 5 so want to ask as many relevant questions as possible. Thanks to Sherri I…
Dad newly diagnosed- lengthy response to William's questions
Hi All: I decided to start a new post. This will hopefully be enough information for some feedback. I will start with William’s questions to me, since I think that will provide all the answers. I’m apologizing in advance for such a lengthy post! 1. Dad is 58, will be 59 in June 2. I am the oldest. I have one sister who…
How long before you get full strength back?
Don had EC surgery 4 months ago and still does not have a lot of energy. He has some good days and some bad. He thinks he should be feeling better than he does, but he has had some set backs. Hernia Surgery and a fractured Clavical that is still giving him some pain. How long does it take to start feeling good again Reba
PRAYERS FOR BILLY and DANA M
Just a reminder to everyone that Billy is meeting with Dr. Luketich today with surgery scheduled for tomorrow!! Please keep them in your prayers. Both Dana and Billy were 2nd guessing their decision to head to Pittsburgh. I talked with Dana on the phone Easter morning and I think got her head back on straight!! :-) So,…
Mets to the peritoneum
Hello all: I'd like to be in contact with someone who is in a similar situation.Here is the situation: Caregiver for my husband who is 47,diagnosed 03/10 with EC adenocarcinoma GEJ first staged III,radio and chemo combination,then aborted esophagectomy when peritoneal carcinamatosis was spotted during surgery. The best…
Dad diagnosed Friday. What questions should we ask?
Hello everyone. I'm new here. My father, 58, was diagnosed with esophageal cancer on Friday. I live in Texas, he's in California, and I am getting the news in bits and pieces, so I'm apologizing in advance if I don't have enough information to give a full picture. This is what I know: he has been having difficulty eating…
I have been thinking about you.
Hi, some of you know me and others new here don't, but I wanted to let you all know that I read this e/c website alot still and have been thinking about alot of you. Another holiday tomorrow, they are not easy once you lose a loved one. Life is really never the same but somehow we get through these holidays. Diana and I…
AGS (Dammarane Sapogenins) Anyone Know Abount this new treatment?
Has anyone tried or know any additional info on the AGS Cancer cure. Does the old saying, if it sounds to good to be true...... hold true on this one as well? I have read some info on types of cancers shown some success, but nothing on bone cancer. Thanks Gail
Am I too old for surgery?
I am just about to start Rad/Chemo (chemo includeS Xeloda). I am 78 years old in fair shape now .....What about after rad/chemo? I don't know if I am a candidate for MIE? What is the oldest MIE patient? Is there anyone here?
Data retrieved
He has Esophagel adencarcinoma stage III,Long ulcerated mass in esophaguus extends from 32 to 42 cm and extends to the GE junction. Radiological imaging states intense hypermetobolic soft tissue mass and thickening throughout distal esophagus into the gastroesophageal junction and lesser curvature and gastric fundus that…
To Sherri and Sally
I wanted to express how sorry I am for the loss of Jim, and Sally your dad. I'm sorry I didn't get to offer my support and prayers earlier. Both of you were of great inspiration and support during my dad's journey. It's one of the reasons I logged back on, to find out how your loved ones were doing. It's like a kick in the…
I've been away...Good Friday seemed like the day to come back
To my dear EC board friends, I have been away, on purpose, for the last couple of months. It seemed I could not heal from the loss of my Dad, Rich Anderson, without some distance. Reading the the stories became like re-living, my journey just with new names. My dad was diagnosed with EC IV mets to the liver July 13 2010.…
Xeloda treatment update
Thanks to all who gave me encouraging words to help me through the disappointment of learning my cancer had returned. I haven’t been visiting the forum much because I’m trying not to obsess about my condition, and sometimes that means staying away from the computer. But I’m doing well right now. I just finished my first…
cher76
I am new at this website, and not sure how to e-mail you like you said!! Would love to talk to you and compare notes!
Waiting for P.E.T.
I am a 78 yr old man in good shape. Was dignosised 3/31/11 with esophagael adrenocarcioma. I live inLas Vegas. I went to U.C.S.D. where Dr. Savides did aEndoscopic Diagnosis, as followed: "29mm by 19mm thick circumferential esophagael mass from 30cm to 35cm located mostly along anterior, right esop. wall. EUS revealed the…
DanaM
Thank you for the words you wrote. You are very strong in your faith, and I feel the love you have in the words you write. I want so bad to get past this angry stage at him, but I feel "stuck" I just want to feel his peace again, and know it will come, but "feel" like I need to blame someone, which it should NOT be my…
alkaline diet
Has anyone had success with this?
New result from bone scan
Just received a phone call on my bone scan done this morning, apparently they feel that the cancer may be gone in to several of my vertebrae, which really shocked me since my scan in Feb showed only slight deterioration in one disc, probably caused by arthritis. A MRI of 2 weeks ago only showed the same spot on one…
New and need information
My husband is 53 and diagnosed on 3/12 with EC and is in stage 3. Tumor is 20 cm long into his stomach and in several nodes. PET Scan did not show in any other areas. Has had one round of chemo of Epirubician and Cisplatin and carries around 5-Fluorouracil. Should be taking his second round on 4/25. After 3 rounds he will…
Thanks for feeding tube advice!
Many of you have read my posts about our doctor at MDAnderson not believing that a feeding tube was necessary yet,while our doctor here at home has suggested one since day one. Rickie has been reluctant to consider it, but as his weight has dropped over 100 lbs and he has been having more difficulty eating,he has become…
One year ago.
I lost my dad to this beast. My dad was only 56 years old. I was such a daddy's little girl it was sickly how close I was with him. This has been one heck of a year for us. Having our car break and not being able to call him to fix it, opening up and closing up our camp with out him doing it all, opening up and closing our…
my dad advice please ** updated**
my dad was diagnosed 2 weeks ago with stage 4. He is given months to a yr at the most. This is so devestating to our family, if anyone can give me any advice on what to expect or anyone beat this ugly thing at a stage 4?? He is past the options of surgery and radiation, but they started him on chemo this a.m. at 10:00 in…
The Big Cannons V A Compromise Approach to Chemo
Hi everyone I posted this note yesterday against my EC TREATMENT OPTIONS thread then noticed that it was at the very bottom of a very long thread and I thought it best to make it more "user friendly" I see that I last posted a note on April 1. I'm not sure about the USA but in the UK that was "April Fools Day" and is…
My dad's surgery on Monday, 4/25 @ Mayo Clinic - UPDATED 5/2
Last week we went to Mayo Clinic (Rochester, MN) to seek a 2nd surgical opinion for my dad. (Brief history: Dx’d Dec 15th Stage 3B. His post chemo/rad scans showed “no change” in the tumor, and slight growth in the one, regional, lymph node that was involved. Because he did not have a good response to his treatment, and…
Update on Brendon
Brendon is finally able to eat a little bit more... yesterday I called him at lunch and he had finally went and got him the platter of nachos he has been craving for weeks from the local mexican resturant. He mostly ate some of the meat and cheese and a few soggy chips, but I was sooo happy for him!!! He did comment that…

Esophageal Cancer

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