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Ovarian Cancer

Archives for July 2013

Castor Oil For Adhesions and Scars
I've used castor oil packs to get rid of adhesions. Another bonus is that they make scars disappear.
This is FANTASTIC
Hi ladies, I posted this on the Uterine board but thought you all would enjoy as well if you didn't stroll over to that page. I love this and hope you all enjoy this too. News Release: A Call to Action on Behalf of Women with Below the Belt Cancer We know women’s lives are saved when we look at cancer through a pink lens.…
PARP drug
I know many of our sisters are on PARP trials . This is fantastic news on the phase 2 PARP BMN 673 for breast cancer. Yes, breast, but read on. I was told that the OVCA results were expected to be released shortly and are as good or better. It seems the BMN 673 had a 50% response rate with numerous "complete" responses.…
1 year since DX
Hello Ladies, It's been a very long year since my most recent dx. I have been trying to keep the fear in the back of my life, but find it a real challenge at times. I am doing better but increasing pain has me worring a little more. The last ct looked good, but there were some new issues that I need to deal with. My ca 125…
Ovarian Cancer Conference in Boston
Hi, I am going to the conference in Boston this weekend put on by the Foundation for Women's Cancer at the Wyndham Hotel on Saturday. Is anyone else going? Kelly
CA125 question
Hi All, Got my CA125 results today and it came in at 8.9. After 3 rounds of chemo and debulking surgery, my CA125 went from 2200 to 4 and stayed there through the rest of chemo and for about 9 months after that. Then I got a 6.9, last time a 5.1 and this one was almost 9. My head tells me it's going to fluctuate but my…
Hi Loves
Just a quick note to say "hi" and let you know that I'm on a month break from chemo.... 3 1/2 years straight, I thought I deserved a break! I'm having a ball. We're taking our two older granddaughters to Maryland this weekend to see their younger cousin, planning a memorial golf tournament in honor of my brother, who…
1 year on CSN
Exactly 1 year and 500 posts ago I joined CSN. 2 months after OVCA diagnosis, 1 month after BRCA+ test result, in the middle of my second round of chemo; 2 months before debulking surgery. I was overwhelmed, emotionally broken and suicidal. I was fortunate enough to find this board and meet all of you wonderful "teal…
If you knew 20 years ago???
My gram was diagnosed with multiple cancers. One being ovarian. Which from what I understand that cancer is very dangerous and has the highest death rate due to how quickly it grows and the lack of accurate testing. With that my mom is most likely going to have her ovaries, tubes and uterus removed now as she is already…
Been MIA and in pain
Welp, I am back again. I ended up back in the hospital, again. I am having so much trouble just trying to find a compassionate doctor who doesnt tell lies!! I had to go have my ostomy stent changed, and it turned into a three day ordeal; one day was surgery BUT: they never knocked me out!! They were trying to remove the…
Cold Cap Therapy: Or how to keep your hair through chemo
http://www.integrativeoncology-essentials.com/2013/02/keep-your-hair-with-scalp-cooling-cold-cap-therapy-during-chemotherapy/
Book: " Proof of Heaven" , Eben Alexander, M.D.
My husband get a book for me on line. I finished read it a same day I resieved it by mail ! If some body interesting in topic like this, you can go to www.eternea.org.
Sad News: Hissy Fitz
To my sister warriors, I learned today that our dearest friend and supporter, Carlene Mullins (aka, Hissy Fitz), passed into the arms of Christ on Friday. My heart is breaking as I write this, because for so long I have put off contacting her. I do not know the cause of her death, whether or not it was related to cancer is…
Leesag
This is in response to your post on another thread. Welcome back and I am very happy to hear that you're NED and doing well. You are the definition of "survivor". I just can't get over what you wrote about your husband. Unbelievable! How can someone be so selfish and self-absorbed after everything you went through with…
Update
I enjoyed a wonderful 6 mos remission but have been battling bowel obstructions the last 3 weeks. Mostly in the hospital with NG tubes! Ugh! So the plan now is to send me home on TPN and have chemo to shrink the cancer and open blockages. I really think things are getting better but am afraid to take a chance without the…
Update
I enjoyed a wonderful 6 mos remission but have been battling bowel obstructions the last 3 weeks. Mostly in the hospital with NG tubes! Ugh! So the plan now is to send me home on TPN and have chemo to shrink the cancer and open blockages. I really think things are getting better but am afraid to take a chance without the…
Of interest to those who are NED with BRCA mutation
New trial NCT01847274, sponsored by Tesaro, Inc. not yet recruiting. A Maintenance Study With Niraparib Versus Placebo in Patients With Platinum Sensitive Ovarian Cancer Niraparib, formerly known as MK-4827, is an orally active and potent poly (ADP-ribose) polymerase, or PARP inhibitor. A Phase 1/2 monotherapy study has…
new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
Had chemo and radiation today
Radiation at 7:00. ...then visit to MD. She told me my markers were up.,but wants not going to get chemo because it wasn't good for my bone marrow She checked with my Radiologist and he said it was ok to get the chemo since I am getting very low dosage of rads. I was glad cause markers went from 19 to 38 ..this tell me I…
Amazing Technology
http://gizmodo.com/this-smart-scalpel-can-smell-cancer-as-it-cuts-818330933?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+gizmodo/full+(Gizmodo)
brand new questions
I just found out I have Ovarian Cancer on July 12th. I should first say I live on Maui. It was a strange thing on June 20th I thought I had a bladder infection after a vaginal sonogram and a ct scan my OB/Gyn decided I needed an emergency hysterectomy because my ovary had flipped. After opening me up they decided it was…
Been absent for awhile
except for posting on someone else's thread. Have felt crappy since I started chemo on May 7th but even worse since chemo on June 25th. I had to skip my scheduled chemo on July 18th because I had diarrhea for five days, extreme fatigue and low blood counts; platelets were 58 and neurophils were 4. I am anemic and…
3 Month Check Up Today
Today was my 3 month check up. It was also the first appointment with my new gyno since we moved. I was there for an hour. She is super nice and wanted every detail of the last year of my whirlwind ride with ovarian cancer. Se was very thorough and I love her. All went well. Everything is normal. I guess I am off for 3…
What to expect/ be prepaired for
My Gram has been diagnosed for 3 totally seperate cancers. Anal, esophgis (SP) and ovarian. she had surgery to remove some but a lot was still in there. She is 75 and does not want to do any treatmetns and letting nature take it course. Our family does not know what to expect during this time and how to help her. She has…
Three days before my daughter's wedding, and guess what? SHINGLES!
So far, just some minor itching and discomfort. They're going to be calling me in some medicine later this afternoon. They're on the right side, along my waist. Over night a few more came up on my stomach. Well, nothing's stopping me from enjoying my daughter's wedding Friday night. Carla
Artificial Ovaries
A proof-of-concept study suggests the possibility of engineering artificial ovaries in the lab to provide a more natural option for hormone replacement therapy for women... http://www.sciencedaily.com/releases/2013/03/130326151131.htm Once they hit the market, who is with me for the "Group Buy"?
"Drug Interactions Checker" - a neat tool...
http://www.drugs.com/drug_interactions.php Type in a drug name and select a result from the list. Repeat the process to add multiple drugs. When complete, save your list for future reference or check for interactions immediately. Also check for interactions with food and alcohol. I just found out that taking Premarin with…
Hello Beautiful Ladies!
Hi all-- I haven't posted here in a while. I come from the breast cancer forum (dx at the age of 32). I check up on you ladies sometimes. You're in my prayers. For those of you who don't remember me, I lost my grandma to ovarian cancer in 1998. She was my mother. I miss her dearly. I pray for all of you to see the light at…
Back on board
Been a while since I posted. I am doing well but am still dealing with some side effects. I continue to freak out every three months when I have my CA125 and have experienced a great deal of stress with hair loss and nerve damage. However, when I read how brave my teal sisters are on this site it brings be back to reality…
scan
So I had a follow up with my oncologist after having a ct scan and was declared cancer free. That is the best thing to hear so relieved. My doctor brought up the subject of genetic testing especially for breast cancer now that I have had ovarian cancer. He told me that if it comes back positive I should consider having a…

Ovarian Cancer

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