Uterine Cancer
Discussion List
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Discouraged.....
Hi everybody. I saw my Oncologist on Friday and we officially decided to discontinue Doxil. After three cycles, and a dose reduction, the side effects were worse than they had ever seen. She wants me to take several weeks and just heal, which is OK with me. I am UPSC Stage IVb. In 2014 I went thru major debulking surgery,…
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The waiting
Hi I have been here looking at some of the posts just to get a feel for the forum but now I am posting. In early Febuary I got a diagnosis of adenocarcinoma. It showed up in a routine Pap smear so the location wasn't exactly known but now I have had a cone that came back clear...so on to the uterus. I had an ablation about…
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19th chemo today Good day
i had my 19th round of chemo today (2nd Doxil) and everything went well. My CA125 was down after 1 round of Doxil from53-37 after progressivly raising on Taxol the last 4 times. Maybe we are headed down the right path again. Best news in a long time. My oncologisy added Deedron to the pre-med to see if it would help thye…
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My conversation with my gynecologic oncologist
I saw my gyne oncologist and he seemed pleased that I am closing in on 1 and 1/2 years since my hysterectomy with no signs of a recurrence. I finished my chemo treatment 1 year ago. That was the end of my treatment . Yah!! But what he told me surprised me . He said that 90% of my treatment was my hysterectomy and…
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Anxiety about my first "3 month" followup
i am new to the Board but I have been reading many of the comments from everyone and i see all the support. I am hoping for some advice. I was diagnosed with stage 1a grade 2 endometrial adenocarcinoma, endometrioid in late October. The treatment was total abdominal hysterectomy and bilateral salping-oophrorectomies with…
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My conversation with my gynecologic oncologist
I saw my gyne oncologist and he seemed pleased that I am closing in on 1 and 1/2 years since my hysterectomy with no signs of a recurrence. I finished my chemo treatment 1 year ago. That was the end of my treatment . Yah!! But what he told me surprised me . He said that 90% of my treatment was my hysterectomy and…
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Doctor making some tweaks for my 2nd chemo treatment.
I saw my oncolgest this past Friday to tell him I couldn't go on with these bad side effects from my 1st chemo. I was on day 10 of extreme fatique and suffering with no appetite ,nausea that the sufran wasen't helping and bad travailing bone pain. I thought I would have been feeling at least a little bit better by day 10.…
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uterine papillary serous carcinoma
i joined the group a bit ago. just wanted to kind of say hi in a new thread. my mom was diagnosed in 8/ 2012 with uterine papillary serous carcinoma. very surreal, and ~even though we are hopeful, still scary. 1st time around she had a total hysterectomy 6 rounds of chemo, and radiation. she is currently in recurrance. has…
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Doctor in NYC to treat papillary serus uterine cancer
hello, my friend was just diagnosed with papillary serus high grade uterine cancer. This was yesterday (catscan and utrasound). She was told to find an obgyn oncologist. No grading has been done yet. I do not know if you are allowed to share the name of your doctor on this site but if so, can you share the name of your…
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Doxil side effects
I am fairly new to this. Since joining, I been reading other posts, which has been helpful, but have been a little shy about asking my own questions. I have stage 4 high grade papillary serous endometrial adenocarsinoma that has matastisised several times. Each time we get it beat down, it finds a new place to hide.…
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TGIF..and on to other things!
An update! After 48 hours on prednizone (massive dose) the pain in my feet has subsided to where I can walk normally. Still can't get shoes on, but that will come. The chemo burn/rash is massive and going to take some time. Slightly better this morning, and didn't need pain pills last night so that's progressing too.…
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A good day!
Hello Sisters! I have been having a bad time this last week, and you have been there and I so appreciate it. I just wanted to share a couple of my little miracles with you and hopefully share a smile. Yesterday I had to go into the lab for tests and was DREADING it after the week I've had, can barely stand to be touched,…
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Metastatic endometrial cancer spread to my lungs
Last October I was diagnosed with endometrial cancer in my lungs. I had a hysterectomy five years ago and had check ups every three and later six months. Everything was great until a persistent cough sent me to my doctor who ordered xrays of my lungs. From there I ended up going to Moffit Cancer Institute to a gynacologica…
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If you are seeking evidence of hope
Check out the other discussion board, specifically Long Term Survivors. emily1171 posted an incredible thread yesterday that I think we uterine cancer ladies and associated loved ones ought to read. I have been known to stray from the uterine board to read about other cancers . emily1171's story was incredible . It tells…
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Treatment working, but stopped!
On Monday I had a CT Scan at the 50% point in my Doxil treatment plan. It showed lymph nodes shrinking (only area of spread) and nothing else to worry about. Treatment working. BUT.....on Tuesday I went to Dermatology because the side effects have been so drastic (major hand/foot; chemo rash/burn from hell); They got on…
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Need energy BAD
what do you guys take to wake up at all? Coffee-tea or something-thats ok with this meds that we take. They told me no green tea or this other tea I had bought-had rubbarb root in it says not to take because of the kidneys. Any answers will help!
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Endometrial carcinoma reg.
Hi, I'm new here. I registered on this site as my mother aged 48 got utrinel cancer type Endometrial carcinoma . Her tumor size is 37.0*32.0*50.0 mm. Can anyone tell me in which stage of cancer is my mom now and how ricky is this. what treatment we should prefer. Please help.
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should I go to the ER
Reg doc perscribed cough med. but still not feeling well-drink water all day-alot of bottles but go to the bathroom every couple of hrs chest not hurting as bad with cough med but have headache and not feeling well. Think its the blood pressure or is this just from the chemo? Go for 2nd round on thurs-fri of next week.…
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5 Years cancer free today
Just had my 5 year checkup for USPC and I am officially 5 years cancer free as of today. And my CA 125 which had stabilized after my surgery at 7 has now gone down to 5.1 The doctor said he doesn't often see it go lower after 5 years. So that is also good news. I had him look in one of my ears as dead skin (like you would…
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Major side effects
I was dx in jan 2014 with UPSC stage IVB. It had spread to the omentum area, but no organ involvement. Major reduction surgery, followed by 6 mo of chemo and vaginal brachytherapy. Got to NED in July 2014, but had a recurrence in several lymph nodes in Dec. 2014. Caught very early with CT/PET scan, no tumor, masses, or…
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Went to pulmonolgist (lung doctor)
He felt after looking at the CD of the CAT scan, I did have radiation pnuemonitis. Since I have had the cough so long he wanted to rule out anything else. He did a bronchoscopy today ( a test where they pass a scope to look into the lungs), and he again felt it was the pneumonitis. It does not show pneumonitis with the…
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This struck a chord
I heard this the other day and the strong, resiliant people I have met on this board immediately came to mind "It's not what happens to you in life, it's how you deal with it" That is now on my fridge...along with "Ageing is inevitable. Maturing is optional" Just in case I forget to enjoy life!
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Anyone had anything similar? worrying times
Hi All, I have been worrying myself silly since my last transvaginal scan a month ago, Just to give you a description of my history. May 2013 I suddenly started to bleed very heavily, losing clots and my periods were lasting anything from 10days to 20 days. I went to my GP who put me on medication to ease the bleeding…
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Chest pain and Coughing-when I lay down
I have had this chest pain when I try to sleep. last week I had a chemo treatment of Avastin. I got it 2 weeks after the other chemo drugs of Taxol-Cisplatin-zometa those were on day 1 and 2. It seems this last one the Avastin made me feel the sickest and it was the smallest bag. I had a chest cold for about 2 months now…
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Kaleena--- OMG Can't believe you took the time to enlighten us.
Kaleena, thank you so much for taking the time to update Kumar and myself. You have given me so much hope. I can't believe that you had soft tissue mass for many years. Thank you so much for sharing. Also I can't believe you had three pet scans in one year. I really do hope that you do not have to have surgery and your…
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To Kumar and Nempark
Dear Kumar and Nempark: I just wanted you to know what I have been going through and it may help you a bit: As with any scan, you need to look at the bottom under Impression. Although the main body of the report can be somewhat disburbing, it is in the impression part that tells you what it really means. I got a CT scan…
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CT SCAN results--- similar to Kumar
hi guys, ct result is similar to Kumar. My dx 2009 1a mmmt grade 3. had the works Ned since. recently has a spotting. Pap smear normal. New Doc in Florida convinced me nothing to worry about. Internal exam had no findngs, but said I can do a Ct if it makes me feel better. Ct reads as follows: asymmetric soft tissue…
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CT SCAN results--- similar to Kumar (double post deleted)
hope this one is deleted.
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CT Scan Report
Hi, Could you please help me with your own experinced? ALL CT SCAN is normal But Urinary bladder had few points> Urinary bladder is seen in distended state. Evidence of focal area of soft tissue attenuation involving the posterosuperior aspect of urinary bladder wall. It measures 3.2 and 2,4 cms. Minimal Stranding is seen…
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Looking for some emotional support
Hi I am new to this board, I figured this would be a good place to go to. I recently found out that I have to go for a hysteroscopy and a uterine biopsy. I am so scared and haven't had this done before. I feel like I have No one to talk to. I feel sad and irritable, Not sure if this is normal or not? I have an appt for a…