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Back at home
Hello Dearhearts, I am safe at home, my favorite place to be these days. I so hate hospitals! After spending a long 7 hours in the ER, and feeling like I was at my lowest point, I convinced them to let me go home. I have been resting most of the day, but I know that you all are waiting for my update. So here goes.. I…
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testing starts
testing starts next week monday and tuesday, then i see the onc again on september6 and the next day i have the cathater placed and admitted to the hospital to start the transplant i will have chemo for 4 days rest a couple of days and then get the new stem cells i havent found out yet what will be done about the platelets…
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Questions about RICE Chemotherapy
Hi everyone, I have a new friend who was diagnosed with Diffuse Large B Cell Lymphoma a few months ago. He's completed four rounds of Rituxan and responded pretty well but has one area/spot that didn't seem to respond. He just started RICE treatment last week (I think he's going to have 4 cycles). I've done some research…
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New to Lymphoma Discussion.......am here from the Ovarian site
Dear everyone, My name is Lisa and I lost my mother to OVCA 14 months ago.....but that's another story. I have a dear friend who was diagnosed with non-hodgkins lymphoma 7 years ago. She had treatment and went in to remission until 3 months ago. She has been back on chemo, but this time around it seems to be really kicking…
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Heading to ER
Hello Dearhearts I am taking a minute to let you know that I am heading to the ER. The weekend was not so great and the dehydration has become to much for my system to handle. I am in this horrible circle of not eating or drinking and not taking enough pain meds because I am so afraid of the nausea. My doc is not having it…
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Still trying to post
This is my 4th attempt this morning to post. I read all the post a couple of times a day. Lets see if this one posts or not. If not I will try a couple of more times. I go thru this everyday.John
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2 Cycle coming Up...what Should i expect?
Hello Everyone, Well, i am on My Second week of My first Cycle. So far so good. In The first few days i had no taste and dried mouth. I am having flu like symptoms like runny nose , sneezing And occasitional cough. No fever though. Is that normal? Day 6 And 7 after the prednisone, i felt that i got ran over by a truck. My…
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decision made
i have decided to have the stem cell transplant the doner is fully matched, so that cuts down the risk of host verses graft, the onc said hes not worried about the grafting not taking because i have had so much chemo, if there are no complcations i will only be away from home 4-5 weeks, my pre testing starts later this…
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Dogs in love
This is such a cute picture I couldn't help but put it up. My neighbor sent it to me. My Sam is a blueheeler and Kota is my neighbors sweetheart lab mix. Sam LOVES Kota as you can see. A friend of mine says Sam is glowing LOL We have 2 heelers (boys) and a border collie retriever mix Gidget. The baby heeler is Brody. Let…
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Scan
Looks like my scans are clean. So far so good. Of course my Oncologist give the Zevaling all the credit. I am sure that is true. Have been in remission since December O9. But the last time I went 5 years. Well one week away. After 22 radiation treatments. I just dont know why I itch all over all the time. They really do…
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Hey Everyone
I know I haven't posted very much lately, sorry. I do read the posts, but haven't responded much because I type funny on my phone and it's embarrassing LOL. I had my 3rd Rituxan thursday and I'm ok, just really tired. I slept almost 14 hours yesterday and today my back is killing me. I guess it serves me right. Hopefully…
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Here we go again
Well friends, in back at urgent care. Got me a fever and I think I have some kind of urinary infection. Hopefully I'm in time to get it arrested quickly with minimal antibiotics. Love y'all, I'll keep you posted....
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some results
Hi All First, thank you for your expressions of support in my last very long post. I talked with my reg doc this afternoon. This is what I now know and what will happen next. The scan showed a large pocket of fluid in the area of the most pain. It may or may not be infection brewing. My white count is not to low, just…
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Venting, screaming, crying and everything. Super long post
Hello Dearhearts, I was planning on posting an update to the ct scan. Well, I have an update of sorts. I had the scan on tuesday, after numerous tries to get it set up sooner. the onc "had" ordered it the previous Wednesday! As I mentioned earlier, the scan was a breeze. No problems and the nicest folks. Well today,…
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Happy CT Results !!!
Whoohoo! I'm still in remission! I'm so thankful and to you guys too! I had a lot of anxiety this time (didn't sleep well last night). Now, I'm kind of "high" on the results so I probably just broke the "silliness" meter. I think we all can relate to this: "Prednisone Effect" or "The Cancer Rollercoaster" (some adult…
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What to hear success stories bcell NHL .
All, Here is my story I got my DX in February the doc said it is curable thank God I got engaged 9 days earlier and then we wee dealing with treatment. So we will marry in January. The DX was small cell with some medium cells it is the CD 20 cell. I have been through 4 straight Retuxin treatments, then several rounds of…
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New photos
Hi All I posted a few pictures from surgery day. I hope you don't find them to be to much.. I am glad that hubby took the photos for me. I have very little memory of that day or the next few days.. They are on my expression page. Hugs Lisha
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Shingle vaccine
I forgot to mention I questioned my oncologist Aug 6 about the shingle vaccine. She stated, 98 % for the vaccine. But, after that comment, she made a negative kind of face and said nothing. Nothing, Nothing and Nothing. When I said I will decline the vaccine, she said nothing, and shook her face indicating no to vaccine.…
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ct scan
Hi All Well I finally got the scan. It was done at a new satalite imaging center. Very very posh and I really felt welcomed. The place looked like a cross between a ritzy spa and disneyland's fancy hotel. very sureal indeed! The i.v. set up is always the hardest part for me. Tiny, scarred veins. Plus today, I was so…
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Results of Pet CT Scan
Hello to my dear family, The Pet CT scan taken July 30 is still negative for activity. I am still in remission. To those who are not familiar with my DX: In September 2009 I was rushed to the hospital with terrible pain. After a CT scan, it was noted my small bowel perforated. I was rushed into surgery. I was in ICU for…
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Aaron, how's this cycle treating you?
Hey Aaron, Thinking about you and wondering how you're doing this cycle? Well, I hope.
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Praise the Lord
I'm so happy I could cry. My dad was diagnosed almost exactly a year ago today with diffuse large b cell Non Hodgkins Lymphoma stage 3 progressing quickly to 4. My dad had 6 r chops ( after the 3rd one it went away and immediately came back). He then had 3 rice treatments which didn't work at all. On his 58th…
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Thinking good thoughts...
Hi guys, Just want you to know I'm thinking good positive thoughts for all of you. I've read all of the current comments, but do not have time to answer each one. The fishing is great, so we are hitting it hard and then resting when we are back at the cottage. The weather is "HOT", so we are getting out in the early…
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3rd cycle the worst :(
Sorry i have been out of the loop and haven't been updating. Just recieved my third cycle on thursday and it's been one hell of a weekend to put it bluntly :( This one hit me harder and faster than any of the other.... i hope the rest aren't like this cause i don't know how much more i can take :( Just keeping postive that…
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Thinking of Maggie - scan results today
Thinking of you and hope you get wonderful results today on your scans! Let us know how you're doing :) . Hugs, Jim
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DaddysGirl
DadysGirl, Just wondering about your dad and you? Please let us know what the Doc says... constantly thinking and praying for your dad and you! (((HUGS))) Sincerely, Liz
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Missing you all ---- update
Hi Dearhearts I sure am missing you all. This has been so difficult, really knocked me down! The pain is so debilitating and really exahusts me. Hubby has me on a tight pain meds schedual. four differnt types of strong narcotics. makes typing and just seeing, a real challenge. I am waiting for a call from the cancer center…
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What to expect during chemo
Hi. My wife was just diagnosed with Hodgkins. She starts ABVD chemo this week. Can anyone give me some advice on how best I can support and care for her during her treatment? (I want to do everything I can make the next few months as bearable as possible for her.) Any tips on what to expect, what to avoid, what to be aware…
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Muscle cramps (Neuropathy)
I had 4 treatments of ABVD and 18 rounds of radiation in 2010. My feet and legs are cramping so bad at night I cant sleep, wondering if it is a result of the treaments or something new can anyone shed any light on this. My doctor gave me Elavil for the cramping, Elavil is a depression drug, I didnt know that until after I…
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Advice/opinion
Just diagnosed with stage 3, low grade follicular lymphoma with clean bone marrow. As of now, the projected plan of treatment is Rituxan. Research is frightening. Any comments/advice from personal or known experience with this infusion drug?