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Just my luck!
Don't it figure...we turn the clocks back tonight...last day to take the pred and now I'll have an extra hour of no sleep..hahaha!...Love Sue..(FNHL-2-3A-6/10)
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Will I ever become normal again?
Or am I destined to stay a nervous wreck? I was just Diagnosed a year ago with Hodgkins Lymphoma, did 12 rounds of chemo, and declared 'in remission'. I had lots of trouble with my chemo, I developed thrush everytime and I thought my 'bone pain' was unbearable. My Gallbladder quit functioning and I had to have it taken out…
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Newest update
Hi All, I just wanted to update on MIL. Our plan was for her to arrive on the 12th, but yesterday she started to go down hill, so I have changed her tickets to this Mon. The airline was so kind, they even upgraded the seats to row three. I have been scrambling to finish up at the apt. And I still am fighting this cold. I…
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Trouble Swallowing during Radiation
So i've had 10 radiation treatments or 20 for Hodgkins. I am being radiated in my chest area. The doctor had told me one of the side effects that most patients complained about was having trouble swallowing. I had no idea how bad it would be. I can barely swallow my own saliva, let alone anything to drink or eat. If i try…
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one more!!!!!
Hey, just an update, they want me to do another spinal tap, to be sure that I don't have any other serious problems developing....... they feel the bone marrow biopsy is a waste of time at this moment. She was of course happy with the PET scan result's, but feel's that I must be diligent and get scans every 3 months for…
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#5 on tap
Hi Y'All, Just thought I'd let you know that I'm in the waiting room to be called in for my #5 infusion. I haven't been able to go through the recent posts yet and internet doesn't work in the infusion center, so I don't know everyone's status. And tomorrow (Friday) early AM we have to drive down to Houston (5 hours) to…
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Bone Cancer after Hodkins???
Hi all, I just finished my treatment for Hodkins 2weeks and 2days ago. I had 6 cycles of ABVD and 3 weeks of radiation. The tumor in my chest was originally almost 11 inches wide. 2 days after my last radiation treatment I began experiencing bone pain in my pelvis and femur in my left side. The pain has since gotten so bad…
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Thank you!
Thanks to all who took a peek at Maggie and were so kind to take the time to leave a comment. I then felt so bad for not putting the other twin on there too. I was in a hurry and thought the picture was too funny. Soooo I did sneak a second picture of Maggie's twin Nanette for anyone who would like to see. I need a big…
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Has anyone had any reoccurence - I'm scared!
I have been a Hodgkins survivor for 9 years and just recently have had swollen glands and the doc found a nodule on my thyroid (hypo). Ever since he said I had swollen glands I began itching, not as severe as the first go round, but I have that nagging stinging feeling that moves around... could this just be my mind…
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not to bad news
Hey, just got back from Onc. visit, while my white count's are still low they did come up from the last visit which is good. My doctor said she stills wants to do a bone marrow biopsy, to be 100% sure that I'm still in remission. She also said I still may need the Spinal Tap, if the Univer. of Penn thinks it's necessary. I…
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Anyone up for a laugh?
My daughter has 5 month old twins and one of the pictures always makes me laugh out loud. I wanted to share this with anyone who needs a laugh this morning. If so go to my profile then expressions and click photo to enlarge. Thanks for looking at one of my big reasons to fight!! Mary
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Merrywinner
Mary, Haven't seen a posting from you for a long time. How are you doing? Darlene
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Ideas on staying organized?
Hi, my name is Amanda and I was diagnosed with Stage 4 Hodgkin’s Lymphoma five years ago. Thankfully, I am now doing very well! I am currently a graduate design student at Pratt Institute in Manhattan. For my thesis project I would like to create a welcome binder for new cancer patients. Inside would be information about…
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4th round all done...
Hi guys, 4th round went fine...no problems, but still took 6 hours at the clinic. My doctor would not adjust the pred..boo hoo! He said I could take benedryl to slow it down, so maybe I will try that when it gets crazy for me. Round 5 will be 2 days before Thanksgiving. Anyways...I feel a little tired from all of the…
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Sue, how did it go today?
Hi Sue, I think from another post that you have your 4th infusion today. Let us know how it went. I am particularly interested because my 4th hit me harder that the others did. But even at that, after about 1 1/2 weeks it was much better. And I don't think that we are on the same chemo - but still, let us know. Hope it…
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More news
Hi All, Well, I have rented an apt and now trying to furnish it. My daughter has been a great help finding stuff. I set up cable and phone service too. I have arranged for hospice to start the day after MIL arrives. They will supply her with a hosp bed, wheelchair and what ever else she may need. My stress level is better,…
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Late Effects of chemo
Hi, I found this site looking for support groups of childhood cancer surviviors. I am 19 and had stage 4 NHL when I was 2. Since I was 11 I have experinced many episodes of anxiety attacks and PTSD over the years. I also have difficulty in school particulary in math. I was just curious if anyone else has had these issues…
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CTCL/MF
I'm devastated by my mother's condition. She had a heart attack back in March, and while in the hospital the hemotologist was curious about her skin condition, ran test to find out that she had late stage CTCL/MF. Her skin was really in bad shape, her feet, and hands hurt and her fingertips almost useless. She has since…
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Flu Shots
Hi, My oncologist told me last Tuesday, that I could have a flu shot, but when your immune system is challenged they only worked in one out of six people. Finished RCVP in May and then had the Zevalin in July. I asked him how long I should wait to have one, and he didn't seem to have a definitive answer. Anyone else asked…
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r epoch or group c chop?
i was diagnosed with mediastinal diffuse large b cell non-hodgkin's lymphoma a few weeks ago, and i've had one round of Group B chop treatment, but now my doctor's have decided to either up my dosages to Group C chop treatment or give me R epoch treatment instead in order to decrease the chances of my cancer coming back.…
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Stem Cell Transplant
Hi everyone: I have Hodgkin Lymphoma, diagnosed in March 2008. Been thru all kinds of chemo, but never stayed in remission for more than 1 month. I am eventually going to be needing a stem cell transplant. I was just wondering if anyone has had a SCT for HD and what kind of high doses of chemo did they give you. I have 2…