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Uterine Cancer

Archives for January 2015

lost
My wife was diagnosed with ovarian and uterine cancer Tuesday night. This was very unexpected and has crushed us. She's having surgey to remove both organs next month. We're worried about pulling through the surgery and the chemo treatments that follow. Dr says if all goes well, life expectancyis 1-4 years, that seems like…
Grade 1 endometrioid adenocarcinoma and lymphadema
I'm considering only having a complete hysterectomy vs a hysterectomy and lymphadenectomy based on reading many studies that show virtually no change in survival rates for women who have grade 1 disease and are treated with a hysterectomy with or with out lymphadenectomy. I was told that the risk of lymphedema is low but…
Thank you DoubleWhammy, Hybrid, Hopefull & Pinky
I got a call from my doctor's office for a recent polyp biopsy and they told me it is negative! I can't believe it. I want you to know how much I appreciate your advice. And I know that when you answer posts, you're not just helping me but so many others that are scared and looking for answers. I will pray for you all that…
Ascites on CT Scans after radical hysterectomy and 8 rounds of chemo for UPSC
Hello UPSC Aunts, I say "Aunts" b/c it is my Mom who was diagnosed with UPSC. It has been awhile since I have been on here but it is CT Scan time again and I am getting a bit anxious for her. Each scan says she has a small amount of possible malignant ascites in her pelvic region that is getting slightly larger. She cannot…
Any one out there being tested for CA 19-9 in addition to CA 125? For people with mets/progression/
Due to rising protein and glucose levels I am now being monitored for this as part of the boards they test every three weeks prior to avastin. (For those who don't know I am living with advanced stage UPSC that has Mets and is considered progressive and am chemo resistant.). I think this is related to the Avastin potential…
Pelvic floor therapy
Barb mentioned pelvic floor therapy on another post. Thought I'd give it its own topic since I'm being selfish as I've just started it. My gyn/oncologist referred me to a urogynecologist because I have stress incontinence since my hysterectomy. I so agree with Barb that the exam was uncomfortable and long, but I sort of…
Recovery Time
I am so new to all of this and appreiciate any input you can give me. I just finished my chemo for leiomyosarcoma uterine cancer. I was working a 40 hour week and now can barely make it a few hours before fatigue sets in. I know it must vary a lot, but can anyone share how long it took to get back to a regular work day?
Info about Polyps
Yesterday morning I had a uterine polyp removed that I didn't know was there. The doc was trying to do a uterine biopsy when he spotted the polyp and immediately took it off. I had some spotting with brown blood throughout the day yessterday. Now, this evening, i'm bleeding bright red watery blood. Does anyone know the…
Just got home from the Gyno...scared!!!
I just got back from the gyno after years of symptoms including abnormal heavy watery bleeding, cramps, excessive discharge, pain, etc. I had a negative pap in September and also HPV negative, but i had a "hemorrhage" I had a transvaginal US in mid-november which didn't show anything but a few small fibroids. My main…
Bloating and a recurrance.
Can bloating be a sign of a recurrance. I had my complete surgery done in June 2014 and 5 rounds of chemo and internal rad. I am do for my 2nd ct scan since surgery on Feb. 9th. Should I just wait.My stage is 2 MMMT. I have Celiac and eat gluten free but something is going on. Maybe I am just eating to much. thanks
Diagnosing Uterine Cancer
I go next week for a biopsy and an ultrasound. I am only 36. I am concerned as of course anyone would be. I am wondering about the early syptoms others had that lead to their diagnosis. If anyone would share I would greatly appreciate it.
Symptoms & Random questions (not diagnosed)
Hello. I'm 42 (premenopausal) and have had pelvic symptoms for about 5 years. Terrible pain, bloating, cramping, bleeding, and excessive discharge. I had irregular bleeding many times, but I made an emergency trip to the clinic for a pap test because of extremely heavy bleeding 14 days into my cycle. The blood was watery…
First MRI scan results post Cyberknife
Well, ladies, the first results are in! My oncologist rang me today and told me the tumour has shrunk (was 4.1 x 3.8 x 2.8 cms now is 3.6 x 3.7 x 2.0 cms). This is very good news. We weren't expecting huge shrinkage, as the tumour is mixed up with scar tissue which will never disappear, but any shrinkage is a good sign…
Updated:question about D&C using Hysteroscopy
Hi everyone i've updated my situation in last comment, pleaseeee reply if possible. I'm a member of kidney cancer board, not here. This Saturday I'm going to have a D&C using hysteroscopy to remove a polyp in the endometrial line. Here are my questions, how should I be prepared for it? Should I be fast? Does it hurt? Can…
Stage1a tratment
Hello all i posted my doctor staged my cancer is one A he does not plan to follow up with chemotherapy or radiation is this the typical course I am worried about a recurrence thank you
Are there symptoms before a recurrance of
Hi again. I was dx with MMMT uterine cancer in JUNE 2014 and go for my 2nd CT scan after surgery on Feb. 9th of 2015. I am grade 3 stage 2. I had taxol/carbo and internal radiation. Did anyone have any pain or funny feeling in the pelvic and stomach area before a recurrance. The waiting is terrible. I am positive but I…
NED 5 YEARS-mmmt - JUST SPOTTED
Hi Guys, been reading all posts don't do much writing since I lost my daughter. I have had a total hyst in 2009 MMMT stage 1a grade 3. 6 rounds of chemo. Friday after a long day of stressful driving, went to the b/room and saw bright red blood on toilet paper, I almost fainted. I have moved from where my Doc is and at a…
I am back from surgery and it is good news!
I am back from surgery and it is good news. 1a. I have been thanking God daily and still praying for my "sisters". Still sore on the outside and inside but managing okay.... QUESTION???? Want to ask those who have had robotic, do you have those bumps around1-3 cms at your incision site? Feels like round nodules under the…
Fundraiser for my Sister In Law
Hi All, I am new to the forum but wanted to know if anyone has had success with fundraising? My sister in law is 45 and was just diagnoses with stage 4 inoperable undifferentiated uterine sarcoma. I am trying to do everything I can to help them. I made a gofundme account <Content Removed by CSN Support Team> but I'm trying…
Pelvic Radiation Disease
Ladies, Another below the belt cancer survivors I met through the worldwide web did a lot of research as a result of her treatment and found a lot of information about pelvic radiation disease. I thought I would share the website with you all: http://www.pelvicradiation.com
My promised update, from Moli.
Hi everyone, I have not forgotten you, I often read the posts but had no new news to relay. while I waited to have my follow up scans, Some of you may recall that I had total hysterectomy on April 2nd,2014 ,for stage 3 Serous Endometrial Cancer, then follow up scans on August 28th 2014 with great results, NED .I was…
Post laparoscopic hysterectomy (morcellation) of endometrial adenocarcioma
Hi. I am trying to find anyone who has had a laparoscopic hysterectomy (morcellation) and found out AFTER the surgery that they had endometrial adenocarcinoma. I am finding many scary stories. Does this procedure always spread the cancer?
Still having fatique 2 1/2 months after they stopped chemo
I have MMMT uterine cancer. I was DX June 2014. I had a complete hysterectomy and 17 nodes were clear. I have grade 3 stage 2. I am still very fatiqued at times from 5 rounds of taxol and carbo 3 weeks apart. I also had 3 bracatherpy treatments.The last chemo was Oct 21st 2014 and the last rad was Oct 31st 2014. My legs…
Re: Passing of Arlene Romano
Dear Ladies: It is with very sad news that Arlene Romano, who had Stage 3 of UPSC passed away on Wednesday, January 7, 2015. I knew her from the Uterine Board and she lived not that far from me in Delaware County, PA. Her funeral services will be held this week. I met Arlene last year in March for lunch at a nearby…
Any Experience with DOXIL?
Hi. This is my first post. I was diagnosed in Jan 2014 with Stage IVB and had surgery, chemo, and vaginal brachytherapyy. I was NED in July 2014 but had a recurrence in December when they found some enlarged nodes in my pelvic area on a CT scan. That was followed by PET which confirmed cancer. So far no tumors, no spread…
CAt scan results 3 months after SBRT
i went to the patient portal and got my CAT scan report from 1/2/15. It said that the right paratracheal node measures 1.7 X 1.2 which previouslymeasured 3.4 X 2.7. My previous report said the node was 4.1 X 3.6. What great results from the SBRT. However it also said" in the right upper lobe with volume loss suggestive of…
Adencsarcoma with sarcomatous overgrowth of lsiomyosarcoma
This is what is written on my pathology report and it's scaring me. My oncologist said he feels and data shows I should of chemo and radiation because of this type of invasive cancer even though he said I'm early stage 1a. Plus the cancer spead a tiny bit into the muscle of my uterous. Every other test biopsies came out…
surgery next week question on lymph node removal
I have my surgery next week and my doctor was going to do a complete hysterectomy. The one thing he is not doing is removing all of the lymph nodes. Instead he is doing a sentinel lymph node biopsy. has anyone had that and is it accurate? or should I push for more lymph nodes to be removed? I read the sentinel lobe biopsy…
A little support please...
Hello Everyone, I hope you are having a wonderful New Year thus far! It is so heartwarming to read the wonderful posts on this forum. I oftentimes read, but rarely post. I guess I'm asking for a little support now. I recently had a CT scan and I have a small lesion on my liver. I had an MRI today to see if it's a met or…
Happy new year
It's good to be here to see another one. My best to all.

Uterine Cancer

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