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September is Gynecological Month
To all my sister warriors, Since September is National Gynecological Awareness Month I just want to say put on your Peach colored ribons or shirts and shoult from the highest montain tops that we will find a cure for uterind cancer. When I was diagnosed last November, all my friends ran to their Gynecologists scared silly…
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ABOUT THOSE STOMACH PAINS-THANK YOU ALL!!!
Went to GI, he read the endoscopy and said that it is a gastritis. Prescribed Dexalon one a day and I have been feeling better. Had my three month check-up with Gyn and results negative. So I can breathe again. Thank you all for being supportive and concerned. I pray that we all continue to be healthy. Big hugs to every…
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new
new at this
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Threads about statistics
Hello everyone. I feel it is best not to get caught up in statistics. As some have stated, our bodies our individuals, and treatments have come along way. There are also other factors of how we take care of ourselves. I was surprised to meet for example a few people at radiation, who continued to smoke during their…
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To Moekay
MoeKay, Your story is insprirational, I read your post in a thread about survival rates. I am encouraged by your experience in NED. I had stage 3C, surgery, removal of some lymph nodes, and am on the sandwich therapy. So far I have completed the first three chemos, 5 weeks of radiation (of a target area that extended…
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Jazzy Jan-how are you?
Jazzy Jan, I just found the boards again-was unable to locate them after the website format change. I always find you such a source of inspiration. How are you? I am on the sandwich therapy -and have completed so far my three chemos, five weeks of radiation, and now completed the 4th chemo just over a week ago. How are you…
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Haven't been on boards for a while couldn't find them on new format-Have completed 4 chemos, and 5 w
Just wanted to say hi to everyone. I have not been on the boards for a while as I was not able to locate them after the website format change. I stumbled on to them again yesterday. I was diagnosed with uterine cancer stage 3 in Feb 2010. Had 2 major surgeries end of March and early April. Surgeon removed all of the cancer…
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New Research on Radiation & Brachy on Stage 1 & 2 Endometrial Carcinoma
Does Brachytherapy Improve Survival in Addition to External Beam Radiation Therapy in Patients With High-Risk Stage I and II Endometrial Carcinoma? Am J Clin Oncol. 2010 Aug 1;33(4):364-369, MA Crosby , JD Tward, A Szabo, CM Lee, DK Gaffney ABSTRACT Introduction: The benefit of adjuvant external beam radiation therapy…
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connie
i just looked up lynch syndrome and was sad to see what a difficult condition to live with for all these years. i don't know when you first learned you inherited it, but i certainly know it must have been very hard for you and your family. it seems like you've gone through a lot in your life, yet you seem to still have…
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Extreme Fatigue
I have chemo #6 this Wednesday morning. I never had a good week after chemo #4 and went right into Chemo #5 with a cold and sinus infection. So I have not had a good week after chemo #5 either. Now I am headed to my 6th and last Chemo in 2days time. I am extremely fatigued can't walk across the room without having to sit…
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My mother diagnosed with UPSC
My mother (late 70s) was recently diagnosed with UPSC following a radical hysterectomy. Cells found in lymph nodes removed at the same time. We are waiting for the results of the surgeon's conference with colleagues this coming Wednesday, but the surgeon has said she thinks they will recommend 6 chemo treatments (3 weeks…
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UPSC Recurrence
Test results: CA125 jumped from 63 to 91. PET/CT showed 2 supraclavicular nodes with high uptake of SUV (17- suggest malignant) with a small (about 1/4 inch) splenic node (3.3 uptake) likely false positive. My lymph system was highly lit up by PET on initial scan (In retrospect, I was probably stage 4 from beginning rather…
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Newsweek Article
Linda found the URL for the Newsweek article. I think it is really interesting. New drugs are certainly in the pipeline to help us. http://www.newsweek.com/2010/09/07/what-we-can-learn-from-curable-cancers.html Love you all, Diane
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Dr. William Li on Dr. Oz
Did anyone else see this segment on Dr. Oz? This researcher is talking about eating antiangiogenic foods to starve cancer. Antiangiogenesis is how some drugs work. I *think* it will repeat on the Fox Channel Monday 9/13 possibly. Same message as Believeau and Servan-Schreiber. Dr. William Li on Dr. Oz – Antiangiogenic…
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MUGA scan: here's what it was like (a pre-"Doxil" heart strength test)
I just had my 1st ever MUGA scan and it was so different than what I expected that I thought I'd share what it was like just in case any of you ever have to get one. If you are to take a chemo known to be hard on your heart (like Doxil), you will probably have to have a baseline MUGA scan done, and then regular MUGA scans…
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Invited to participate to CLINICAL TRIAL of # XL147 at Fox Chase in Philly!
I received a call today from Dr. Mark Morgan at Fox Chase Cancer Center in Philadelphia offering me the opportunity to participate in a clinical trial: ( http://clinicaltrials.gov/ct2/show/NCT01013324 ). The trial is in PHASE 2 and is for recurrent endometrial cancer, for drug # XL147. Dr. Morgan said that if I am ever…
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was just reading yesterday re: ct and pet scans, and now can't find the post. anyone know whereof i
darn, just can't find the fairly recent posts (i think) on ct and pet scans--alot of the posts had to do with nodes that were slightly enlarged and then dissolved or resolved or got smaller, etc. cannot find this at all, and i've been looking. could have been under a different thread altogether, but just am wondering if…
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New Treatment
Hi All, I've been looking but not posting, many things have happened since my last post. I completed 6 treatments of Carbo/Taxol in June, a scan in July came back clean. Then a few weeks afterward I started spotting blood from my vagina,rushed to my GP, she found a tumor in my vagina, biopsy show it was the same type of…
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medicare: does anyone here have medicare now???
sisters, i just found out i in fact have medicare, part a, even though i never signed up for it, and have had blue shield from partner's work as my primary insurance. now i learn that blue shield is secondary. if anyone has knowledge about how this works, would you let me know?? blue shield has refused to pay for a pet…
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connie and recurrence in '08
connie, thanx for sharing that information; makes your thriving today all the more remarkable. when you had your mets, what treatments were recommended and what did you decide to do?? it really was helpful to learn that you were treated successfully back then, and you're here to tell the tale. everyone's individual success…
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Ear problems
Went to my 5th carbo/taxol treatment on August 24th. I was coming down with a sore throat and cold that morning but they went ahead and did the infusion anyway. Cold lasted much longer than usual and I still have a cough and my ears have a lot of pressure and I can hear my heart beating in the right ear which is driving me…
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Does anyone have this information?
Hi, My name is Susan and I'm posting for JJ, who just received a bad report after finishing her 18 weeks of carbo/taxol chemo last week. She is understandably upset, so I'm posting for her asking for help from all of you lovely ladies who are so unbelievably strong and upbeat in your unwavering battles!! Soooooo, here are…
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OUTCOME OF MY RECENT SURGERY & A QUESTION
I have been very remiss about not posting this information here since you all have supported and helped me so much, but my recovery has been painful, difficult, and slow. I have heard from my doctor and also had my post-op exam and my cancer was fortunately very early stage, Stage 1 grade B and I will require no further…
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Hi, I just joined hope I am doing this correctly
Hi, July 15 th 2010 diagnosed Stage Iv B endometrial clear Utreine Carcinoma. Total hysterectomy,oopherectomy and everything else north,east,west and south. No symptoms preceding this except two weeks or so of Mild to moderate constipation. In retrospect turns out I have stenosis of cervix and nothing dripped, I.e. Blood,…
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Hi, I just joined hope I am doing this correctly
Hi, July 15 th 2010 diagnosed Stage Iv B endometrial clear Utreine Carcinoma. Total hysterectomy,oopherectomy and everything else north,east,west and south. No symptoms preceding this except two weeks or so of Mild to moderate constipation. In retrospect turns out I have stenosis of cervix and nothing dripped, I.e. Blood,…
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cancer treatment centers of america
anyone have experience with these hospitals
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A little distraction
Got a little distraction this week following PET scan while waiting for results tomorrow. My daughter had an emergency c-section yesterday, over 7 weeks early, and I've joined the 'grandma' ranks! Little guy is 4.5 lbs. and already off ventilator, in the NICU of course, but doing well. Mom had a difficult pregnancy…
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visit with onc this morn. #3 of 3 mos check up. Something felt at top of vagina.Should I be freking
I don't post alot on here but I do follow the posts and prayer for you all..Linda, Diane, Connie you guys are so brave. All of you women are and I get so much hope and strength from you all. This morning I had my pap and the doc was down there an awful long time and she said don't worry I am just trying to stop the…
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visit this morning with my gyn-onc: the good, the bad, and the ugly
sisters, saw my surgeon this morning for my 3 month check in/up, and here's the news: the good: my external and internal exams were "pristine", i reminded him that he usually says my vagina looks "fabulous," and he replied that he's expanding his vocabulary.... so, even though my acupuncturist and medical oncologist both…
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Rising CA125 Levels After Change in Chemo
Has anyone had a rise in their CA125 levels after changing chemo drugs? My CA125 levels were steadily decreasing on Carbo/Taxol. Due to increasing neuropathy I had to switch to Doxorubicin and after three rounds of chemo my CA 125 has risen 17 points to 114. I'm trying not to worry about this until I get the results of my…