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Happy Halloween!
Happy Halloween everyone....we all know that we are are strong and unafraid and if sometimes we are weak and scared, we always get back to strong and unafraid. Keep fighting the fight and don't eat too much candy! Susan
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CERVICAL DISPLAYSIA
Hello Again. I've asked questions on this before, but just trying to get some experience feedback on this if possible. Daugther (27) has been diagnosed with cervical displaysia. Her levels (from low grade to now at Cin III, confirmed with biopsy) have fluctuated over the last couple of years. Oncologist recommends either…
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Poor kid! Enjoy! Out of the mouth of babes!!
http://www.youtube.com/watch?v=pulZ3jgLM6o
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CA125
So my CA125 is 96 after being supposedly cancer free for 3 months. I saw my oncologist on Thursday, I dont think he seemed to concerned. He ordered another CT scan and then I see him on Friday. It is pretty scary especially since I feel great with no symptoms. Has anyone had this problem and if so what happened.
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Hernias
I have been reading, especially on Facebook, about a lot of ladies getting hernias. Are we supposed to be especially careful about liftng or doing other things? I was never advised much about "after" by any of my doctors. I am stubborn and if i need to get a bin down and no one is around for example, I will at least…
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What Do You Think.......
Alexandra is doing right now?????
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Having a big ole self pity party this weekend. Hate doing this but
Hi Ladies, I haven't posted in a while. As of late August my disease is still stable!! Thankful for that. Still doing Doxil ever 4 weeks (except most treatments are delayed because of low platelets). Last treatment was 10/16. I see my dr. this upcoming Wednesday. Ladies I am SO fatigued. I am angry because I feel like…
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STAGE 1 INVSASIVE LOBULAR CARCINOMA
Oct 23, 2013 - 8:05 pm Hello, Ladies. I posted some time ago about a suspicious lump on my CT scan. After mammogram and biopsy, here is what I was told: Clinically it is Stage 1 Invasive Lobular Cancer. It is estrogen receptive. It has been caught early, is only 1/2" in size, and is treatable. I will see the surgeon on…
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Tell me about Gemzar/carbo
I was diagnosed OVCA March 2012 and had three rounds of carbo/taxol before surgery June 2012. Serous, stage 3c, high grade, with an unrelated stage 1 uterine cancer. After surgery, I did IV/IP cis/taxol for six months. CT looked pretty good and ca125 was "less than5." Since January 2013 I have been on taxol every 28 days,…
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It's my vacation from cancer.
After only 9 months NED my very first ovarian cancer recurrence was confirmed in September. I have no symptoms yet, I don't want any more chemo and PARP trial doesn't start until end November or December; I may or may not qualify depending on the results of pelvic biopsy that has not yet been scheduled. It is getting cold…
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I'm so tired
I am exhausted, I can barely keep my eyes open but I just wanted to share that at my chemo Friday my numbers went down! They can me down from 148 to 91, it was my third round of Doxil and if it did not come down it would have been my third failed chemo but it worked and I am very lucky. Goodnight everyone, be safe. I live…
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Happy Birthday Eileen!
http://www.youtube.com/watch?v=P-SMJtcTBqU
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Food poisoning in hospitals cafeteria
October 15 I was in Hospital for chemotherapy, Avastin. In lab they did check my BP, was little bit high. So me and my husband stoped in cafeteria to eat and relax, hoping my BP will go down. In waiting area they check my BP, was OK for Avastin. In next 10-15 min they called me for chemo and checked my BP again , was high.…
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I am so pissed off at Cancer right now
Yesterday my 8th grader came home fron school and told me that the principal talked to the 7th and 8th graders to tell them that one of their fellow classmates had been diagnosed with a serious illness. We also got an email from the school telling us about it and it had a link to fundraiser announcements for the family. I…
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"happy" cancaversary
One year ago today (10/18/13) my mom was diagnosed with ovarian cancer, boy what a year its been. So far she seems to be cancer "free" we had a bit of a scare with her ca 125 numbers going up, her surgeon seems pretty optomistic though that she isn't symptomatic and that she feels good! She has an appt coming up next week…
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London Calling
Hi all just thought I'd update u on my progress: underwent bilateral mastectomy with immediate DIEP flap reconstruction on Saturday. All gone well last drains out today & home on Sunday. Got the news this morning that there was NED in pathology so no further treatment required YAAAAAAY :) )))))) Hugs to you all Michelle…
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GENETIC TESTING QUESTION
Hi, Ladies: My daughter went for a biopsy yesterday due to mild cervical displaysia. Her doctor asked if I had ever had genetic testing, and I had in 2006. He said that was too old of a report, and there are new tests available. So, I want to call my doctor to give me a written request for OVCA genetic testing. What should…
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Ovarian Cancer Canada Webinar Series - updated
Webinar # 1 Sept. 25, 2013 "Ovarian Cancer 101 – for women living with ovarian cancer" presenter Dr. Jessica McAlpine, British Columbia Cancer Agency download PowerPoint or listen to the recording http://ovariancanada.org/News-Events/National-Events/Ovarian-Cancer-Canada-Webinar-Series?lang=en-ca 38 min into the recording…
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Best place for women's gynecologic cancers?
I am considering getting a second opinion on my uterine cancer. Where do you think is the best place to go in the country? My cancer is a rarer type, aggressive, and behaves like ovarian cancer rather than the typical uterine/endometrial cancer.
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here we go again?
I was just in here a few days posting how great my mom was doing, she got the all clear in July, well last night she was laying she "felt something" inside her and her gyno today said he felt nothing and was sure it was scar tissue, but ordered a stat ultra sound becuase her CA's are higher. I am just wondering how…
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Mixed Bag - CA125 up by CT pretty good
Hi all Sorry I haven't been on for a while. I have been lurking and reading but not quite ready to post. Last week more results and my second cycle of Etopocide. Unfortunately my CA125 went up again from 534 to 650. However chest abdo and pelvic CT pretty good. Lungs showed two areas of concern which we may attack with…
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Past and present
I was looking back at old posts. It pained me to see the names of so many sisters we have lost. But I got a chance to see how many are still here that I hadn't seen post for awhile. I don't read all the posts so I think some ladies are missing when they are not. It made me happy. Karen
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My CA125 is inching up...
I had my latest CA125 and it is 14.4. It has been inching up the last 3 times, from 4 then going to 5.1, 8.8 and now 14.4. I know this is still considered within normal range but in my in my mind I am having a recurrence and am full of fear. Has anyone had a rising CA125 without it being a recurrence? Is this the way it…
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My gf has stage 1 Ovarian Cancer please help with any sugestions
Hello. My Girlfriend was diagnosed with stage 1 ovarian cancer and has been doing chemo for 3 month now. Doctor said there was no change since she started chemo. Cancer is not progressing and not getting better. I read about natural way of treating OVC from different articles which came from some of the OVC Survivors. One…
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have OR date for debulking finally
dx in may with advanmced OC ca 1258of 4000 & mets in organs. tx 3 crbo/ taxal chemos 3 wks apart- after 1st session good mets shrinkage but not good enough for debulking so repeat 3 treatmens - las t ab out 2 wks ago. don't see doc until 17 Oct BUT hospital phoned with OR datre of Oct 29 -which means Doc has seen results &…
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Miss Arizona USA contestant battles rare ovarian cancer
Dozens of young ladies are busy preparing for the Miss Arizona USA pageant next month. But while most of the contestants are only fighting for the crown, one Scottsdale woman is also fighting for her life. In July, 25-year-old Kristina Anderson was diagnosed with a rare, aggressive form of ovarian cancer and began…
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Ca results
Does anyone know if UTI infections can raise the CA?
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Haven't posted in awhile
In July mom (Chris8588) found she's cancer free (happy dance happy dance happy dance) and she's been doing wonderfully! She's back to work part time. On the 18th it'll be one year since we found and boy what a year it's been. I am so proud of my mom for everything she's been through and survived! My mom is the most…
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Monday, Oct. 14th - Canadian Thanksgiving
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Doxil shortage
I heard from my ONC that there is a North-America wide Doxil shortage. Other brand names are Doxorubicin, Caelyx (in Canada), Myocet, Adriamycin PFS, Adriamycin RDF, Lipodox or Rubex. Looked it up and yes, that's true. http://www.fiercepharma.com/story/jjs-doxil-shortage-last-until-least-end-2014/2013-10-07