-
Love Your Lady Parts Walk in Wash DC
Ellen, How was the walk/run this weekend in Washington DC? Any new news to report on? trish
-
beccabtown, how are you?
Haven't seen a post from you since you asked about fluid in your abdomen. Hoping you're ok.
-
Lou Ann, how are you doing?
Lou Ann, I've been thinking about you and wonder how your treatment is going? Love, Eldri
-
Hey y'all...
I am trying to get back to normal, whatever that is. I did have my 6th year clear in Oct. Heart steel beating but they found another birth defect. Leaving that alone for now. The fall did more damage than they thought. I did a CT scan that was ok, but I did have a bad concussion. My speach is somewhat effected. I can see…
-
Questions about caring for a patient with radiation enteritis
Hey everyone! I'm curious to see if someone out there had any advice for me as a caregiver to my mother who is almost 1 year cancer-free (thank you God) after having stage 3C Endometrial Adenocarcinoma. She had chemo followed by pelvic radiation (28 external, 3 internal, 1 external from side/behind) which wrapped up on New…
-
song about being bald
https://www.youtube.com/watch?v=sNaW6FyiJRI&feature=player_embedded# In found this fun uplifting song about being bald. though someone might be interested.
-
Red dots appearing under skin, what next
ten days after 1st chemo have itchy under the skin, flat, blood red small spots, hurtful if I scratch otherwise would not know they are there - several on my thigh, one on my chest, now one on my cheek - what next, everyday something new, yesterday bloody nose. Barely a day since first chemo that I haven't had something…
-
Chemo Update & Constipation
Received carboplatin on Tues and doing ok so far. Today, day 2, feeling a little more tired today and the constipation seems to be a problem. I took Colace and 2 Senokots this morning and will get Miralax later today but drinking tons of water so hopefully things will get moving soon. Anti-nausea meds work great so I am…
-
Kidneys?
I completed treatment in May (surgery, chemo, brachytherapy) for stage 1A uterine carcinosarcoma (MMMT) and papillary serous (they found both types). Was told I'm in remission (yay!). On both the pre-treatment and post-treatment CAT scans there were what was described as "low-density renal lesions" that couldn't be…
-
1st Chemo
Yesterday was my first chemo infusion. Port worked great still a little sore from it being put in Monday but it was only painful for a short second when the nurse put the needle in then taking it out. My nurse was amazing. I only received Carboplatin because my dr wanted to get a head start (I call them my little soldiers)…
-
My Job
So i went and talked to the director of my work today. Good thing i did becauce she was going to be out of the office the next couple of days and she had told me to contact her before the end of the month. The bad news was that the gentleman just under her is the one that works with all the highering and he was not there…
-
Another radiation question
Has anyone had abdominal fluid retention after external radiation? I'm having symptoms a little like what I had after surgery.
-
Dilator with internal radiation
i begin internal radiation tomorrow. I've been using the cool water cones I intermitently. The nurse told me that they don't advise use of the dilators until 6-8 weeks after therapy although sex is okay (not really interested right now!). That seems different from from all of you have done. Did you use the dilator when in…
-
Path Report
Path report today, endometrial adenocarcinoma IIIC2 grade 3, the uterus and 2 lymph nodes but everything else including omentum and pelvic wash clean....starting chemo tomorrow but only one chemo drug will be used this first time then on Nov 15 adding Taxol....my dr was very pleased how I am healing after 2 weeks...so no…
-
Reoccurrence of UPSC
Hi Ladies: I have some bad news to mention. I was diagnosed with a reoccurrence of UPSC (I initially had stage 1 in February of 2011 so it is over 5 years). My CA level has been 134 since mid August so I had a Cat Scan done the end of August and I had a Pet Scan done on October 12th and that is where the cancer has shown…
-
wondering if Hearing loss has been an issue with Carbo
After Chemo #1, experienced long, long list of issues. One was numb (like novacaine wearing off) teeth, achy left ear and throat. I still have a slightly achy ear so I decided to visit an audiologist before next chemo to get a baseline hearing test so I can monitor any problem or progression problem with my hearing. i am…
-
Update on Hip Pain.
Went to PT this morning and the therapist told me she wasn't sure she should tell me what the MRI of my left hip that I had done last Wed. shows but she did anyway. She says the MRI shows a tear in the gleteus medius muscle (muscle on the outside of the hip) where it attaches to the greater thochanter (lateral hip bone)…
-
need some motivation
Need some motivation. I was really excited the other day about being done with chemo and really i still am. Today is the day i would have been sick and i am so glad i am not doing that. I am going with a friend today that i havent hung out with much because i wasnt feeling good. I did do one thing with her during chemo…
-
Advocating for cancer research
If this isn't acceptable - please let me know and I will remove it.... As someone who has both Invasive Ductual Carcinoma (breast cancer Stage II) and USPC (Stage IIIC1) that were diagnosed with 4 months of each other I have been feeling the need to advocate for cancer research in some way. I went to Washington DC last…
-
Dragonfly Parable
Someone posted this on the Inspire Ovarian Board. It kind of captures how I feel about getting this diagnosis, changing because of it and then not having the others in my daily life understand that I am not the same person I was before. Others have said that it represents passing-on from this life for them. I thought some…
-
Brachytherapy question
I had my last external radiation treatment today (yay!) and start brachy on Monday. I have a question about side effects of brachy. Does it make you urinate more, especially right afterward? I have a two-hour trip home and would like to plan for any immediate effects. Thanks.
-
Metformin all on one page
I need your feedback if you are taking Metformin whether it be for diabetes and your a cancer patient or a cancer patient with no diabetes but taking it to help mets caused by cancer. What I would like to know is 1. Why you are taking it, 2. Strength of dosage, 3. How many times a day, 4. Results of taking it, and 5. Any…
-
adenocarcinoma arising from endometriosis (ovary)
hey folks... so I was originally diagnosed with Stage 1A, grade 1, endometrioid adenocaricinoma in 2014. i had a total hysterectomy with right salpingo oopherectomy. in other words, i left my left ovary behind. two years later, there's a large mass on my left ovary. the mass was stuck on my sigmoid colon so they had to…
-
2nd Pathology Report Para-Aortic Lymph Nodes
I am so depressed right now. My mom's pathology report for her second surgery came today. Five para-aortic lymph nodes taken out on the right side, 6 on the left side, for a total fo 11 lymph nodes in all. All 5 lymph nodes on the right show adenocarcinoma metastasis. The 6 on the left came out negative. Her omentum shows…
-
good news for me
My kids and i celebreted the end of chemo by going to lunch today. I know i was done three weeks ago but tomarrow would hae been the day i would be going to do chemo if i was still on my cycle and i am totally excited that i dont have to go. As much as i dont want to feel the pain of bracytherapy tommarrow i would much…
-
Metformin
Metformin has been studied for use along side chemo for endometrial cancer. Anyone have experience with this drug? Maryanne
-
1st Examination after surgery and chemo
Hi ladies.... I need some support- I have been trying so hard to get my "brave" on for this 1st exam tomorrow (19th) but I am not sleeping well and today actually shaking and emotional. I am going to share something with you that almost no one knows with the hopes that perhaps I am not alone??? This particular cancer is…
-
Did not qualify for immunotherapy
I cannot sleep tonight. Today we went to see an oncologist for the upcoming immunotherapy trial for endometrial cancer. Mum did not qualify for it as she is not "fit enough" for a trial. This was my last hope! The chemo does not seem to be working as mum's breathing is getting worse. She cannot even walk now. And to make…
-
pelvic and Hip Pain
I saw an old thread and wasn't sure if I should make a new one or respond to the old one, so forgive me if I chose wrongly. My cancer reccurrence was discovered in June, but the doc at Mass General in Boston told me that because I was feeling good and doing well, and my scan showed very small cells in 4 lymph nodes it…
-
Good news
It has been 1 year since my surgery and after radiation and chemo I just had my second appointment with the oncologist since my scan and I remain clear. I won't have another scan for six months. (I guess I've been radiated enough and he doesn't want me glowing.) Anyway I'll just be closely followed every 3 months. What a…