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Esophageal Cancer

Archives for March 2010

Esophageal Cancer Awareness Month
Just got an email from the Governor Crist's office....FL had declared April National Esophageal Cancer Awareness month!! Jane
Dad had a scary night
he went for his CT yesterday. Then around 1am he got up cause he had to spit. It was like pea green he kept bringing this stuff up. He said it feels like he has a chest cold without any other issues. He is not having any issues breathing, just wheezing a little. Mom called both drs and they said its not from the ct scan.…
to newbies & Thanks William & Sherri- uncle geting 2nd opinion in Tampa at MOFFIT
thanks for the sugestions on facilities in Florida area111---my aunt wanted mE to pass on the "thank you" she initially really thought they could stay local---but when finding out that the docs weren't as familiar with EC as they exspectd ---they took the reccomendation to go to Tampa--MOFFITT for a 2nd opionion. I am…
Prayers needed please
Guys we are need of prayers here. My dad went for his CT scan today to see what the next step is. He may need more chemo or go for radition. We will find out news on April 1st. Oh I cried when I found out he was going on April fools day. But our last two holidays really sucked so we have to hear some good news and have one…
pet scan vs cat scan
Ed is almost finishing his third round of chemo and his ordered will be ordering a pet scan. This will be his third pet scan, he never orders cat scans with the pet scan and I am wondering why? Don't most oncologist order both scan to compare or am I wrong? He had one cat scan way back in last october when first diagnosed…
Arizona Spring
Lyle and I live in a lake community in Arizona. We had a wonderful time sitting at the lake yesterday fishing in our 78 degree weather. I love that guy!! He always takes my fish off the hooks for me!! (grin) Happy Spring everyone...and Happy Easter! May you have wonderful times with your loved ones! Susie
Just checking in
Hi All, I thought that it would be a good idea to check in and let you all know how I'm doing. I have good and bad moments. I wouldn't be normal if I didn't. I am in the process of looking for a new apartment the one that I'm in is to big and I really need to be closer to my family, since I still unable to talk the Dr.…
Thank You
Thank you all for the kind words the other day. This past Wednesday my mom had new stents put on top of her old stents in the esophagus and the trachea. It is this parallel stent that caused her to become terminal. The median life expectency with someone with parallel stents is 72 days. The longest that someone has lived…
100 questions and answers about esophageal cancer
I found copies of this very helpful book on Alibris.com, and was able to get a used copy for $1.99. Great resourse. Maria
Governor of MD sent me the proclamation!!!!
Wow!!! Hats off to Governor Martin O'Malley of Maryland!! He sent me the proclamation in a black binder and what a wonderful thing to behold. It said that EC is one of the fastest growing cancers and has increased by 350%. It was so great. I had sent a thank you email after Rolinda sent me an email saying he declared April…
End of treatment nearing
I have one chemo treatment remaining as of right now. I go April 5th for a PET scan, then April 6th for a C/T scan. Praying for a clean PET and C/T Scan. I then have my sixth and hopefully final chemo treatment April 7-9th. I have learned so much about cancer and chemo since my tumor was found October 16, 2009. Surgery was…
RIP Mary Ann
Hi, Some of you may remember me mentioning my brave friend with Stage IV colon cancer, her name was Mary Ann and she went home to God this month. She was such a big inspiration to me, she never gave up and even with mets to the liver and lungs, she was getting 5 FU every other week and she was not giving in. She thought…
Esophageal Cancer Found this Weekend
I am entirely new to this forum, maybe a forum I never invisioned myself visiting either. Last Thursday, my father was taken to the hospital for excessive vomiting. He had cold chills and couldn't hold anything down. Blood work was done and everything came back normal. He had a CT Scan which showed issues with his…
1st chemo treatment
Well...exactly 2 months after diagnosis Lyle had his first chemo treatment and today will be his third radiation treatment. I guess we are finally underway. Due to his kidney failure he is receiving Taxol only. We are praying that just one drug is enough. I see on this board that so many of you or your loved ones are on…
I'm New To this Whole Experience
Hello, everyone. I'm 66 years old. Live with my spouse, Edie, in Smithfield, NC. Two of our children and two grandchildren live nearby. Our other child and her family, including two more grandchildren, live in Ashville, NC. All have been very supportive thus far on this journey. I believe totally in the power of prayer and…
DX one year ago today
Hello all, As many of you know, Charlie was dx one year ago today with stage iv EC. What a year it has been. We feel so blessed to have had this year. This time last year, we didn't think we would ever see another 4th of July, (special holiday for us) Thanksgiving, birthdays, or Christmas. I want to thank all of you for…
Xeloda-what is the normal dose daily??
My husband is on 500 mgs each of xeloda, three pills in the morning, three pills at night totally 6 pills daily for fourteen days straight. Is this a normal treatment plan for this chemo? thanks everyone Oh, Ed weighs 129 pounds down from 218 pounds seven months ago.
Mr. Marshall I was reading your post and great words of wisdom again
Dear William: I was just reading your post to that daughter whose dad has stage four cancer and I was reading about the patients who hold up in their room, withdrawing from everyone, etc., and I thought of my Ed. You know who I am talking about, you sent me a very long post about a week ago about him and his lack of fight…
Good News in KY!
Govenor Beshear made it official---April 2010 is Esophageal Cancer Awareness & Prevention Month in Kentucky! PRAYERS for all those people that are affected by this disease (including my dad & uncle and all those here on CSN) and for more research funding to improve treatment, early detection & prevention. If you want to…
Pain from Neulasta shot?
Hi all- Does anyone have experience/advice on pain. My husband, Lou, has been in terrible pain since Saturday. His pain meds just don't give him relief. He had chemo last Wed. and got the Neulasta shot on Thurs. This is his 4th treatment of Taxotere and Carboplatin (every 3 weeks). After the first treatment, he wound up in…
New to the board! A question
Hi everybody. I feel a kinship with all of you and I hate knowing that everyone on this board is fighting this same awful disease. I've been a "lurker" on this board since my dad's diagnosis in May of '09, and am now finally joining. Background: My dad had persistent and unusual hearburn for a few months and when they…
My Mom Is Now Terminal
I'm not sure what to say other than my mom got word tonight that her cancer is now terminal. The surgery they did last week (the parallel stent) is causing complications and it's very bad. They are going to attempt to help it tomorrow with a procedure but this is basically the end. She isn't even getting her PET scan done…
I am new to the board. Hi everyone. Update.
A little more about us and my sweety. We have known each other for around 18 years. Have been together for all but 5 of those years. We have two kids together. Joshua 11 and Cassandra 14. He was diagnosed in Feb. 2010.He is 49. He has a tumor in the distal third of his esophagus. It had almost completely closed off his…
Peter's in hospital for last 10 days
Hi all,I am new here so wanted to get some input from someone out there if possible.My husband has stage1Vb inoperable cancer.He was on a protacol program up at MD Anderson from the first time he was diagnosed last July.They litterly brought him back from deaths door.Angels all of them.He was doing so very well until Jan…
How do they remove J tube??
Hi, Just found out my j tube is coming out on Thursday, and boy am I one happy camper. The secretary telling me had no idea how it is done so I am still waiting to find out. I was going to drive myself but does anyone know if you have to have someone with you? Do you get some medication?? I kind of can't imagine the dr…
hmmm???
Is it possible for colon cancer to mestasize to the esophagus?? Mel
Mr. Marshall, not a redhead!!!
Hi William and Loretta, Just wanted to be honest, when I ordered my wig I thought I was getting light brown and red is what came in and the lady said no returns, now Ron loves it and he took the good picture. I am a real techno dope, I tried to post my pics on my site and all I came up with was a flower pot on my…
Good news positive pet scan results
All, Thank you to everyone for their prayers, thoughts and advice during this journey with EC and my dad. My dad went for his pet scan yesterday after finishing his first course of chemo (Taxol and Carboplatin) - re was staged as T3N1M0 (one lymph node involved). The preliminary results are that his lymph node now shows no…
Book mentioned in posting
I found the book 100 questions about esophageal cancer that is mentioned in the earlier posting on Alibris. I cut and pasted the name and entered it in the search bar on the site. This is a site I have used for many years. It sells boht new and used books and usually can find whatever You are looking for. I purchased a…
Im a little confused, worried..Scared all in one
So my dad had his last chemo treatment last thursday, he was put on new meds and steriods to help keep his weight under control. Well the patch is working great, he didnt get sick at all. Well he went today for labs and his platelets are low. They are 150. The PA even said his counts were low. We are confused about that..…

Esophageal Cancer

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