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Two years ago today I had my hysterectomy
It's two years ago today that I had my hysterectomy. My oncologists/gynecologist thought he got it all so I consider myself to have No Evidence of Disease from that day forward. He did not remove any lymph nodes since he did not see any that looked suspicious. I had chemo as a preventative since I had UPSC but he did not…
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Final chemo today
Yay for me. Chemo #6 of 6 was completed this morning. Radiation will begin in 4 or 5 weeks.
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Possible bladder cancer now?
I was successfully treated August 14 for Stage 1, Grade 1 uterine cancer. I had felt pretty great after the surgery and was ready to move on with life. The only thing that slightly bothered me was that no lymph nodes were taken because I am quite obese, and the doctor couldn't visualize the nodes. Before my surgery I was…
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New here-Need some guidance
Hi :) I am 30 years old and for a while now I have been having a lot of gynological issues. For starters, My periods have ALWAYS been abnormal and I suffer from PCOS. Im also overweight which doesn't help anything at all. For the past 6 months or so I have had abnormal bleeing such as having a period only to have it stop…
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Results of Oncologist Appointment Today
I discussed a number of things with my oncologist today. I asked him if there is a limit to the number of times I would be able to have chemo in the future should my cancer return. He said there isn't. He said he's had patients who haven't been able to handle a second regimen, yet others who have had chemo 8-10 times. It…
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Relay for Life
Our local Relay for Life was last Saturday. The scheduled speaker had to cancel the week before, so they asked me to speak! I am NOT a public speaker, but I wanted to do whatever I could to show God how thankful I am for him bringing me through, so I said yes. Here is the link if you want to watch/listen. It is a Facebook…
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Chemo completed yesterday
I had my last round of chemo yesterday for the recurrence I had of my UPSC this year. I originally had stage IVb and was treated for that in 2010 with surgery and 6 rounds of Carboplatin and Taxol. This year's recurrence found the cancer had wrapped itself around the ascending colon and it was in the paracolic gutter and…
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surviving ??
Hi I am new to this site. I was diagnosised with stage 3 uterine cancer on 8/2/16, but no lymph involvment. I had a hysterectomy, chemo and radiation. In Febuary, I had a para aortic lymph node involved which shrank with Taxol but then started growing again. I am now on Doxal. I had a PET on Monday and get results…
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Pregnant and uterine cancer
I had uterine cancer and was pregnant. My story www.livmodercancer.com
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UPSC recurrence help
Hello all. I am hoping someone here may have some advice. My mother in law (70ish) was diagosed with UPSC almost 1.5 years ago (stage III something I believe). She had a complete hysterectomy, 6 rounds of chemo every 3 weeks (2 types carboplatin and something else that made her hair fall out), and internal (vaginal cuff?)…
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WooHoo 1 year today!
Today 1 year ago I ran the bell!!! Each 3 month check has resulted in, "everything looks good". I continue to visit my Naturopath and do all kinds of self care. I had a small setback when I had my heart procedure in June but I am slowly recovering from that as well. I don't have the kind of energy and stamina that many of…
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Ft scan denied
Well after astressful week involving my mother-in law, I received a call from the oncologist office that my HMO insurance has denied me having a scan. I'm very upset about this since my original diagnosis was 3C with clear cell. Yes, I have been clear for a year but wanted some assurance that I was still. Ok they said I…
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New to board and need support
Hi everyone out there, I am new to the board and have been so scared and stressed- I have my first scan on Friday to see if my chemo treatments are working. On July 3 I found out I have cancer. From then on it's beem a whirlwind. I have uterine cancer with mets in my lungs, While looking at my first scan, there were over…
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Surgery date
I have a date for surgery - 10/2. I thought I would've been relieved but it opens up a whole bunch of "what ifs". Colonoscopy, CAT, pre surgery - all frightening stuff.
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Uterine Stage IV B Reoccurence Vagina
Hello, This is my first post here. I'm 69 years old. In May, I had a complete hysterectomy which was preceded by six rounds of chemo,(Carboplatin & Taxol) which I tolerated well and was successful in shrinking the tumors. Surgery went well, and I was placed in surveillance, no additional treatment. This past week in early…
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Update after visit with Gynecologic Oncologist last week...
Had an appointment with my Gynecologic Oncologist last Monday, 9/11/17. It was nice to see him, but not nice to be back there. He examined me thoroughly and did a vault smear. He said that he thinks some of my symptoms (small amount of blood in underrwear a few times) might be from atrophy. Got a letter from his office…
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Anxiety
I want to recommend that anyone having anxiety get medication which has helped me a lot. My original physicIan ordered it for nighttime only - my oncologist has upped it to three times a day. It helps especially with the waiting for news and tests and lets me sleep at night. I've never used these medications before, but…
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Visit today with the oncologist
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lst Chemo
Tomorrow I go for my lst chemo. So many emotions, just want to get it over with. Thank you for ALL your support and feedback. All of you have given me the needed courage. Sandra
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My Doctor says no unnecessary scans...
So I just completed my first line treatment for stage 4 grade 3 carcinosarcoma, saw my doctor today and he says my bloodwork looks good and I am in good overall health so he will not be doing any sort of scan. This has me very worried as I have always heard of people getting scans after their chemo was done. Maybe I am ill…
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Home after robotic surgery at MSK- NOW THE DREADED WAIT
I went in for my surgery this past friday. The surgery was done robotically at MSK in NYC. The hospital & all it's workers are AMAZING! I went home Saturday feeling very sore. Sunday I felt a bit better- my husband and I went for a walk around the block & went out for brunch. Well, here it is Monday morning - hubby at work…
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Radiation Thread
I'm starting radiation on Monday and I was trying to find the thread on dealing with radiation, but I'm not coming up with it? I had a PET scan on Friday and I'm stressing while waiting for the results. My insides are still not feeling great almost 4 weeks after chemo and I don't know if it's that or spreading cancer. I…
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MMRT new diagnosis. What can I expect when I see the oncologist this week?
MMRT. What can I expect from the oncologist when I see him this week?
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Positive margins
I am curious about treatments when left with positive margins after surgery? My doctor was able to remove all visible cancer during surgery and was surprised that my pathology came back with positive margins in the vaginal cuff. When I asked him what that meant for me he said that would be sterilized with the radiation.…
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Treatment After Effects ?
I have Stage III, Grage 3 undifferentiated uterine cancer. In May, my 'routine' post-chemo CT scan showed mets to my retroperitoneal lymph nodes. I was about to start radiation, so the range was enlarged to include both pelvic and abdominal areas, going all the way up to my breastbone. I had 25 rounds, plus a 3-round…
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Recent diag carcinosarcoma (mmmt).
On 8/17/17 I was diagnosed with uterine cancer after a visit to the emergency room. I am since 2 weeks post op for a full hysterectomy (56 yo) and am scheduled to begin chemo treatments 9/28. This has all happened so quickly that I have barely had a chance to comprehend any of it! I now understand that the pathology…
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Should I go to ER?
So I have not been to my doc in at least 4 years. I'm 35, healthy and active. Not overweight. I have HPV. About 1 1/2 years ago I started having bleeding, like spotting after sex. It started every once in a while. Now its everytime. The last two periods I've had I also had some bleeding, NOT spotting, right in between…
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My journey began 12 years ago
Well, on September 13, 2005, at age 45, I went in for what I was told a "Routine Hysterectomy", and now here I am (gratefully) twelvie years later after being diagnosed with Stage 3a Grade 2 Edometrial Adenocarcinoma way back then. What a roller coaster! I could rant on about all the issues I have had throughout these…
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Healthy runner- how did this happen?
I am so confused & so are my doctors. I have been a super healthy person all my life- runner, vegetarian, thin, always on time with my check-ups. I had my ovaries & tubes removed about 5 years ago because I was prone to cysts. Went through menopause with no issues & out of nowhere had one episode of Post -Meno bleeding. My…
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post op visit
Had my post op visit today. It has been 4 weeks since my hysterectomy. My doctor recommends chemo which is to start next Tuesday. Even though my cancer was microscopic and removed with my hysteroscopy, because it is uterine SC he wants me to have 3 to 4 rounds of chemo. I will be given Paclitaxel and Carboplatin. I was…