Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Archives for February 2011

question for Carolenk
Hi Carol, My sister in law just called me about a class she attended and the women claims she cured her husband of advanced brain cancer using Frankincense Essential Oil. She also went on to state that Sloan Kettering is using it in their therapy. (They are???? I haven't heard about it.) Anyway, I know you are very…
Weight!
I still can't figure out why I am not a size 4 with all that I'm going through! I initially lost about 15 pounds, but it has managed to creep up. Is it really crazy to think of joining Weight Watchers while on chemo? I can't imagine that I ever will be thin from cancer. I suppose I should be grateful I'm not a sack of…
discouraged
After four rounds of carbo/doxil, which didn't work, my Doc switched me to carbo/gemzar(first week carbo/gem., second gem, week off, then start again) I had labs drawn on Friday and my platelet count was 43. They wanted me to go in this week-end for an emergency draw and today my counts were 20, not enough to get a…
Feeling DOWN :(
I'm having a really horrible time of it at the moment :( My husband, who is really a good man, has been very miserable and short tempered for the past few weeks, i have to tread on eggshells around him which is quite stressful. When i ask what's the matter he says things like 'it's been a tough 9 months' (since my dx) and…
PPC vs OC w/ carcinomatosis
Tina and anyone else interested I was diagnosed w/ seropapillary w/ carcinomatosis at the end of August, 2010. I was not diagnosed with PPC because the pathology report found cancer in both ovaries. But since my diagnosis included "carcinomatois," I think the two conditions are very similar. Both are the "epithelial" type…
activated charcoal
hello i would like to see if anyone had heard about benefits of activated charcoal to lessen chemo side effects. friend of mine who worked at onco instritute in Moscow told me that they had huge study on that topic years ago, that patients who took activated charcial few days - to a week prior to chemo had less side…
For anyone near the US/Canada border interested in a clinical trial with IV Vitamin C infusions
I have no idea whether or not there is any cost associated with this trial, but for those who are not in remission, and would be interested in Vit C infusions, but have been deterred by the cost, I found a clinical trial at Jewish General Hospital in Montreal, Canada that is recruiting patients. Here is the criteria:…
Heard some good things about Hexalan pill chemotherapy for ovarian cancer
On another discussion group (by telephone), several ladies were on Hexalan, a chemotherapy pill, for ovarian cancer. Has anyone here used this particular chemotherapy? And, if you have, was it successful? I know the ladies on this discussion group, several of them were without evidence of disease for a year. Any…
anyone hear from NCEllen?
I remember she feared a recurrence. Anyone know anything?
I hate this disease
I am having platelet problems with gemzar and was researching old posts. I have been on the board for a while and came across so many posts from those who didn't make it. I found myself crying. These ladies were the best of the best and so helpful to all of us. It distresses me that there are so many new members and so few…
What does ascites pain feel like?
I don't know if I have it but I've been off chemo for a long time now and I have terrible pain in my midsection right above the belt line and below. It's been almost a week now. I have gas and a bit of constipation too. Could this be ascites? I don't know what it feels like as I don't think I had it before. Thanks, Kate…
what does the doctor really mean?
I don't get it. Our friend Gerri, has finally been dianosed. After a couple months of saying peritoneal cancer, her debulking surgery and labs confirmed stage 4 ovarian. Gerri has lost 40 pounds since she first starting feeling "off" in November. The tumor was fast growing. It was not seen on any scan in December and by…
Question for Linda (clamryn) Not sure if I got it right, sorry
Hi Linda, I read your note to Nancy I have a question for you. I, too, am on Avastin and what I'd like to know is what blood thinner are you on? Is it Coumadin? I was on Coumadin previously and since I've been on Avastin, the dr. told me I had to go on Fragmin, an injectable blood thinner. Have you experienced any problems…
Blood test for Ferritin level
My Ferritin level in my blood was above normal. Normal is 13.0 - 150.0, mine is 342.8. My doctor told me cancer caused inflammation in my body and this is why ferritin level went up and theres nothing we can do about it! But I read online: high level of ferritin in blood can damage organs like liver and heart!? ( does…
Cisplatin
I was diagnosed with Ovarian cancer stage III in 2008 and at this point am considered "stable". My doctor has changed my chemo several times, due to some side effects or he felt it wasn't doing the job he felt it should. He now mentioned the use of cisplatin and am wondering if anyone has used it and what if any were the…
cause of rising liver levels
I just got off the phone with my oncologist. There was a big discussion about my scan and other doctors were asked to look at it. It appears I developed blood clots in the vessles leading into my liver. The cause of this is the Avastin. I will be starting on a blood thinner. It is uncertain if I will be receiving Avastin…
Hiccups after chemo
Does anyone notice that they have "attacks of hiccups" after chemo? I do. I am especially interested in hearing from people with PPC or stage 3-4 OC. Just wondering if this is common or just me...I can't find any information on the Internet about the phenomenon. thanks, Carolen
My Mom just had a "septum" port inserted yesterday.
Does anyone have one, and why do doctors opt for a port of that kind, as opposed to the other I have seen? I learned with a septum port the skin still has to be punctured and this bothers me because my Mom has been poked and proded enough!!!! :(
How often do they usually giver they PET scans
went for my 9 month check up, i asked if I could get my PET scan early, he said he usually does not order one if your ca is low, but he would get me one if i wanted it. does anyone here know how often they usually do them
Interesting article in today's Oncology STAT on IP chemo & dense dose regime
Ovarian Cancer—New Thinking on Old Regimens 2011 Feb 23, Nelson Teng Nelson Teng, MD, PhD, is Director of Gynecologic Oncology and Associate Professor of Obstetrics and Gynecology at Stanford University School of Medicine. Dr. Teng is also Program Director for the Stanford/UCSF Gynecologic Oncology Fellowship Program in…
Weaving a Few Threads on a Sleepless Night
Last week, three people I know died. Sarah, a 28-year old newlywed (sarcoma); Max, my family doctor of 50 years; and Kara, a 45-year old neighbor, who accidentally drowned in her backyard pool. Kara was in her workout clothes, early AM, evidently cleaning something on the patio, and fell into the icy-cold water. Her…
I'm new with a port and have a question
Last year I finally gave in and decided to get a port at my local hospital. For years, I didn't want one but my veins couldn't take it anymore. I like my port but have a question. Has anyone had any problems with their ports tilting, as the nurse told me, mine was "tilted". I told her that I thought it happened in January…
1st good news to report in AGES: My CA125 dropped 200 points after 1st round of Avastin/Cytoxin!
Today I had my 3rd Avastin infusion, but don't have the results yet of the CA125 labs I had taken just prior to it. But I did get my labs taken last week just before my 2nd Avastin infusion, and my CA125 is down 200 points after the 1st round of Avastin/Cytoxin. I know that Avastin can cause your CA125 to go up and down…
Blog: MSKCC doctor's wife has cancer
Thought some might find this link interesting. When the Doctor's Wife Has Cancer well.blogs.nytimes.com A doctor at Memorial Sloan-Kettering Cancer Center feels like a first-time visitor in his hospital after his wife receives a cancer diagnosis http://well.blogs.nytimes.com/2011/02/21/when-the-doctors-wife-has-cancer/
Do something....what's the worst that can happen?
Dr Sabittini thinks I am more pro-active and have better computer skills than a lot of his patients. He says I underestimate my ability to advocate for myself. Maybe. But if I can do it, so can the rest of you. If your computer skiils aren't all that great, recruit someone to help you. The government website for clinical…
So hard to hear her cry
I just got off the phone with my Mom and she was crying her eyes out. It breaks my heart. She was saying she is tired of being tired and not feeling well all the time. She has felt terrible for the last year. She was been doing non stop since June 22nd. She did carbo/taxil for 7 treatments, every three weeks and now she is…
Halfway thru the vaccine trial
I just got home last night and was sooooooooo happy to land in DFW's 70+ degree time zone. New York was cold, but then we went to Connecticut to visit family for a couple of days and it was FREEZING. So far I have had literally no side effects, unless you count a slight redness at the injection site, and even that's gone…
Chemo Brain
I used the search engine but didn't get an list for "Chemo Brain", and I started getting confused going through the posts. I say confused because I am *certain* that there is a post about it somewhere, however, I cannot locate it. So ... ... ... Brief Summary: 3/15/2010 - 3 dreams in one night that I had cancer 3/23/2010 -…
Rash from Doxil
I have received 3 doses of Doxil. I was warned of a rash that could appear on my feet, hands or sores in my mouth. So far I have had none of these but I have a terrible (sunburn like) rash under my arms, under my breasts, and now on the trunk of my body and around my waist. I wore loose fitting clothing as I was told for a…
Problems posting on discussion board
I just wonder if I should stop trying to post or if nobody is meant to read my postings--I have had several disappear and I lack the motivation to re-post. Could it be a problem with AOL? thanks, Carolen

Ovarian Cancer

Discussion List