-
new here
Hi I'm glad to find this forum. I had Hodgkins Disease 23 years ago and thought I was in the clear. Really i got on with my life. About a month and a half ago I had a biopsy because the doctors found a cyst that had grown in a month time. The byopsy showed I had uterine cancer. Two weeks later I was in the hospital having…
-
UPSC Treatment
While I have been reading posts for several weeks, this is my first time on the dicussion board- I have so many questions! I had Robotic Assisted Hysterectomy 4/15/2016 with complete staging revealing a diagnosis of 1a UPSC. I feel very fortunate to have been diagnosed at such an early stage and fully anticipated given…
-
Carbo-taxol
I have been on Carbo-taxol for six months with minimal shrinkage of the six nodules in my lungs. Has anyone had to take more than 6 treatments. I was suppose to have chemo #9 today, but my platelets were too low. Does anyone know how long you can take Carbo-taxol? What other drugs can they use? Thank you for any help you…
-
First checkup after chemo today
While my doctor didn't use the word NED, he did said everything looked great and he would see me again in 3 months. He's laid back, but very aware that my cancer has a high rate of recurrance. He just said that we were in a watch mode, if I don't have any symptoms, then he was satisfied that I didn't need any scans. He…
-
I'm dancing with NED!
Hi everyone, Had my CT scan last week and saw the gyn oncologist yesterday. Extremely happy to say that after diagnosis of Stage 1A carcinosarcoma AND papillary serous, grade 3 uterine cancer and treatment (radical hysterectomy, 6 rounds of chemo, and brachytherapy) I am officially in remission/NED. Yay :) !!!!!!!! The…
-
Overdoing it
I was feeling so good last week! It's our busy season at work and ever since I "graduated" from physical therapy two weeks ago, I went back to work full time - either 9 to 5 or 10 to 6. Then last Friday we left work early to go to our youngest daughter's college graduation about three hours away. When we arrived, we took…
-
Others....
I hate to sound like a broken record or a stalker, but there are some people I am missing. Mainly Nempark. Now that Moli has surfaced, I am finding gaps or just glances. Nempark, if you read, how are you and your husband? I know Daylady checked in a bit ago, but how are you doing? I know Nancibee is taking a break,how…
-
New to this Camp
Hello ladies, I am so glad I found this site. When I originally Googled my discharge diagnosis "Endometrial/Uterine Adenocarcinoma (Hcc)", nothing promising came up. In fact, it made me have a panic attack, as I thought I had only weeks to live. My lab results will come back in approximatley a week. Aside from the above…
-
Possible Perimenapausal Uterine Cancer
I was just wondering if anyone had any insight for me. I am 42 years old. Had annual exam and came back abnormal with HPV. Had biopsy done of cervix and endometrium and came back normal. Just had an ultrasound done because my periods have been very heavy, large blood clots and last 7-10 days for about a year. Results just…
-
Moilmoli updating
Hello to all you wonderful and compassionate people that the creator brought into my life,thanks for your soul boosting posts and private messages ,that's the pills I needed today, oh ,my surgery was massive and oh so painful ,I am constantly in discomfort ,didn't get bowel movement Until today, cannot sit up any longer…
-
Stage 4b UPSC
My 71 year old mother was just diagnosed last Wednesday...looking for any information from anyone....
-
Blue, but don't know why
I try to go out, put on a smile, and live life. Today, I visited my semi favorite brew pub, hoping for a glass of wonderfulness, and a good appetizer. I could't eat all my flatbread, so I offered it to the two guys next to me (as I often do because I don't eat a lot). They, of course, wanted to buy me a drink which I…
-
meanings?
MMMT AND UPSC WHAT DOES THAT MEAN?
-
Brachytherapy
Hi Ladies of the Sisterhood of Kicking Uterine Cancers Arse (LoS KUCA),, Dumb but looking for levity.. I must say I have really really benefited from all of you and your straight forward manner in dealing with the evil one, cancer, your answers based on first had experience and your continue "faith" in yourself and each…
-
Side effects that bug me
While I know that these are minor in comparison to the life and death issues cancer patients face, these are some of the side-effects of chemo that have been bugging me: Losing most of my eyebrows and eyelashes in addition to my scalp hair has really been bugging me. I really dread looking in the mirror and seeing that ET…
-
Scan
I am scheduled for a CT scan on Monday. I have been on Metformin for 2 months now. I am still getting chemo. I have #9 coming up next week. The nodules in my lung started shrinking siqnificantly with the addition of Metformin. Please pray for good news on my upcoming scan. I am also worried that Moli has not posted. I am…
-
PT is done, but it's weird
I finished Physical Therapy on Monday and passed all my tests except one balance one but I'll keep on working at it. The weird thing is, the hair on my left eyebrow has falled out AGAIN. When I was in chemo only my left eyebrow and left eyelashes fell out but they grew back in. I thought I was imagining it but this…
-
Recurrence is another form of cancer
Hi all, I sincerely hope each of you beat this disease. After almost 3 years, I am still free from endometrial cancer. I posted on here about a mass coming up in one of my robotic incision sites. At first, no one knew what it was. By the time I hat a CT scan, it was presenting as an abscess. The path came back showing…
-
Okay.....
Ladies, I am seriously getting worried about Moli! She has not posted since the day before surgery. Nothing public or private that I can find! If anyone has heard, just give us a thumbs up! Moli, if you are reading this, I am on the hunt for you! God, I miss Alexandra and her KGB skills! Debra
-
Lou Ann updating
Saturday evening I had a mild heart attach. It was probably caused by the new chemo that I was on. So I won't be getting any more of that. So disappointing as it seemed to be working. SThey forgot to give me the moraine extended tabs that I was taking for my back pain so now I am also dealing with morfine withdrawal good…
-
Old About Me
Has anybody else noticed this? I was going to update my About Me page and the version that was there was one from about 8 or 9 months ago.
-
tail bone
Hello everyone: I have had uterine cancer in 2010 then in 2014 I had a colonoscopy and found out I had rectal colon cancer and had my whole colon taken out in February 2015 and ended up with a ilostomy bag. I have had another operatation because the doctors thouht I had bowel obstruction. AT that time, I was also biopsy…
-
Scan scheduled
My first post-treatment scan is finally scheduled for Saturday. I will be having a PET scan as my doctor feels that has a better chance of showing something since my pre-surgery CT scan did not show anything, though I had positive lymph nodes. I am surprised that I received a bunch of "Life After Cancer" information in the…
-
Moli updating
Hello comrades, I am leaving home this evening as my life changing (or life taking) surgery will be tomorrow at noon. Thanks for all the support and hugs that I have received here. I wish you all improved health,added strength and renewed courage as you all fight your individual wars. Do right by you by embracing life…
-
MoliMoli - Good luck tomorrow!
Just wanted to say that I feel it in my bones - you are going to do great in surgery tomorrow! That stringy thing is just around the bend! Please let us know how you are doing once you feel up to posting. Love and Hugs, Cindi
-
One More To Go
Hello beautiful ladies. We've been quiet the past few weeks but still check the board most days. My wife and I took a cancer break and went away to a little island near Barbados for a week to get some much needed rest between chemos. She slept between 10 and 12 hours a day and really got her strength back. Thanks to icing…
-
Finally some good new
2nd round of Avastin today and lab work was the best it has been for many, many months. I am no longer anemic although I still have fatigue. Best news my CA 125 dropped from 268- 118. Yesterday I had an appointment with a radiologist at the orthopedic place and he put an injection in my SI joint to help the pain in my back…
-
M-6 Cyber Knife radiosurgery
Good Morning, Ladies, Occasionally, I see adds on TV about the M-6 Cyber Knife. I know that the Lynn Cancer Institute at the Boca Ratan Regional Hospital and Jupiter Medical in Florida offer treatment by way of this method. The toll free number at the Lynn Cancer Institute is 1-800-994-5966. M-6 is a type of radiosurgery…
-
Nurses Week
This week is nurses week and May is Oncology Nurses Month. These nurses are angels on earth. Be sure to let them know how important they are to our recovery.
-
Sex
Hi Dear Ones, I have follow up with my surgeon tomorrow following March 27 DaVinci and abdominal hysterectomy. I'm eager to resume my sex life, but it's been 5 months and I was 20 years post menopausal before the surgery so I'm thinking it's pretty cramped, thin, and dry down there. I'm going through 18 weeks of weekly…