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Uterine/Endometrial Cancer

Archives for February 2010

How soon after?
Hello Ladies :) I will get Round 2 of Chemo on Monday. This time around I will be getting the Carbo/Taxol instead of the Cisplatin (as I have completed Radiation)... Since I did not lose my hair with the Cisplatin and I know I will with the Carbo/Taxol, what is the timeframe you all have started losing your hair. I have…
Clinical Trials
Has anyone here participated in clinical trials? I am specifically interested in Ixabepilone.
targeted radition "tomotherapy" for USPC recurrence
I have had "fun" month since learning of recuurence less than 6 months after end of my sandwich treatment (Carboplatin/Taxol Chemo at beginning and end sandwiched with 30 internal radiation treatments and 3 brachytherapy).Had just started to feel like better (except for the everpresent diarrhea - thank goodness for…
Has anyone experienced lymphedema?
Just wondering if any of you have/are suffering from lymphedema? For the past few days I have been having some pretty significant swelling in one of my legs. I was under the impression if you were going to get lymphedema that it would be soon after surgery and radiation. I had surgery 9/08 and finished radaition 12/08. I…
My Mom - Disappointing News
I just heard from my mom after her CT scan results and consult with the chemo dr. The dr. said she is not strong enough for chemo. It's a month post-op and the oncologist said chemo was her best chance, so we're disappointed that we can't go after it right away. They are going to try an estrogen inhibitor for now. There is…
Survivor's Daughter - Introduction
Hello everyone, I've been reading this board for a few days and it is one of the more helpful things I have found in my quest for information. My mother (age 57) was diagnosed with Stage III uterine cancer in July 2008. She had a hysterectomy/oopherectomy, internal/external radiation and a course of chemotherapy, which she…
1st of 2 oncologist opinions on what to do with clear PET & rising CA-125 after 1st recurrance
I could hardly wait to get back and post the fascinating appointment I just had with my chemo oncologist. My talk with my chemo-onc was as exciting and confusing as the surprise clear CT/PET scan results I got last week. But I left my appointment with new hope and am anxious to share that hope with the rest of you. (Just a…
Mom's Pathology Report
Hi There, We got my mom's pathology report today and wanted to share the results with you. Would be great to hear some thoughts and compare notes. So here goes: FIGO Grade 3 Serous Adenocarcinoma Stage 3C Myometrial invasion at 80% Tumor size 8cm in uterus and 3.1cm in cervix, ovaries and f. tubes were clear Lymph Nodes:…
serous carcinoma vs serous adenocarcinoma
Hi There, Would really appreacite some input. We just got back from the Oncologist and received the pathology report. Is there a difference between serous carcinoma and serous adenocarcinoma? I can't seem to find any info on it... Thank you! Amanda
First Chemo went really well
Hi All, My first Chemo with Taxol/CarboPlasin went well. Start to finish it was 6 1/2 hours, good thing I took lots of Video, snacks, blanket, and my Ladybug plush bug to stroke. My husband stayed the whole time, it's no wonder I love him so much. I drank 6 bottles of water, had to get up to pee a lot but I think it helped…
Review : Management of Women with UPSC May 2009
Hi There, I came across this review while doing research for my mom. I thought it was pretty interesting given that it discusses the research that has been done up to this point for UPSC and what they recommend as the first line of defense and for recurrence. It gets a little technical but thought it could be a good…
Bouncing back
Hi everybody, I hope you are having a good day. I am 68 and go for my 9 month check up next week.I finished chemo in May and radiation in June. I still work but sometimes find that I just plain get too tired to finish the day. Is this the 'new normal?' It seems that when I hit the wall, I'm done. Does anyone else have that…
How long do I wait?
I have been inspired by everyone's stories. My mom is a breast and ovarian cancer survivor and I watched her go through so much when I was in high school. I wish she had had something like this for more support. Maybe because of her history I am over reactive. I am only 35 and have had irregular periods for just the past…
Too scared to talk...have to be strong...
I found out yesterday that the polyps I had removed during a D&C the day before were cancerous. I am to scared to actually talk to anyone about it....don't want to loose my cool. My mother passed away several years ago from breast cancer and now my son is scared that I may be sick like grandma...I'm trying to be…
Caregiver Stress
I need to vent a little. My husband has been so supportive during my surgery and recovery but is struggling with his own health, emotional & physical. I think today he was close to a melt down, he is getting professional help from his doctor but his need is coming just as my chemo starts, it's unbearable. I know this will…
Peritoneal Recurrance Has anyone had intraperitoneal heated chemotherapy?
I was Stage 1C with positive washings. 42 lymph nodes negative. CA 125 was 16 after surgery (we never got presurgical CA125) During Carbo/taxol six cycles it went down to 5.4. After completing treatment it went up to 7, 8, 9, down to 7 again, then 15 and then 62. PET scan showed early carcinatomasis of the peritoneum. I am…
Soy products
I love pasta and have found some more carb friendly soy noodles that I was thinking about trying. I know there is a lot of controversy in with cancer and soy products. I am just wondering if any of you have any input. What have your doctors said about eating soy products? I don't seen my doctor again until next month, but…
In remission and upset. Need some guidance/thoughts.
I have been in remission from endometrial cancer for just 3 weeks now. I have been dealing with it for a few years, and I opted NOT to get a hysterectomy since I am only 32 years old, and wanted to be able to have children (however slim the chance may be at this point). You would think that with news of remission that I…
Best Doctors
Hey There, I was just curious to know if any of you had heard of bestdoctors.com. My mom's work offers this service free of charge and wanted to see if anyone here had utilized this service themselves. Basically they will provide you with the names of 3 "best doctors" in your area based on peer reviews from other doctors.…
waiting, wondering and searching
Hello everyone. I have an endometrial biopsie scheduled for Friday and am wondering if what I have been experiencing is familiar to any of you. I had my last period 14 months ago after years of perimenopause. Irregular and heavy bleeding. I was thrilled to have gone over a year with no period! I had hot flashes, chin hairs…
Myometruim Invasion Please do roll up endometrim adenocarcioma type
Hi, Please everyone tell me their pathology report above type of cancer. My mother report was Endo adenco type with less than 1/5 myometruim invasion. Please help me. Thanks KUmar
First Chemo Session Coming up, some questions
Hello All, I have visited here often but this is my first post. Feb 22 will be my first Chemo Session with my cocktail being Taxol & Carboplatin. My infusion will be every 3 weeks for 6-8 sessions, my port will be inserted this Thurs Feb 18. I had a radical hysterectomy Oct 26th, abdominal incision which completely healed.…
UNofficial results of my CT/PET scan: DRUM ROLL>>>>>>>>>
My DIL is a CT-scan technician at the same place where I got my PET/CT scan yesterday and was able to get the inside scoop from the radiologist that read my scan, and …DRUM ROLL,,,,, MY PET/CT from yesterday WAS GOOD!!!! The radiologist told my DIL that NOTHING had uptake on the PET (NOTHING LIT UP!!) The enlarged node…
Post-Hysterectomy fluid build up
Hi There, I have a question for my mom- she had her hysterectomy about 2 weeks ago and has a lot of fluid coming out vaginally. She goes through about 3 pads in one hour in the morning but then it tapers off by afternoon. There isnt any blood- just fluid. We got really concerned since she was swelling up so we took her to…
Reaction to Taxol
I had my first round of chemo on Friday the 12th. Apparently I had a textbook, immediate reaction to the Taxol - right after the nurse finished telling me and my husband that in 7 years of infusing the drug, she'd never seen a reaction. The doctor thanked me for teaching the nurse and his residents, since it's a teaching…
Freaking Out...
Hi...I'm not sure where to begin, so I guess I should go to the beginning. I've been post menopausal for a little over two years. Several months ago I had an episode of spotting that lasted a couple of days. I really paid little attention to it as it was very, very light. I only noticed it when I wiped after using the…
Feeling a little silly...
Hello all! I haven't posted in awhile, but have been keeping up with you all via this board. Welcome to all the newbies...glad you've found us. I need to vent/rant a bit as I've been feeling a bit down for some reason. I feel like I should be ecstatic as I'm celebrating 2 years NED in a couple of weeks...but I'm not. I've…
How Long Did your Doctor wait
Hello everyone, I am 45 yr old today and have been having symptoms that alone are nothing, and then I realized that together they are sx of cancer.. All this started in Oct 09 Irreg heavy bleeding nonstop for a couple of months with clots, then no regular period, but whitish discharge nearly everyday, bleeding that is…
Tired of telling everyone the same thing over and over
How many of you have to explain what you are going through and how many more treatments you will have to do? I have people say to me "oh you must be almost done now" yet just last week I told them I have no idea when I will finish. It just gets so frustrating that I just don't want to answer anymore. My own husband doesn't…
cancerous ovary sliced open 2" during hysterectomy surgery
I just got a copy of my lab report, a couple of months after my surgery, and it says that the surgeon accidentally cut my cancerous right ovary open for 2 inches. Will that lower the odds of my survival? It seems like that would not only release cells metastatically, but regionally too, spreading cancer to any internal…

Uterine/Endometrial Cancer

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