-
Just Diagnosed - Awaiting Staging
I had an endoscopy last Thursday and it revealed I have an adenocarcinoma in my espohagus near the stomach juncture. My symptons leading to the scope was occasional difficulty in swallowing (quite recent) and pain in the chest and between my shoulder blades and quite a bit of burping. The chest pain resulted in 3 stents in…
-
Drenching night sweats
Has anyone had the problem of night sweats. Dale woke me up last night around 1 am, with sweat just pouring off him. The bed linens and his pillow were soaked. I tried to get him to let me call 911 and he, of course refused. I gave him orange juice followed by peanut butter and crackers and milk. The sweating subsided…
-
my dad died this morning.
My dad, Harvey Lustig, died this morning at Bellevue Hospital in their inpatient hospice unit in New York City. He was a really great person. He will surely be missed. Thank you all for your support. Jonathan RIP Harvey Lustig 2/3/1950 - 4/16/2011 Stage IVb Esophageal Cancer with mets to his Liver Original diagnosis Stage…
-
my dad died this morning.
My dad, harvey lustig, died this morning at bellevue hospital in new york city. His lungs and heart gave out. I just want to thank everyone on this board for their support. Jonathan RIP Harvey Lustig 2/3/1950 - 4/16/2011 Stage IVb Esophageal Caner with Mets to Liver Original diagnosis Stage I Esophageal Cancer in July of…
-
Post surgey follow up plans?
Hello, Today I had my first 5 month post-op CT scan. My MIE surgery for stage 2B (T2N1M0) was done on 11/18/2010, post-surgery pathology was clean. Today’s CT scan was also clean (thank god). I did find it interesting that today’s CT scan was without contrast. I would have thought that a scan with contrast would give the…
-
Pray for my dad...
After battling since October with Stage 4 Esophageal Cancer with mets to his liver. I fear my dad is at the end of this disease. He has lost an incredible amount of weight. He has difficulty talking and walking. He is wasting away in front of our eyes and he is on morphine and every other painkiller known to man. He can…
-
esophagectomy
I'm a 76 year old man with a mechanical aortic valve recently diagnosed with esophageal cancer. Physicians recommend an esophagectomy. I would greatly appreciate hearing from someone who's undergone the process, how it affects their quality of life, etc. Thank you, Billcan
-
Dad newly diagnosed with EC
I've been lurking and reading for a week now. I figured it was time to introduce myself. My name is Audrey, and a week ago, my dad (age 64) was found to have EC. He went to his doctor complaining of swallowing discomfort, like so many others, and our whole world changed when a large tumor was found. My mom and him wasted…
-
Jj tube vs PEG tube advice please!
Can anyone advise as to the difference between a J tube and a PEG tube. I know that a Jtube is inserted in the small intestine and Peg in the stomach, but as to which one should be done I am not sure. Our hometown doctor is wanting to put a PEG tube in. Rickie is continuing to lose weight and he (rickie) is finally…
-
Super Shake Recipes
These are Shake Recipes provided to me from my trainer Clint Howard. When my husband was struggling to eat food, I bought lots of soft stuff including Protein Powder and meal replacement powder. Lately, since he is eating just fine, I've been making some of these shakes and find them very tasty. Hopefully they will be of…
-
Laying flat for radiation
Aug 7th I had my esophagus removed with Ivor Lewis. I had pre-surgery radiation for 5 days a week for 6 weeks and then the 5 day chemo pack for 6 sessions. I had been diagnosed with stage 3, but 2 months after the surgery, a node started growing larger in the clavical area by the throat. It has grown huge and some of the…
-
Update on my father
I hope today finds everyone as well as they can be under the circumstances that brought you here. My dad had his 3 month post op check up and CT. The results were all good. The MIE went well and after having his new esophagus stretched, he's doing remarkable. He's able to eat without much problem, however he does still…
-
Surgery is scheduled!
Surgery is scheduled! I know i dont need to explain being crazy busy to anyone on here but it has been EXTRA nuts lately!! Between my grandpa, 2 sick kids, work. and the rest of "life",busy has been an understatement! I havent had time to respond or read many posts lately but plan on playing catch up here soon. Surgery…
-
Good scope today
Surgeon did a scope today to check husband's "new" esophagus, one year post op. He said everything looked great and pink. No signs of GERD nor any other irritation. Saw nothing requiring biopsy. Well pleased. Standard followup appointment as already scheduled. From what I understand, he will have periodic c-scans, PET…
-
Still going strong
Still going strong.John has chosen to go on Hospice since the end of Feb. There are days when its tougher than others and there are days when he sleeps more than usual. The best part is there are days, yes days that God has blessed us with as what we call bonus days. We have seen the grandkids many more times , had lots of…
-
Suggestions for Brendon's nightly vomitting
First I will tell you the details...then my thoughts... Brendon finished chemo (5FU) a week ago Friday. He finished radiation (28 treatments) last Wednesday (almost a week ago). He has a feeding tube that pumps 2100 calories into him at night (7 cans) at a rate of 160. He wakes up in the middle of the night, every night,…
-
articles about family members fighting for EC Awareness
Esophageal Cancer Awareness spreads across the USA! I just received official proclamation from KY Governor Beshear- APRIL IS ESOPHAGEAL AWARENESS MONTH IN Kentucky! That brings the USA tally to at least 20 states. (AL CA CT DE GA IL KY LA MD MN MO NC NE NJ OH OR PA TN VA WI) Here are a few stories about family members that…
-
Shoulder Problems
I was dx with EC in October 2009 and had surgery in February 2010--stage III. I am 55 years old and female. I've been having shoulder pain and limited range of motion since December. Tried cortisone, both the pack and the injection. Also tried physical therapy. Nothing worked. Having had EC, I was of course worried about…
-
Mechanism for esophageal cancer uncovered
Interesting research. I came across it while doing my lunch surfing at work. I check the news about every day for any new EC news. Mechanism for esophageal cancer uncovered A gene thought to be associated with cancer development can be a tumor suppressor gene in mice, researchers have discovered. Understanding which genes…
-
strawberries
Article in the WSJ that mega doses of freeze dried strawberries may help fight this beast.
-
I figured I would say hello update
Hi everyone. My husband of 13 years (he's 55, I'm 43) was dx in January 2011. This is a guy, by the way, who never missed a day of work in his life for illness (and only missed minimal days pre-surgery when he crushed some vertebrae!) So~ we did the initial endoscopy that found the tumor (located near the opening for his…
-
EC Month media info
HI all, If you have not been emailed by me before and need/want a sample press release & PSA (about EC Prevention & Awareness)---email me at kim@ecan.org & tell me 1-what state you are in 2-what you are interested in I will try to update you all today the states that are declaring April as EC Awareness month. I believe we…
-
I'm a Newbie! I need treatment recovery advice
Hi Everyone. I love the energy I have found reading these posts on and off for the past three months. My husband was diagnosed with EC January 3 -- what a great way to start the year! After extensive research and prayer we decided to go to MD Anderson for his treatment. After being told by other doctors that we caught it…
-
FEEDING TUBE PULLED~!!!!!!!!!! NED!!!
We just returned from OHSU in Portland. The surgeon pulled the feeding tube and said he thought that was what was causing Jim's pain. Within 24 hours the pain was GONE!!!!!! The best news is NED!!! How grateful we are that all is well. Linda
-
Help
Hey everyone, Have you any idea how beautiful this site is, it gives me hope, really helpful advice and makes me feel like I'm doing something useful, with all the research suggestions. Here comes the but, my husband is 45 years old with stage 4 cancer he had finished his Chemo in December and everything has been going…
-
MISSOURI - Issued the Proclamation!!
Yesterday in the mail, I received the signed proclamation from Gov Nixon of Missouri declaring April as Cancer Awareness Month! I wished I could have went to the signing but with work, kids, and traveling between two states, I did not have the time. I'm still working on Kansas. Thanks! Susie
-
MISSOURI - Issued the Proclamation!!
Yesterday in the mail, I received the signed proclamation from Gov Nixon of Missouri declaring April as Cancer Awareness Month! I wished I could have went to the signing but with work, kids, and traveling between two states, I did not have the time. I'm still working on Kansas. Thanks! Susie
-
NEBRASKA-SIGNING OF PROCLAMATION
Nebraska Govener Heineman will be signing the proclamation for April EC Awareness month this Wednesday, April 13, in Lincln. Anyone is welcome to attend. If you would like to be there, along with our family, please just let me know and I will get you the information for exact time, place, etc. Linda
-
new to this
Hello everyone. My husband is newly diagnosed esophageal cancer. He just recently had endoscopic ultrasound. According to physician, he staged it at T2 with no node involvement. Final pathology pending though. I have been reading and reading and reading all of the posts here and honor Mr. Marshall's expertise and…
-
New to this family...
Hi everyone, My mom was diagnosed in December of 2009 with EC (adenocarcinoma - T1 N0 M0). She underwent chemotherapy and radation treatment, finishing her treatment in February. She's had clear PET Scans up until 2 weeks ago, where they discovered a hot spot. She had another endoscopy done, and while they were in there,…