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Etoposide
Hello everyone, I just wanted to see if anyone has taken Etoposide. My mom just started it two days ago. Any advice will help. Thanks, Margarita and Stacey
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Meet a survivor
I have a friend who has ovarian cancer, currently in remission. She has never met an ovarian cancer survivor. Is there any way we can put her in touch with a support group or whatever so she can talk to someone. She lives in southern New Jersey. Many thanks for any guidance you can provide. Banjoman
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GJ Tube
Hi all - just wanted to send another update on my mom. She is now out of the CCU and in a normal room. They have determined there is nothing wrong with her heart and aren't really sure why she coded on Friday. They have removed her chest tube and most of the drugs now which is good. The main problem she is having is that…
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A chain of prayers for Mom.
My Mom is having a PET right now, I ask for your prayers so that we get positive news, and the PET reveals that cancer from this 1st recurrence is gone and she may enjoy a long remission. She is scared of surgery and emotionally I don`t think she can take it..she's been a little down saying that she no longer wants to…
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gemzar
My onc is looking at gemzar as a possible option. How many of you have used gemzar and what side effect did you have? My chemo was delayed again because of low platelets. I get another blood test next Wed and will probably have to make some decisons then
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((((Group Hug))))))))
Thank you all so much for the notes you left!!! Reading all your messages is so heartwarming. What a group of brave compassionate warriors. I don't know about you but I think we all could use a group hug! ((((((((((((((((HUGS))))))))))))))))) Love Ya Bonnie
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CA125
I can breath again for another 3 months!!! Have just returned from my gyn/onc. Had my second remission check-up. AND my CA125 dropped again without any chemo!! I am now sitting at 16. YAHOO!! Do any of you get REALLY SCARED just before these kinds of visits? I can hardly breath until they tell me the number. Today I…
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Update on My Mom
Hi All. I have been meaning to update you on my mom Kathie for awhile now, but things changed suddenly so I am just now having time now. Mom had been feeling pretty poorly for a few weeks now and this past Thursday was admitted to the hospital due to severe vomitting. They got her feeling better and then Friday her blood…
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carbo/taxanes 4 Paula2
Hi Paula and everyone, In answer to your ?, My 1st remission was 18 months, 2nd was 13, 3rd was 7 months. They tried a 4th and I stayed stable for about 2 months, then My CA125 started to rise. I've been on the topotecan since. I'm pleased to hear Bonnie's news!! The side effects are hard to deal with sometimes, but the…
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To Paula2
25 PM EDT Re: New reccurance thoughts [reply] Thank you for you positive thoughts on that last message. Thank the Lord for your six years I sure do hope my Mom lives as much. I was wondering what stage were you dx at the beginning?? Have you had many surgeries? Tks again for sharing, God bless. LIZ
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carbo #4
Hi everyone, I did get carbo 4 and have 2 more scheduled. Today I am starting to feel the side affects and will probably be in bed until thursday. :-) My ca125 is down to 17 and some of the tumors did not light up on the petscan this time. They had been shrinking every since the Avastin last year so we are assuming they…
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delayed again
Went to get treatment yesterday afternoon and my platelets were down s was delayed. Am waiting for my onc to call. I expect I will go in next week.
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Update on my Mom
Her marker almost stayed the same from 11.7 to 11.2 this time out of a 21 range. Dr. has now ordered a PET CT Scan at the end of this month to see how things are doing. I pray the Lord she may have a long remission, if that is even possible. Blessings to all. Liz
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Second Opinion
Hello everyone thank you so much for your advice. Today I am writing together with my mom. We went to Fox Chase to see a her gyno oncologist. She suggested yet another drug, Etoposide. I keep hearing Doxil from members in this group so I will ask her oncologist about it. If there is anyone that knows about this drug it…
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recurrance
Hi! It's Back! I am the one with a vary rare cell type of OC. I might as well be rare about something else also. I was told that 95% of the time OC will come back in the abdomin or pelvic. Well, I have Ovarian Cancer scattered through out my lungs but mainly in the upper portions. A couple of the tumors are golfball size.…
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Challen14 - new
Hi Charolette, I started this string for you. challen14 08-17-2007 10:55 AM EDT Re: New Member [reply] Hello to all, my name is Charlotte and I am new here as well. I am sorry we have to meet this way, but here we are. I am on Topotecan now also and it is working very well for me so far. My CA125 was down to 25.3 at last…
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CA-125 results
After debulking surgery and one treatment of taxol and carbo my CA-125 measured 10. Down from 35 pre surgery after 4 treatments of chemicals. My neuropathy is much better after startine the B-6 and doubling my anti-depressant dose. My feet have completely stopped the burning in four days. I took my second treatment…
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Opinions about Johns Hopkins Ovarian Cancer Center
Hi. I'm interested in finding out about peoples' experiences at Johns Hopkins Ovarian Cancer Center. My mom is under the care of a gynecologic oncologist in Northern Indiana, but we are considering getting a 2nd opinion from a tertiary cancer center. Johns Hopkins is nationally recognized in their treatment of cancer, and…
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New Member
Hello everyone, my name is Stacey and I am here to get some advice from anyone who can share their experiences with us. My wonderful mom was diagnosed with ovarian or primary peritoneal last December. She underwent a total hysterctomy and debulking surgery followed by 7 cycles of carboplatin/taxol. Her CA 125 went down…
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Neuropathy
Well, I now am getting neuropathy in my feet...burning & pain at night. Any remedie hints would be appreciated. I took one Tylenol and then two ibuprophen to get to sleep last night after midnight. I will see my oncologist Thur and will ask him then. Hugs to all.
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New reccurance thoughts
Hi lady's, I keep on thinking about my Mom's recurrence, I was wondering those who have had recurrences....has cancer spread more or in the same places than in the beggining? How hard was it to get into a remission?? I've been thinking of this a lot lately. I`d like to her some stories. Thanks to all and many prayers to…
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update
I just returned from seeing my onc. My chemo was once again delayed -- this time for wbc. Last week it was platelets which have really gone up. I am back on nupegean (not sure how to spell it) shots again and will continue on the carbo topo regiment for another cycle or maybe two cycles depending on how my counts stay up.…
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Progress
Hi Everyone Last night there was on TV a very interesting story on cancer called For the Holy Grail. I found it very inspiring and it confirmed my belief that you have to continue to fight as hard as you can as there is so much research and progress being made. The address is http://www.abc.net.au/austory/. Irene.
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TO CUBBYBOY
Hello, and welcome to our forum. I started a thread here, so that you would be able to spot it easier and read your responses. You sound so bewildered, concerned and frustrated, what most of us in this position feel from time to time. But I believe you will get a lot of help, suggestions and support here, especially…
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ct results
I just went over my ct scans with my onc. For the first time I got to see all of the pictures not just the radiology report. It was interesting looking at the tumors but also a little scary. All of my tumors (I have one in the dome of my liver and 2 in my chest wall plus and tiny one in my chest (under 0.4 in)). All have…
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patupilone
Has anyone out there used the chemo drug patupilone. I am considering going on a study using this drug and understand it is quite new. I have been on carboplatin and topopecan. The carbo is playing havoc with my platelets and blood counts and once again have been delayed due to very low platelet count. I just had a ct scan…