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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for June 2011

Waldenstrom's
My name is Charles and Ihave been diagnosed with Waldenstrom's. Am interested in any persons or family memebers who are dealing with or who have delt with this type of disease. About to have Rituxan.
cobra666
i guess chemo brain again,my 13 yearold daughter imformed me i am scuttlebug 11,i had my oldest daughters laptop while mine was in the shop. now what do ido to fix the problem. i'm begining to think it will hang on forever. my family thinks i have head problems blessings denise.
non-hodrkins
Morning all I am new to this discussion, I originally had breast cancer and am llike 3 days shy of the 5 year mark. naturally I felt great, I had beat that cancer. Found a huge lump Sat a week ago,doctor Tue. CT full body Wed, surgeonou. Fri. O.K. my reg doc, not the oncologist, told me that there was only one node…
Melt down
My numbers keep dropping so they gave a neupogen shot again to try to "jump start" my system. I am so disappointed. I can't get my port out because my ANC is below 500, at one point it got to 1810. I can't go home until I get the port out. It's a vicious circle of getting nowhere. I had a melt down today and actually cried…
talked to a onc nurse at lymphoma center
i talked to a onc nurse today, she said the vaccine follicular nhl is in phase 3 she doest't know when will be ready. they do have a vaccine for prostate cancer and the only way we get into a clinical trail is everything else is exausted. blessings denise
anyone know how
anyone know how to get some of thejunk off the computer? blessings denise
other pages
john i looked on other pages and anoher board i just a lot i feel to bad i go to the onc this week,so they can do bloodwork for cancer markers blessings denise
new name
hi everyone, hope everyone is ok. I had to put my computer in the shop and for some reason I could't have the name scukklebug so i took one it suggested. blessings denise
Numbers
Just frustrated these days. Met with Dr yesterday. My numbers are slow to recover and it ticks me off...they were doing so well. He talked yesterday about giving me a double transfusion of platelets to get my count high enough to get my port out, but then the schedule they gave me doesn't have me going back until Monday. I…
Leslie(YESYES)
Leslie, It has been a while since we have heard from you. Are you doing OK?John
Fran....Where are you?
Fran, Just wondering how you are doing. We have not heard from you for a while. Hope all is good. Thinking of you. John
Lymphoma Research Foundation Ask the doctor sessions
Has anyone here ever attend any of the Ask the Doctor sessions or workshops put on by the Lymphoma Research Foundation throughout the States for lymphoma patients and/or caregivers? There is one next month at Stanford and I was wondering if they are worth the commute. July's overview * Lymphoma overview * Treatment options…
Pics on Expressions Page
Ok Sue, I posted a couple pics. Take Care, Beth
tart cherry juice
Hi Yesterday I saw on Dr.Oz that if you have aches and pains ,which I do ,go to the health food store and get tart cherry juice. It has been proven to help the pain. Well I got a quart of Fast Fruit. It is $19.99 a quart but you only mix 2 teaspoons a day in 7 ounces of water. I will let you know how it works. I don't know…
Donald where are you?????????
Wondering how you are doing now a days? Would be really nice to hear from you and how you are doing these days. I have my problems but taking one day at a time for sure. Have a egd planned for tomorrow for stomach pain. So will see. Would love to hear how you are doing. Hilde
Diagnosed with Hodgkins Two weeks ago...
I am 25 year old male that was diagnosed with Hodgekins 2 weeks ago. I have a 11 month old son that is my world and I want to be here for him forever. I am wondering if anyone could help me out by telling me how they handel the stress and coping with the fact that they have hodgekins. I am also wondering if anyone else…
Last Treatment!!!!!
I just got home from my last chemo treatment, well hoefully. I will have a Pet scan done to confirm. But I'm excited. I think it's done with. And even more so my birthday is July 1st. What a great birthday gift, to be done with chemo!!!
31 years old with Small Lymphocytic Lymphoma. Really need to talk with someone who is in the same si
Hey there, Seamus Riley of Arlington, Va. 31 years old and just found out I have Small Lymphocytic Lymphoma. I know this is normally found in older people so I am trying to find people under 50 who are in the same boat. Posting here is fine or email works great. sriley2@hotmail.com
Just diagnosed, First Treatment Done ABVD
I was just diagnosed with Stage 2 Hodgkins Lymphoma on May 21. I got married June 4th and had my first treatment of ABVD last Thursday the 16th. I am not reacting very well to the chemo at all. I'm constantly having nausea and can barely hold any food down, my body is so weak and painful I can barely make it up and down…
Swollen lymph node in neck
For about two months now I have had a enlarged lymph node on the right side of my neck and one to the left side of my thyroid. My family Dr. said my thyroid was enlarged. Not true a PA at a local free clinic said it is lymph nodes and put me on two weeks of antibiotics, needless to say hasn't helped. I have lupus, since…
Got the "R" right today...LOL
Sue, Good Luck on your Rituxan TODAY!!!! John(FNHL-1-4A-5/10)
Numbers are great and maybe home later this week???
Sorry for not posting much, but it's been such a whirlwind with clinic visits, family and just tired, BUT there is a light at the end of the tunnel!! My WBC just as an example 6/15 0.2 6/16 0.3 6/17 0.2 6/18 0.5 6/19 1.2 My ANC count needs to be 1500 6/18 0.9 (barely discernable) 6/19 720!! Nurse practitioner says I may be…
Private Message
Hi, How can I read a private message from a friend on this site? Thanks Maggie
low grade nhl
Hi i was diagnosed last october with low grade nhl i had a bone marrow biopsy and ct scan last november, my bone marrow fluid is fine i have small traces in my bone marrow but was told thats common in newly diagnosed people, it was the best pre xmas presen i could have had. I have CLL i went this march for a check up and i…
Happy Father's Day
Hi Just want to wish all the Dads a wonderful day. I hope you are able to spend some time with your loved ones. Peaceful healing Lisha
Port, picc line, or IV?
When i did my chemo the tumour in chest was to big to get a port. i could either wait until the tumour shrunk from chemo, then get it put in but i chose not to. I chose to get an IV and have the chemo pump directly into my veins. Im just curious to see what everyone else did and if they'd choose it again. Thanks, Ian
How does chemo cause weak legs?
Hi, Many people have commented about weak legs caused by chemo but I haven't found what is actually occurring to make the legs weak. I finished 7 r-chop treatments for NHL in October 2010. My guess to the weakness problem is nerve damage since my feet are still pretty numb. It doesn't make sense to me that my legs are…
Another jerk
John, sorry I forgot to include in my last email about Weiner. I can't believe people do the things they do. They all need help. Maggie
Burkitts Non Hodgkins Lymphoma
My husband was diagnosed with Burkitts Non Hodgkins Lymphoma in Dec 2010, and was started on aggressive chemo treatment. He had his 6th chemo the end of Apr, 2011 and has not been able to have more because his blood counts are not high enough. He had a bone marrow biopsy dont two wks ago and the results came back that he…
THE BIG "R" TODAY
Sue, How did the Rituxan go today? I am pretty sure today was your appt. John

Lymphoma (Hodgkin and Non-Hodgkin)

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