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The wheels are in motion
Saw the GYN onc today, I need labs next week because I am diabetic and I'm going to have a CT chest/abdomen/pelvis with contrast on Aug 8, then I need to get an appointment w/my PCP to get clearance for surgery and having a robotic hysterectomy (everything) on Aug 29. My postop for the D&C is this coming Tuesday, still…
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Radiation/uterine
I was diagnosed in May 2023 with Adenocarcinoma Endometroid . Lining of my endometrium very thick more than likely due to 1 mg of estrogen for many many years without progestogen. I am 75 yrs. old and have never had surgery anesthesia. I was beyond depressed and terrified. Long story short referred to Oncologist GYN who…
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Plain talk - I like it
I'm finding that I like the "flavor" of this board because people are speaking very practically about cancer and treatment, good and bad, etc. In real life, I don't have a spouse to speak this way with and I'm finding that family and friends, when I'm asked about what's next, are really put off by my matter-of-fact tone in…
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PET scan after 2 months of Hormone Theray
My mother had a PET scan done last Friday. This was about 8 weeks after starting the Hormone Therapy (Anastrozole). Hormone therapy was started on May 15, 2023 and she had the last chemo before on Feb 3, 2023. So essentially she did not have any cancer treatment about 12-14 weeks in between. The PET scan from last week…
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DazedScaredConfused
I’m new here. On 7/11 I received the most frightening news of my life, I was diagnosis with stage 1 endometrial cancer. Through out my life I’ve always suffered from heavy periods, heavy clotting at one point I bleed for 9 months straight. I was young adult no insurance to scared to tell my mother. After that I would have…
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biphasic - carcinosarcoma -had been serous carcinoma in initial ln biopsy
Hi, I wrote a rather long email last night that I think got stuck in some sort of approval process, so apologize if it turns up later. I wrote a week ago to say my left groin LN biopsy came back as serous carcinoma. Everyone told me to BREATHE until I saw a gyn/onc, which I did Monday. Great guy associated with a respected…
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last week--high-grade serous carcinoma--this week adding in a high-grade sarcoma
Hi, folks, last week, a couple of the seniors here suggested I take a deep breath. I needed it--this week saw a respected gyn/onc here in the Philadelphia area. Very smart. Runs his shop like a clock, and is highly placed in the health system I am now going to. He said I had Stage IVB (because it had spread to the inguinal…
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Reading recommendations for someone with a new diagnosis
Hello! I recently have been diagnosed with Endometrial cancer. It was a total shock and I am still just trying to process everything that I have going through my head. I am in my early 40's and had basically no symptoms. I have had heavy periods my whole life and the last time I went to the doctor for blood work I…
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Just stopped radiation after 5 treatments
Here is my official dx copied from My Chart- Uterus, bilateral fallopian tubes and bilateral ovaries, excision: Endometrial endometrioid adenocarcinoma, Grade I of III, with the following additional features: - Tumor invades greater than 50% of the wall thickness - 0.8 of 1.0 cm, 80% - Angiolymphatic invasion identified. -…
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Endometrial Adenocarcinoma that is involved Adenomyoma’s
I am 60 and recently diagnosed with Endometrial Adenocarcinoma. After my surgery my pathology report looked good with just a 3mm Myometrial invasion, and clear lymph nodes, fallopian tubes, and ovaries. However it also stated that In addition to superficial Myometrial invasion, the tumor involves the Adenomyoma/s…
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Endometrial endometrium adenocarcinoma
Very scary words FUGO Grade 2 - nothing more on the report. I met with doc and being referred to gyne oncology doctor. Hopefully I’ll know when they can see me by Friday. the first part of my report says…. benign endocervixal glandular mucosa with background reactive appearing ectocervical squamous epithelium negative for…
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Surgery 5 years ago today
Just sharing, 5 years ago today I was recovering from a few hours post surgery, scared of the results, even though the surgeon said there was nothing else seen. A week later I got the pathology results, no malignancy seen in the hysterectomy specimen. I still did not believe it. Here it is 5 years later I am starting to…
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Just had first chemo
I had my first chemo with Keytruda on Thursday. During the night, I started having severe leg, ankle and foot pain. Like muscle or bone pain. And leg weakness. It has continued all through the day. Tramadol, Tylenol and ibuprofen aren’t really helping. Has anyone experienced this? Did you find anything to help? Is it a…
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high-grade serous carcinoma - likely uterus - experiences, thoughts, hope?
Hi, first time here. Got results from biopsy of a mammoth lymph node (inguinal) today--I have this type of carcinoma. CT scan received Sunday said I had what looked like a neoplasm that had invaded my uterus. Waiting to get a uterine biopsy, but I am hoping they cut straight to a radical hysterectomy, as the scan…
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My moms cancer is recurring (for the second time) and I’m confused, please help
My mom is 56 years old, and the strongest woman I know. She had lung cancer when I was really young, and they cut out one of her lungs. I guess it wasn’t deemed necessary, but she didn’t go through chemo. 3 to 4 months ago she was diagnosed with uterine/cervical cancer. About a month ago, they noticed a growth in one of…
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Research article on resistant tumors
This is not specific to uterine cancer but is so interesting https://www.bbc.com/future/article/20230704-the-mystery-of-microbes-that-live-inside-tumours
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Just got biopsy results — A little overwhelmed
Hi everyone. My name is Elyce, I’m 66, and I’m in Chicago. My gynecologist, who performed my hysteroscopy and D&C, just informed me two days ago that my biopsy results showed endometrial cancer. I had previously had an ultrasound which didn’t show anything in the muscle wall, so she’s pretty sure that it’s early stage. She…