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Ovarian Cancer

Archives for July 2010

Avastin - new data
I am wondering if anyone on Avastin currently had any change in their regimen due to the newly released information. For anyone who doesn't know: WASHINGTON — U.S. government health advisers say unanimously that a follow-up study of the Roche drug Avastin failed to show meaningful benefits for breast cancer patients. A…
Still Hanging Around Here
Good Morning Everyone, Just wanted to tell everyone that just because I am okay right now, does not mean that I am not still reading the posts and praying for everyone. I have been NED for almost 14 monthes. DX'ed May of 2009. Stage 2B. I hate it when everyone goes away just because they are okay right now. I, we, need to…
UPDATES ON BONNIE
I may not be able to submit Bonnie's Caring Bridge here everyday, so to make it easier for all of you, just go to 'caringbridge.com'. Click on 'visit', and in the address bar put in 'brlemke'. Hope this helps. I'm watching it daily, too. Yesterday's post was encouraging. Dearest Bonnie: Sending prayers and hugs for…
God's Perspective
One of our "older and seasoned" ladies of my Thursday Bible study sent this to me and I wanted to share it with each of you. The Power for Living today had a heart touching story of the worship pastor, Lyndon Plett, whose mother was murdered when he was only five. His father & step mother were killed in an accident when he…
Trial began today
Premeds in port(benedryl - almost put me to sleep, decadron - gives me a stuffy nose for about 1/2 hour!, and pecid) went fine. First time for pepcid. Chemo went well, granddaughter (4 1/2) came in for a couple minutes (nice to be close to our daughter for treatments now)and asked why I was getting blood - first time for…
Surgery went well
I had my debulking surgery on 6/21/10 and it went well. My surgeon said he removed 95% of the cancer. I had a complete hysterectomy with omentum and apendix also removed. I have been home for three weeks. I did not expect to be in such pain for so long. I had a caesarian in 1980 and gall bladder removed in 1990 and feel I…
Kelly Ripa, QVC, Ovarian Cancer Awareness
Please enter the Recognize the Disguise contest. Have fun posting your picture, and choosing your disguise. It's all in fun to increase awareness of Ovarian Cancer symptoms. http://apps.facebook.com/recognizethedisguise/ and if you're willing, please vote for my entry. http://www.brickfish.com/GoToPage.aspx?qsi=46124733
Just found out Sister has cancer........
Well, just found out my little sister Cindy(she's 30) has cancer....We fell out 2 months ago over some family issues and now I'm looking back to the fight and just feel so disgusted with myself. She was in pain then and didn't tell anyone. She was hurting and kept it to herself. She needed us, needed our support and I was…
UPDATE ON BONNIE
I hope Bonnie doesn't mind, but some of you may not access Caring Bridge. This was an update from this morning by Bonnie's daugther Michelle. 'Talked to mom this morning. They are scheduling her for a CT scan this morning to get a better look at everything. Yesterday they had talked about sending her home today on pain…
Party for Linda Dorion
Hello, we are going to have a party in Toronto to celebrate Linda's life. I thought you should know. If anybody is crazy enough to come to Toronto on Friday be m guest then tell me.
Just wanted to share
Hi,Ladies. I just wanted to share with you something I have done to promote awareness for this dreaded disease. I recently ordered 200, individually wrapped, teal silicone bracelets (the company was offering 100 free bracelets for every 100 ordered). Each bracelet has the words, "Ovarian/PPC Awareness" on it. In addition,…
I'm grouchy......
I don't know if it's just my advancing age, or the risiaual aftermath of chemo, or the side effects of the Taxol maintenance, or maybe just the stress of the whole cancer experience, but I find that I have zero tolerance for almost anyone. My entire family gets on my nerves, it seems. I have never been a door-slammer, but…
Mother Joan has Questions
Mom received her Doxil late Wednesday afternoon and she was very tired Thursday and was able to do what she had to do. Today (Saturday) she says she wasn't even up for taking the dog for a walk. Today she's been a bump on the log...she wants to know how long this will last. Secondly, she has not had any mouth sores, no…
PRAYERS & HUGS TO BONNIE: UPDATE ON BONNIE
This is from Caring Bridge, in case some of you don't check Bonnie's journal. 'Spent the day at the U with Mom. Bit of a rough start this morning but by evening she was doing much better. We found out her hemoglobin was around 7 and platelets were around 24 which explains why she has been so tired. They ordered 2 pints of…
Libby, did you get the doxil or parp?
My mother started her doxil thursday. Said she is really tired today. She did not get the Parp inhibitor.
Pictures of Linda and Meghan
Meghan has posted an album of pictures of she and her mom on Face Book. If you aren't "friends" with Meghan, you can friend me and view them that way. Search for "Carlene Mullins" and you will see my picture. In your friend request, let me know you are from CSN. Carlene
Clinical Trial of ABT-888
Good Afternoon Ladies!! I had my blood work done yesterday and was told I was assigned by chance Doxol and not the ABT-888 + temozolomide As far as I know, I begin this Monday. The James Center will be calling me today with some information about Monday and I will aske for the results of my scans, muga and blood work.…
bummer
Here I was kicking and screaming about not being able to get Carbo anymore due to an allergic reaction and I find out my ca125 only dropped one point after my second infusion. BUMMER. I was hoping it would have made more of an impact than that. It had dropped 8 points after my first infusion. I just completed my first…
YEA!!!!!
I saw my gyn/onc today. My CA-125 is at 21 and my CT scan was clear! I'm THRILLED!! He's gonna check me every 2 mos, then do another CT scan in January. I actually left the office crying today because I was happy...what a switch! Dr. said we will have a boring 5 yrs ahead of us. I am truly blessed. I know there's a…
Survival Stories Please
I have been diagnosed with Ovarian Cancer and will start my clinical trial tomorrow. I am of course very nervous and would love to read about "Survial Stories" please.
Anyone on Doxil?
I just came across this.....a study that indicates Prozac taken in conjunction with Doxil can boost the effectiveness of the chemo drug. Since the doctors often push antidepressants on us anyway, why not ask for Prozac if you are prescribed Doxil treatment?…
Choosing NOT to treat
I decided decades ago, after watching several generations of women die of cancer, that I would not be treated when (not if) I developed cancer. That decision has never wavered; what I've seen since has made me more determined and content with my choice. So here I am. But it turns out that doctors don't particularly…
Ahcc anyone tried it
my white count took another dive this week, i heard ahcc is suppose to bring it up, anyone every try it
Ringing the bell
My Mom was diagnosed with stage 3a ovarian cancer in February of this year. She had surgery at the end of Feb and the Dr's said they got all of the cancer. She finished her last, 6th, treatment today. My sis just sent me a pic of her "ringing the bell" before she left MD Anderson. She does go back in a month to have her…
My little alien....
Saw my gyn/oncologist and got my (I think) number 5 maintenance (aka consolidation) chemo. I introduced him to my little alien - the abdominal hernia that was recently diagnosed by my PCP. My PCP referred me to a surgeon - a referral I ignored until I could ask my oncologist if I could have the surgery without interrupting…
update on Angela
Angela got out of intensive care yesterday. She just out the tube out of her throat. She will find out in a day or two about the testing on the masses that where removed. She is not in too much pain and her anxiety is not as bad. Please continue to pray for Angela and her mother-in-law Mary, who has overian cancer level IV.
Support NOCC and maybe President Obama, A. Jolie, others will eventually notice
I've read several of the statements about celebrities and their link to our cancer and unfortunately what seems to be a lack of involvement. Obviously we can't connect to those people personally but we can help suppport NOCC. If you go to the website you can find out how to contact your state rep/senators to help pass…
Out of breath when I walk
Anybody else experience this? Ever since I started Taxotere/Avastin I am so out of breath. My oncologist ordered a lot of cardiac test and it's not my heart. It seems that even when I just get up and walk a little distance I get out of breath. Although when I go swimming it doesn't seem to affect me. What gives? I will…
Dear Meghan
Meghan, I don't know how often you are checking in on the web site but I wanted to start a thread for you so you could come here and have messages from people who care about you and loved your Mom. I am so sorry for your loss. No one should have to lose their mother at such a young age. Please know that your mother loved…
Update on my book on cancer
Border's Bookstore has accepted my new book "Hope For Tomorrow", my booksigning will be Saturday August 7-2010 at 1 pm until 3 pm. IF you would like to order the book you may call them at 480-833-2244 to place your order. All proceeds will go to "Face In The Mirror". This organization helpes Women, Men and Children going…

Ovarian Cancer

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