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Is Chemo work for you?What kind of chemo you are on and number of cycle. Your side effects and CA125
Hello my dear teal sisters! Lets share some informaition about treatments. So fare I am on my third chemo line treatments with my 2C ovarian cancer after second reccurency, February 14 was 4 years of my journey. I hade carbo/taxoter and hertheptin -my initial chemo, March-julay 2007, than carbo/gemzar January-june…
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Wonderful News
Just wanted to share that I went to oncologist this week and everything looks great and ca125 remains unchanged and since it's been over 5yrs now, he has released me to once a year follow ups! I wanted to share my good news with all you wonderful ladies on here, please keep the faith and stay strong, there is light at the…
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Sometimes I feel her slipping away
Over the last two weeks my mom has lost 6 lbs. She has now gone from 135 lbs to 88 lbs. The doctors say don't get caught up in the numbers such as CA 125 levels (Mom's lowest is 3,300) but it is so hard not too. The doctors changed her meds two weeks ago and other then the acid reflux medication i don't feel like they are…
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Ports for Chemo
My mom,80 years old, who has been dealing with her cancer for over 4 1/2 years, will have a port inserted on Tuesday, before she begin her next and newest chemo. Thoughts on the port, good thing, bad?
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Avastin/taxol regimen
My avastin/taxol regimen is a 3 week cycle. Avastin/taxol week 1, taxol week 2, avastin/taxol week 3. 1 week off. I just had my 2nd dose of taxol yesteday and still have no hair loss. Doc says on the lower weekly dose it takes longer to fall out. I did buy a new wig just in case.
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rising ALT&AST
These liver function test continue to rise. One of my doctors think it is chemotherapy induced toxicity. I emailed my Doc in NYC this morning. When I searched online no where did I find it is a complication of liver mets. As of now I have no liver mets. Likely causes are chemotherapy induced or blocked bile duct. I haven't…
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Help with web site
Will someone tell me how to make a friend where I can contact somebody directly. I don't know how to do that on this site.
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carcinosarcoma
hi everybody. my name is adina, i am from romania, bucharest. on 2010, octomber, my mother was diagnose having ovarian cancer. she suffers an surgical intervention.after this intervention, the result was: malign tumor, teratom. the tumors (both ovaries were affected) were remove, totally. in short time after surgical…
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mmmt
my wife has mmmt she had a hysterectomy and chemo now spreaded to back at t-4 and doudenum area adrenal glands and a spot on the liver
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A Positive note
I have faced a lot of adversity over the past decade or so. I watched my Mom fight a recurrence of breast cancer she had in 1973. It came back in her bones & lungs-they gave her a year at best- that was Christmas 1992...the week before she died she was in Vegas. She passed in June 1997. I was my husbands caretaker after…
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Made it to another birthday!
Today is my birthday. i am now 44. :) Last year on my birthday I was in ICU after my debulking surgery. I remember crying and my husband (my AMAZING husband) telling me, it's ok baby, next year your Birthday will be awesome! My nurse and my respiratory therapist came in my room and sang Happy Birthday to me. At that time I…
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help with neuropathy
hello i am a week after my second treatment of carbo/taxol and neuropathy is horrible, it is annoying and nothing i can do about it please tell me if you have any advise i have tried hot bath - hepled for little bit, pain medication helping but not much i have read that eating ginger helps... any other suggestions? Victoria
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my hair is not falling out
I have a question for those of you on dense dose taxol. I started dense dose taxol in September and lost most of my hair after six weeks or so. When I took a 6 week break, my hair grew back very rapidly. I have been back on dense dose taxol - 60mg x m2 (100mg) every week for 3 weeks, since January, and it is not falling…
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Black TAXOL TOENAILS: & new study report
I had no idea that cold pack gloves and slippers during infusion could prevent the black falling-pff toenails caused by some taxane chemos! (made my think of Carlene's post on her toenails from taxol & my own blackened nails! Here's a new report that just came out: Skin Conditions Can Have Severe Impact in Cancer Patients…
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This Is What Happens When You Have Had Ovarian Cancer
Good Morning, I will back up to a couple of weeks ago. I start a new part-time job. I am on my feet for a couple of hours a day, so I start taking alot of advil and aleve for joint pain. 2 weeks go by and I start having alot of stomach pain. Shooting pains when I eat very high up and just all over abdominal pain. I know I…
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Fiance` has cervical cancer.. Help please
Hey everyone, this is a new thing for me i guess.. I am in love and just found out tonight that my fiance` has cervical cancer. She is scared and so am I, I want to be strong for her and tell her all will be ok. Is this true? I mean the only cancer I have ever known is my friend who died of lukiema, and my close close aunt…
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coming to the end of my dense dose taxol
Hi everyone, I have not updated in a while, so thought I would check in. I started dense dose taxol and carbo in September after flunking doxil, and then taking the summer off. My CA125 immediately dived to 22 after a couple months, but neuropathy, a cardio issue, and fatigue drove me to plead for a break over Christmas.…
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Would you all be honest with me please???
Ok, you all know my mother's liver tumor grew over an inch in 2 months, over x-mas. The PARPS sis not work. She's now on 115mg of taxol every 3 weeks,,,,then off a week...she seems to be doing much better...her attitude is good.....her gas is VERY bad....she is fatigued a lot, but we are attributing that to the chemo. Now,…
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Platinum-resistant disease
Are there any good stories from or about people with platinum-resistant disease? I feel so hopeless right now after my appointment at MD Anderson. I guess I am going to have a good cry. Thanks a bunch all. Kate
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Nan - Goatiegirl
Nan, how are you doing? I have been praying for you. Linda
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blood clots
Last year I developed a small blood clot during my oc surgery. For 1 year I was on Coumadin. Has anyone received chemotherapy and been on coumadin? I understand that blood clots usually dissolve within 6 months and would eventually like to get off of a blood thinner. If anyone has had any experience with this please let me…
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ABT Parp Inhibitator
I know there was a clinical trial involving Doxil and the ABT Parp Inhibitator. Has anyone been able to get on this trial and receive the Parp Inhibitator and not Doxil. Everything that I've been reading on this site indicates people were given Doxil first. If anyone received the Parp Inhibitator, how is it working?
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2nd vaccine injection and all is well
I had the second vaccine injection last Friday (Feb 11th) and have no side effects at all, other than a bit of redness at the injection site. No soreness, no fever. I am going back Thurs and will get number 3 on Feb 18th. After that I may move to the Wednesday schedule, which is when they normally see Phase I trial…
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just couldn't bring myself to do chemo this week
Hi Dear Hearts, I've been chemoing for the past thirteen months for my 1st recurrance (diagnosed 3C/May 2006)/doing carbo/gemzar on a three weeks turnaround since last Sept. The last several carbos have brought allergic reactions, so although I've been able to get through them, it's taken tons of steroids and endless…
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avastin & insurance bill
I just recv'd a statement from my cancer center. They bill my insurance $10,891 for a single infusion. WOW.
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Hi all.....
Happy Valentines Day to you. Hugs and be well....Silver Fox 15 year survivor of stg. 4 ovca. No recurrence to date. Keep the faith!!!!
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Worried about losing my health insurance
Hi, I'm new here. I was diagnosed with Stage 3c ovarian cancer in Sep 2010. I have had surgery and everything was removed except a cancerous lymph node on top of my pancreas. I finshed my 6 cycles of chemo about 3 1/2 weeks ago. I am currently being mapped for radiation treatment to the lymph noded noted above. The…
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Bad Day
It is Sunday. I got my mail from Saturday and my daughter was in the car with me. The letter from Advance Radiology came with the results from Mamograghy: "Need further evaluation..." I kept cool, don't want to alarm my daughter. I have a doc appointment this coming Friday and hoping it is just a form letter all cancer…
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Today is my birthday.
Today is my first birthday since my diagnosis on March 16, 2010. I decided to throw myself a party. So last week I made the guest list and planned the menu. The next day I decided not to have a party because it would be a lot of work. A few days later I decided I wanted the party (no ladies it's not the chemo, it's just…
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Oncology Drug Shortages Proposed Legislation
Please weigh in with your senators ! Amy Klobuchar and Bob Casey have proposed legislation to address oncology drug shoratges. If you research, you will find that there are serious ongoing oncology drug shorastges (If you are curious, there is full picture on FDA Drug Shortage website). This legislation will give early…